Artwork

Jessica Temple에서 제공하는 콘텐츠입니다. 에피소드, 그래픽, 팟캐스트 설명을 포함한 모든 팟캐스트 콘텐츠는 Jessica Temple 또는 해당 팟캐스트 플랫폼 파트너가 직접 업로드하고 제공합니다. 누군가가 귀하의 허락 없이 귀하의 저작물을 사용하고 있다고 생각되는 경우 여기에 설명된 절차를 따르실 수 있습니다 https://ko.player.fm/legal.
Player FM -팟 캐스트 앱
Player FM 앱으로 오프라인으로 전환하세요!

Monica Michelle's Story With EDS, CRPS, MCAS, and POTS

1:20:36
 
공유
 

Manage episode 295232757 series 2905375
Jessica Temple에서 제공하는 콘텐츠입니다. 에피소드, 그래픽, 팟캐스트 설명을 포함한 모든 팟캐스트 콘텐츠는 Jessica Temple 또는 해당 팟캐스트 플랫폼 파트너가 직접 업로드하고 제공합니다. 누군가가 귀하의 허락 없이 귀하의 저작물을 사용하고 있다고 생각되는 경우 여기에 설명된 절차를 따르실 수 있습니다 https://ko.player.fm/legal.

Episode 19: Monica Michelle's Story With EDS, CRPS, MCAS, and POTS

In this episode, Monica Michelle discusses her chronic illness story with EDS, MCAS, POTS, Fibromyalgia, CRPS, and more. Monica and Jessica go on a lot of fun soap-box rants about the state of healthcare and disability. They discuss the use of mobility aids, and awesome tips and tricks to stay safe. We chat about the complexities of MCAS and trying to figure out our triggers. Jessica rants about how expensive chronic illness is and how much it affects ones finances. Monica discusses the combination of treatments that helps make her chronic pain slightly more manageable. To minimize sleeping dislocations, she keeps on leg on top of a pillow, and keeps herself still with a weighted blanket. She recommends an adjustable bed to assist with transfers to her wheelchair. Monica shared that it took 30 years to get formally diagnosed. She was always in pain and throwing up as a child. Doctors simply diagnosed her with mental health difficulties, and she was initially diagnosed with MS and lupus. She was able to get in with a private pay doctor who eventually properly diagnosed her.

The two then discuss the horrors or racial discrimination in the healthcare industry and the power differential between patient and doctor. They discuss weight discrimination and the horrible limitations to getting insurance with preexisting conditions.

To cope, Michelle uses her medications, uses virtual reality games and tours, a TENS unit, social support, distraction, bring kind to her, learning how to be a sick mom, and having “slug” days with her daughter.

Invisible Not Broken

Explicitly Sick Podcast

I Can’t Believe That Happened Podcast

Unacceptable Pain Scale

Muldowney Protocol

Whillchair

Smartcane

Zerogravity Bed

Oculus

YouTube VR

Art Rage App

Procreate App

Ninja Hot/cold Mixer

Untamed

Skillshare

H-Wave

Links:

Website

Facebook

Instagram

Email

Twitter

Please subscribe to our podcast in the iTunes store, or wherever you find your podcasts, Leave us a 5-star review, to help us know what you like and what you don't like, and to make sure other like-minded people find support through this podcast.

Hosted by: Jessica Temple

Music by Antarcticbreeze Music

Disclaimer: Our show is not designed to provide listeners with specific or personal legal, medical, or professional services or advice. Listeners should always consult their health care provider for medical advice, medication, or treatment.

Copyright 2021 Jessica Temple

  continue reading

49 에피소드

Artwork
icon공유
 
Manage episode 295232757 series 2905375
Jessica Temple에서 제공하는 콘텐츠입니다. 에피소드, 그래픽, 팟캐스트 설명을 포함한 모든 팟캐스트 콘텐츠는 Jessica Temple 또는 해당 팟캐스트 플랫폼 파트너가 직접 업로드하고 제공합니다. 누군가가 귀하의 허락 없이 귀하의 저작물을 사용하고 있다고 생각되는 경우 여기에 설명된 절차를 따르실 수 있습니다 https://ko.player.fm/legal.

Episode 19: Monica Michelle's Story With EDS, CRPS, MCAS, and POTS

In this episode, Monica Michelle discusses her chronic illness story with EDS, MCAS, POTS, Fibromyalgia, CRPS, and more. Monica and Jessica go on a lot of fun soap-box rants about the state of healthcare and disability. They discuss the use of mobility aids, and awesome tips and tricks to stay safe. We chat about the complexities of MCAS and trying to figure out our triggers. Jessica rants about how expensive chronic illness is and how much it affects ones finances. Monica discusses the combination of treatments that helps make her chronic pain slightly more manageable. To minimize sleeping dislocations, she keeps on leg on top of a pillow, and keeps herself still with a weighted blanket. She recommends an adjustable bed to assist with transfers to her wheelchair. Monica shared that it took 30 years to get formally diagnosed. She was always in pain and throwing up as a child. Doctors simply diagnosed her with mental health difficulties, and she was initially diagnosed with MS and lupus. She was able to get in with a private pay doctor who eventually properly diagnosed her.

The two then discuss the horrors or racial discrimination in the healthcare industry and the power differential between patient and doctor. They discuss weight discrimination and the horrible limitations to getting insurance with preexisting conditions.

To cope, Michelle uses her medications, uses virtual reality games and tours, a TENS unit, social support, distraction, bring kind to her, learning how to be a sick mom, and having “slug” days with her daughter.

Invisible Not Broken

Explicitly Sick Podcast

I Can’t Believe That Happened Podcast

Unacceptable Pain Scale

Muldowney Protocol

Whillchair

Smartcane

Zerogravity Bed

Oculus

YouTube VR

Art Rage App

Procreate App

Ninja Hot/cold Mixer

Untamed

Skillshare

H-Wave

Links:

Website

Facebook

Instagram

Email

Twitter

Please subscribe to our podcast in the iTunes store, or wherever you find your podcasts, Leave us a 5-star review, to help us know what you like and what you don't like, and to make sure other like-minded people find support through this podcast.

Hosted by: Jessica Temple

Music by Antarcticbreeze Music

Disclaimer: Our show is not designed to provide listeners with specific or personal legal, medical, or professional services or advice. Listeners should always consult their health care provider for medical advice, medication, or treatment.

Copyright 2021 Jessica Temple

  continue reading

49 에피소드

Tutti gli episodi

×
 
Loading …

플레이어 FM에 오신것을 환영합니다!

플레이어 FM은 웹에서 고품질 팟캐스트를 검색하여 지금 바로 즐길 수 있도록 합니다. 최고의 팟캐스트 앱이며 Android, iPhone 및 웹에서도 작동합니다. 장치 간 구독 동기화를 위해 가입하세요.

 

빠른 참조 가이드