Let's Talk Ehlers Danlos Syndrome

The Spoonie Struggle

Jessica Temple에서 제공하는 콘텐츠입니다. 에피소드, 그래픽, 팟캐스트 설명을 포함한 모든 팟캐스트 콘텐츠는 Jessica Temple 또는 해당 팟캐스트 플랫폼 파트너가 직접 업로드하고 제공합니다. 누군가가 귀하의 허락 없이 귀하의 저작물을 사용하고 있다고 생각되는 경우 여기에 설명된 절차를 따르실 수 있습니다 https://ko.player.fm/legal.

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Episode 4: Let's Talk Ehlers Danlos Syndrome

In this episode, we discuss all things Ehlers Danlos Syndrome. EDS is a group of usually inherited connective tissue disorders characterized by joint hypermobility, skin hyperextensibility, and tissue fragility. Symptoms vary, but can include widespread joint and muscle pain, walking difficulty, dislocations and subluxations, poor wound healing, problems with the GI system, heart, dysautonomia, headaches, mouth symptoms, sleep, and much much much more. Diagnosis is tough but is sometimes made via genetic testing or clinical symptoms. Treatment varies depending on the symptoms and the clinical manifestations.

Links:

EDS Helpline EDS Videos Community Resources Loose Connections Magazine Facebook Group EDS Virtual Support EDS Diagnostic Checklist

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Hosted by: Jessica Temple

Music by Antarcticbreeze Music

Disclaimer: Our show is not designed to provide listeners with specific or personal legal, medical, or professional services or advice. Listeners should always consult their health care provider for medical advice, medication, or treatment.

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