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Disability Advocates / Innovative Women - Heather & Jessica Tomko
Manage episode 357680432 series 2939625
Vince Cortese에서 제공하는 콘텐츠입니다. 에피소드, 그래픽, 팟캐스트 설명을 포함한 모든 팟캐스트 콘텐츠는 Vince Cortese 또는 해당 팟캐스트 플랫폼 파트너가 직접 업로드하고 제공합니다. 누군가가 귀하의 허락 없이 귀하의 저작물을 사용하고 있다고 생각되는 경우 여기에 설명된 절차를 따르실 수 있습니다 https://ko.player.fm/legal.
Heather and Jessica Tomko are sisters who both have a genetic, neuromuscular disease called Spinal Muscular Atrophy (SMA). SMA affects the motor neurons, which causes people with SMA to have weak muscles that atrophy over time. Heather and Jessica were both diagnosed as infants, and a life with SMA is all they have ever known. They strive to bring their full selves, disability and all, to a world that is often inaccessible and not accepting of disabilities.
Watch full episode on YouTube
Resources Mentioned:
- Heather's blog: https://theheatherreport.com
- Heather's Instagram: https://www.instagram.com/theheatherreport
- Heather's work: https://www.caregiving.pitt.edu
- Jessica's Instagram: https://www.instagram.com/jessicatomko
- Article that Jessica wrote: https://triblive.com/opinion/jessica-tomko-disability-representation-in-the-entertainment-industry
- Film Pittsburgh Reel Abilities Festival: https://filmpittsburgh.org/pages/reelabilities
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챕터
1. Preview (00:00:00)
2. Early Life (00:01:09)
3. Spinal Muscular Atrophy (SMA) Diagnosis (00:02:01)
4. Relationship as Sisters and with Parents (00:05:39)
5. Colleges & Careers (00:12:30)
6. Heather's Work (00:19:18)
7. Jessica's Work (00:22:12)
8. Billboard Message (00:23:52)
9. How will you two leave your marks? (00:26:30)
109 에피소드
공유
