
Dr. Linda Bluestein에서 제공하는 콘텐츠입니다. 에피소드, 그래픽, 팟캐스트 설명을 포함한 모든 팟캐스트 콘텐츠는 Dr. Linda Bluestein 또는 해당 팟캐스트 플랫폼 파트너가 직접 업로드하고 제공합니다. 누군가가 귀하의 허락 없이 귀하의 저작물을 사용하고 있다고 생각되는 경우 여기에 설명된 절차를 따르실 수 있습니다 https://ko.player.fm/legal.
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Bendy Bodies with Dr. Linda Bluestein
모두 재생(하지 않음)으로 표시
Manage series 3499428
Dr. Linda Bluestein에서 제공하는 콘텐츠입니다. 에피소드, 그래픽, 팟캐스트 설명을 포함한 모든 팟캐스트 콘텐츠는 Dr. Linda Bluestein 또는 해당 팟캐스트 플랫폼 파트너가 직접 업로드하고 제공합니다. 누군가가 귀하의 허락 없이 귀하의 저작물을 사용하고 있다고 생각되는 경우 여기에 설명된 절차를 따르실 수 있습니다 https://ko.player.fm/legal.
Whether you’re bendy with all the benefits or hurting in all the wrong places, you’ve come to the right place for all things hypermobility. Connective tissue disorders like Ehlers-Danlos Syndromes (EDS) are often dismissed or overlooked by healthcare providers as a cause of chronic pain. But if you or someone you care about struggles with the life-altering symptoms of hypermobility, you should know YOU ARE NOT ALONE! At the Bendy Bodies Podcast, we understand. Each week, join Dr. Linda Bluestein (The Hypermobility MD) as she pulls back the curtain on how to prevent injury and unnecessary suffering in “double-jointed” individuals seeking a more comfortable life in their unique, complex “bendy bodies.” When you tune in, you’re engaging in more than a podcast. Both on-air and online, you’re joining a supportive community where patients, caregivers, and healthcare professionals trade insights, life hacks, and inspiring stories to embrace our Bendy Bodies journey together!
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146 에피소드
모두 재생(하지 않음)으로 표시
Manage series 3499428
Dr. Linda Bluestein에서 제공하는 콘텐츠입니다. 에피소드, 그래픽, 팟캐스트 설명을 포함한 모든 팟캐스트 콘텐츠는 Dr. Linda Bluestein 또는 해당 팟캐스트 플랫폼 파트너가 직접 업로드하고 제공합니다. 누군가가 귀하의 허락 없이 귀하의 저작물을 사용하고 있다고 생각되는 경우 여기에 설명된 절차를 따르실 수 있습니다 https://ko.player.fm/legal.
Whether you’re bendy with all the benefits or hurting in all the wrong places, you’ve come to the right place for all things hypermobility. Connective tissue disorders like Ehlers-Danlos Syndromes (EDS) are often dismissed or overlooked by healthcare providers as a cause of chronic pain. But if you or someone you care about struggles with the life-altering symptoms of hypermobility, you should know YOU ARE NOT ALONE! At the Bendy Bodies Podcast, we understand. Each week, join Dr. Linda Bluestein (The Hypermobility MD) as she pulls back the curtain on how to prevent injury and unnecessary suffering in “double-jointed” individuals seeking a more comfortable life in their unique, complex “bendy bodies.” When you tune in, you’re engaging in more than a podcast. Both on-air and online, you’re joining a supportive community where patients, caregivers, and healthcare professionals trade insights, life hacks, and inspiring stories to embrace our Bendy Bodies journey together!
…
continue reading
146 에피소드
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1 Unraveling Fatigue: Exploring ME/CFS, and Long COVID (Ep 144) 1:11:07
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What if your body’s collapse wasn’t burnout… but a system crash no test can catch? In this episode, Dr. Linda Bluestein welcomes Isabelle Ramirez Burnett, systems engineer, health coach, and founder of Renegade Research, to reveal the silent breakdowns behind ME/CFS, long COVID, and hypermobility-related illness. Diagnosed with ME/CFS at just 7 years old, Isabelle pulls back the curtain on decades of missed diagnoses, medical dismissal, and her discovery of a community willing to do what the healthcare system couldn’t—build their own science. You’ll hear about the remission that stunned researchers, the controversial meds that gave her life back, and the protocols patients are building from the ground up. If you’ve ever wondered why your body feels like it’s working against you—or what recovery might actually look like—this episode may change everything. Takeaways: She couldn’t stand in front of the fridge—until a “taboo” medication changed everything. The labs were normal. Her body was screaming. A grandmother, a diagnosis, and an unstoppable fight for answers. What if your symptoms don't show up on any scan… but still hold the truth? The protocol that sparked a remission—and a global movement. Find the episode transcript here . Reference Links: RemissionBiome w/Dr. Yellman https://pmc.ncbi.nlm.nih.gov/articles/PMC7831961/ Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Learn about Isabel Ramirez-Burnett : Twitter: https://x.com/isabelramirezrd?lang=en Renegade Research Twitter: https://x.com/renegaderes Youtube: https://www.youtube.com/remissionbiome LinkedIn: https://www.linkedin.com/isabelramirezrd BlueSky: https://isabelramirezrd.bsky.social Amazon: https://amzn.to/3EB7PcC Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network…

