Player FM 앱으로 오프라인으로 전환하세요!
125. Akiva Zablocki, Helping Families with Hyper IgM Find Community and Care
Manage episode 367812264 series 2413114
Akiva Zablocki is a former healthcare consultant and the founder of the Hyper IgM foundation. When Akiva’s son Idan was just eight months old, he was diagnosed with Hyper IgM, an incredibly rare genetic mutation that severely compromises the immune system. After three years of diligent research and advocacy, Akiva and his wife were able to obtain a life-saving bone marrow transplant for Idan.
Through this experience, Akiva connected with other Hyper IgM patients and their families all around the world, as well as many doctors and immunologists working to help those patients. This growing community led Akiva to found the Hyper IgM Foundation, which has become a much-needed way for patients and families to connect and share resources that were previously so difficult to find for such a rare illness. Akiva continues to work tirelessly to support his fellow Hyper IgM families and help them feel less alone.
For more information about Akiva Zablocki and his family’s journey, visit our website at madevisiblestories.com/podcast
Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance.
Join the conversation and connect with us online!
Website: madevisiblestories.com Facebook: madevisiblestories Instagram: @madevisiblestories LinkedIn: madevisible
136 에피소드
Manage episode 367812264 series 2413114
Akiva Zablocki is a former healthcare consultant and the founder of the Hyper IgM foundation. When Akiva’s son Idan was just eight months old, he was diagnosed with Hyper IgM, an incredibly rare genetic mutation that severely compromises the immune system. After three years of diligent research and advocacy, Akiva and his wife were able to obtain a life-saving bone marrow transplant for Idan.
Through this experience, Akiva connected with other Hyper IgM patients and their families all around the world, as well as many doctors and immunologists working to help those patients. This growing community led Akiva to found the Hyper IgM Foundation, which has become a much-needed way for patients and families to connect and share resources that were previously so difficult to find for such a rare illness. Akiva continues to work tirelessly to support his fellow Hyper IgM families and help them feel less alone.
For more information about Akiva Zablocki and his family’s journey, visit our website at madevisiblestories.com/podcast
Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance.
Join the conversation and connect with us online!
Website: madevisiblestories.com Facebook: madevisiblestories Instagram: @madevisiblestories LinkedIn: madevisible
136 에피소드
모든 에피소드
×플레이어 FM에 오신것을 환영합니다!
플레이어 FM은 웹에서 고품질 팟캐스트를 검색하여 지금 바로 즐길 수 있도록 합니다. 최고의 팟캐스트 앱이며 Android, iPhone 및 웹에서도 작동합니다. 장치 간 구독 동기화를 위해 가입하세요.