Loss 31/101: Loss through parenting a child with Angelman Syndrome: Vlad Korotkov & Irina Karaseva

The Silent Why: finding hope in grief and loss

#045. Vlad Korotkov & Irina Karaseva, had the typical dreams of parenting when they got pregnant with their first child in 2019, but sadly this was not going to be their experience.

On The Silent Why podcast we're on a mission to open up conversations around loss and grief, to see if hope can be found in 101 different types of loss. Can it be found in the parenting of a child with disabilities?

Early on in their parenting journey Vlad & Irina, a Russian married couple from London, had suspicions that everything was not as it should be, and when their daughter, Emily, was 1 year old, she was diagnosed with Angelman Syndrome.

Loss #31 of 101 - Loss through parenting a child with Angelman Syndrome

Angelman Syndrome is a genetic condition that affects the nervous system and causes severe physical and learning disabilities.

This episode is the first time we’ve interviewed both sides of a couple and had four people chatting together. When Irina asked if her husband could join us on this chat we replied with an enthusiastic ‘yes!’, because just like she’s experienced, we’ve found it’s often the women that are found to be speaking out on some of the tougher issues around loss and grief.

In this honest chat, Vlad and Irina share what it was like to find out their daughter wouldn’t be the healthy child they were expecting and what losses and griefs are involved in raising a child that may not see the typically expected milestones. They also share about the unique traits associated with the condition, including extreme affection and fascination with water.

For more about Vlad & Irina you can follow them on Instagram: https://www.instagram.com/ira_karaseva/

To support their Just Giving fundraising to cure Angelman Syndrome donate here: https://www.justgiving.com/page/goemily

For more information on Angelman Syndrome and F.A.S.T UK visit:
https://cureangelman.org.uk/
Send us a text

Support the show

-----
thesilentwhy.com | Instagram | Facebook | Twitter | LinkedIn
What's a Herman? / Buy a Herman - thehermancompany.com
Support the show: buymeacoffee.com/thesilentwhy
Sign-up to my mailing list (only used for sharing news occasionally!): thesilentwhy.com/newsletter
How to talk to the grieving: thesilentwhy.com/post/howtotalktothegrieving
Review the show: Apple Podcasts | Spotify | Goodpods
Episode transcripts: thesilentwhy.buzzsprout.com
Thank you for listening.