1 Dental Problems in EDS with Dr. Audrey Kershaw (Ep 143) 1:12:42
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What if your dental history held the key to a complex diagnosis no one’s caught? In this gripping episode of the Bendy Bodies Podcast , Dr. Linda Bluestein welcomes Dr. Audrey Kershaw , a trailblazing oral surgeon who’s uncovered hundreds of hidden Ehlers-Danlos Syndrome (EDS) cases—starting in the dental chair . From patients who “can’t numb up,” to decades-long battles with halitosis, gum fragility, and jaw instability, Dr. Kershaw shares the subtle (and sometimes shocking) signs that suggest something far deeper is at play. Together, they explore what happens when TMD, failed anesthesia, slow healing, and even bad breath point to connective tissue disorders that most dentists never learn about. If your mouth has always felt... different—this episode might explain why. Find the episode transcript here . Takeaways: Some patients can’t numb up… and the reason may change how you see your entire body. Your wisdom tooth extraction might’ve revealed more than just a dental issue. That persistent jaw pain? It may be pointing to something systemic. A 40-year case of bad breath led to an unexpected diagnosis—here’s what happened. You might be able to spot a connective tissue disorder… before a dentist even says a word. Reference Links: GIRFT RCS TMD full document. https://www.rcseng.ac.uk/-/media/FDS/Comprehensive-guideline-Management-of-painful-Temporomandibular-disorder-in-adults-March-2024.pdf GITFT RCS TMD patient summary document. https://www.rcseng.ac.uk/-/media/FDS/TMD-Patient-support-document-March-2024.pdf GIRFT RCS TMD Clinician summary document https://www.rcseng.ac.uk/-/media/FDS/TMD-Clinician-summary-document-March-2024.pdf Scottish Dental Magazine article EDS Article Scottish_Dental_magazine_October_2023 p38-39[77].pdf BISOM link to mouth ulcers https://bisom.org.uk/wp-content/uploads/2020/02/RAS-PIL-October-2019.pdf LA paper 2019 https://pmc.ncbi.nlm.nih.gov/articles/PMC6834718/ Link to pt EDS email EDS PATIENT EMAIL April 2025.docx Link to "Perioperative Management of Patients with Ehlers-Danlos Syndromes" by Drs. Chopra and Bluestein https://www.scirp.org/journal/paperinformation?paperid=97524 Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/ . Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/ . YOUR bendy body is our highest priority! Learn about Dr. Audrey Kershaw: Website: https://www.oralsurgery.scot/ Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network…

1 Is Your EDS Party Trick Causing Long-Term Damage? | Office Hours (EP 142) 43:50
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What if the very things you do to feel or look better are quietly making you worse? In this solo episode of the Bendy Bodies Podcast, Dr. Linda Bluestein answers listener questions—but what begins as a practical Q&A quickly dives into rarely discussed truths about cosmetic procedures, EMFs, neuroinflammation, and even fragrances as dangerous triggers. You’ll hear surprising stories from patients who’ve suffered unexpected complications—and discover how seemingly harmless habits, like party tricks or perfume, could be tipping the scale toward long-term damage. Plus, Dr. Bluestein unpacks the case for renaming MCAS, the underrecognized connection between transness and hypermobility, and why your surgeon might not be as EDS-aware as they claim. If you think you’ve already heard it all about EDS, MCAS, and chronic illness—you haven’t heard this. Takeaways: A harmless beauty treatment… until it’s not. Learn what no one tells you about EDS and cosmetic procedures. What if your MRI looks “normal”—but your spine is screaming otherwise? Think party tricks are just for fun? Your joints might not agree. One invisible environmental trigger may be silently wrecking your nervous system. Even your surgeon might not know this one crucial detail—unless you ask the right question. Find the transcript for this episode here . Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/ . Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/ . Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network…

