38. Sarah Land - founder of the Peeps H.I.E. Charity

Wild Card - Whose Shoes?

Today I’m talking to Sarah Land, another wonderful person who is using her own lived experience to help others.

Until a short time ago, I hadn’t heard about Sarah, who is the founder of the Peeps H.I.E. Charity.

Now I seem to be hearing about her everywhere I go. Such is the nature of networking. And, very rewarding in the context of my strong belief that these inspirational stories need a much wider audience!

Thank you, Rachel Crook, (Episode 34) for introducing me to Sarah and to everyone driving positive change for young families.

Lemon lightbulbs 🍋💡🍋

• Sarah Land’s lived experience made her HIGHLY qualified to set up the Peeps H.I.E charity
• HIE - Hypoxic Ischemic Encephalopathy- what is it?
• Lived experience needs to be properly valued
• Healthcare professionals and parents need to work TOGETHER (the new professional panel will build on the successful parent panel
• Peer support is very important
• Each family’s experience is different - care needs to be personalised
• Some parents will be desperate to go home after a stay in neonatal unit; others will be terrified
• Going home with a new baby is tough at the test of times
• Parents can contact the charity when the time is right for them
• We need to ensure good work that relies strongly on individuals is sustainable
• Networking is strong – there are strong links to our Whose Shoes #FICare project
• The power of Twitter! Connect and join forces with other people with similar passions
• Getting the balance right - Family Integrated Care is the goal but make sure there is always proper support
• Prepare for going home, feeling empowered rather than under pressure
• Think differently – focus on improving lives rather than just measuring 'bed days' and financial outcomes
• Whose Shoes thinking - bring in more humanity!
• People need to feel free to laugh and enjoy life, even when things are difficult
• Listen to people and see them as individuals
• Let’s raise awareness of H.I.E!

Links and resources

Find out more about: Peeps H.I.E charity

Episode 13: Yvonne Newbold MBE – founder of Newbold Hope
Episode 34: Rachel Crook: caring for little ones, as a mum and a nurse!
We LOVE it when you leave a review!
If you enjoy my podcast and find these conversations useful
please share your thoughts by leaving a review (Spotify or Apple are easiest to leave a review - navigate via 3 dots) and comment on your favourite episodes.
I tweet as @WhoseShoes and @WildCardWS and am on Instagram as @WildCardWS.
Please recommend 'Wild Card - Whose Shoes' to others who enjoy hearing passionate people talk about their experiences of improving health care.

챕터

1. 38. Sarah Land - founder of the Peeps H.I.E. Charity (00:00:00)

2. Sarah Land is the founder of the Peeps HIE charity (00:00:46)

3. How it all started – Heidi’s story (00:01:50)

4. Hearing from other parents really helped (00:05:23)

5. Who is ‘qualified’ to set up a charity? (00:08:10)

6. Desperate to go home – or scared to go home? (00:08:52)

7. Parents can contact the charity when the time is right for them (00:09:28)

8. Going home with a new baby is tough at the test of times (00:10:51)

9. Everyone’s experience is different (00:12:28)

10. Connecting and joining forces with other people helps (00:12:29)

11. Good stuff. Passionate stuff. How to make it sustainable? (00:13:28)

12. The connections are really growing. Strong links to our #FICare project (00:15:54)

13. Peeps HIE - new professional panel, in addition to the existing parent panel (00:17:49)

14. The power of Twitter! (00:20:35)

15. Whose Shoes work around services for children and families (00:21:55)

16. … and Family Integrated Care (00:22:41)

17. Getting the balance right - Family Integrated Care but making sure there is always proper support (00:24:06)

18. Each family is different – personalised care is so important (00:25:02)

19. Going home – with as much confidence and support as possible (00:25:31)

20. Thinking differently – improving lives rather than just measuring bed days and financial outcomes (00:26:36)

21. Whose Shoes thinking - bringing in more humanity (00:27:10)

22. Being able to laugh and enjoy life, even when things are difficult (00:28:12)

23. HIE - Hypoxic Ischemic Encephalopathy- what is it? (00:29:22)

24. Sarah’s top tips – listen to people and see them as individuals (00:30:01)

25. Please help Sarah raise awareness! (00:31:56)