What The Stuttering Community Can Learn From Rare Disease Advocacy [Part 2]

Proud Stutter

Maya Chupkov에서 제공하는 콘텐츠입니다. 에피소드, 그래픽, 팟캐스트 설명을 포함한 모든 팟캐스트 콘텐츠는 Maya Chupkov 또는 해당 팟캐스트 플랫폼 파트너가 직접 업로드하고 제공합니다. 누군가가 귀하의 허락 없이 귀하의 저작물을 사용하고 있다고 생각되는 경우 여기에 설명된 절차를 따르실 수 있습니다 https://ko.player.fm/legal.

5M ago 37:04

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This episode is Part 2 of our series “What We Can Learn from the Rare Disease Community.” Last week, we heard from Bobby Glen about navigating the healthcare system as a parent of a child with HNRNPH2. Today, his wife Nicole—who is also a pediatrician—joins us to share how raising a child with a rare disease has shaped the way she practices medicine, approaches patient advocacy, and supports families navigating speech and communication challenges.

Event Alerts:

Docs on Stuttering – May 8 (Use "PROUD25" at checkout for a free ticket)

Docs on Disability – May 15, featuring Marlee Matlin’s Sundance-premiered documentary

Philly Proud Stutter Gathering – May 19

Save The Date: Proud Stutter Annual Gala in San Francisco – October 9 (listeners get 50% off tickets!)

And yes, Survivor fans—our recap will be back to cover the season finale, which airs on May 21, 2025! Go Mitch!

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