1 Top Therapists Share Tips for Surviving EDS (Ep 141) 1:15:09
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What happens when illness hijacks your love story? In this raw and revealing episode, Dr. Linda Bluestein sits down with therapists and real-life couple Melissa Dickinson and Tom Query , who know firsthand how Ehlers-Danlos syndrome can test—and transform—a relationship. From secret diagnoses to unexpected intimacy challenges , they open up about their personal journey navigating chronic illness, caregiving, trauma, and neurodivergence while maintaining connection, humor, and purpose. But it doesn’t stop there. You’ll hear about the surgery that changed everything, a community built from the ground up, and what it means to reclaim agency in a body that feels like it’s working against you. Whether you're chronically ill, caregiving, or just curious—this episode will stay with you. Takeaways: What if the love of your life was diagnosed after your wedding… would you stay? This surgery gave her legs—and her life—back. They gave their illness a name… and it changed how they fought it. The hardest part of caregiving isn’t what you think. Sometimes, even therapists need help decoding each other. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/ . Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Find the episode transcript here . Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/ . YOUR bendy body is our highest priority! Learn about Melissa Dickinson & Tom Query: Melissa: Facebook: https://www.facebook.com/melissadickinsonEDSofGA/ LinkedIn: https://www.linkedin.com/in/melissadickinsonlpc/ Website: www.MelissaDickinson.com Tom: Facebook: https://www.facebook.com/wellspringcounselingintown Website: https://www.tomquery.com Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network…

1 Why Are You So Exhausted? with Dr. Brayden P. Yellman (Ep 140) 1:05:08
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What if the fatigue you feel isn’t just “tiredness”—but the result of an entirely different physiological state? In this riveting episode, Dr. Linda Bluestein sits down with Dr. Brayden P. Yellman of the Bateman Horne Center to explore ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) —a misunderstood condition that masquerades as general exhaustion but goes much deeper. Together, they unravel the hidden markers of post-exertional malaise , explain how upright posture can quietly sabotage your day, and discuss the mysterious collapse of energy systems that no blood test can catch . With no known biomarker , diagnosis is a clinical puzzle—and one too often dismissed. Dr. Yellman also explores emerging theories around brainstem tension, tethered cord syndrome, mast cell activation, and how some surgeries may reset the body in unexpected ways . If you've been chasing answers for fatigue, brain fog, or unexplained crashes, this episode may finally connect the dots you didn’t know existed. Note: You may notice a few choppy moments in this video due to our guest’s frame rate, but the conversation is so valuable, we knew we had to share it with you. Thanks for your understanding! Takeaways: Fatigue might not be what you think—and your body may be operating in a totally different mode. Your upright posture could be silently draining your energy every hour of the day. A “normal” MRI doesn’t mean your nervous system is functioning normally. Could your symptoms be the result of your brainstem being pulled—literally? The most revealing test? It might be one you do at home... and it doesn’t involve a lab. YouTube video mentioned in the episode: https://www.youtube.com/watch?v=00f6Yx9ab3I Find the episode transcript here . Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/ . Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/ . YOUR bendy body is our highest priority! Learn about Dr. Brayden P. Yellman Twitter: https://x.com/BatemanHorne Instagram: https://www.instagram.com/bateman_horne_center/ Facebook: https://www.facebook.com/batemanhornecenter LinkedIn: https://www.linkedin.com/company/the-bateman-horne-center-of-excellence/ BlueSky: https://bsky.app/profile/batemanhornecenter.bsky.social Website: https://batemanhornecenter.org/ Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network…

1 Hidden Histamine Threats with Dr. Theoharis Theoharides (Ep 139) 1:16:30
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What if the symptoms you've been chasing—brain fog, fatigue, bladder pain, even anxiety—were all connected by one overlooked cell type? In this fascinating episode of the Bendy Bodies Podcast, Dr. Linda Bluestein is joined by Dr. Theoharis Theoharides, one of the world’s leading experts on mast cells, to unravel the hidden roles they play in some of the most complex chronic illnesses. From histamine sensitivity that mimics allergies, to lab tests that miss what’s really going on, Dr. Theoharides sheds light on why so many patients are dismissed—and what doctors are missing. The conversation takes unexpected turns into brain inflammation, food triggers, and even autism, where mast cells may hold untapped insight into neurodevelopment and behavior. If you've ever felt like your symptoms don’t make sense—or that the medical system keeps overlooking something obvious—this episode might just connect the dots. Takeaways: You might be surprised to learn which test isn’t as useful for diagnosing MCAS as people think. The brain fog you're feeling? There's a cellular player involved—and it's not just inflammation. Some reactions you're calling “allergies” might be something very different (and trickier to detect). The way mast cells interact with the brain could change how we think about neurodevelopment. A few supplements could help—but only if you're asking the right questions first. Chapters: 00:00 Introduction to Mast Cells and Guest Introduction 02:57 Understanding Mast Cell Activation Syndrome (MCAS) 10:35 Diagnostic Challenges and Lab Tests for MCAS 32:12 Mast Cells in the Brain and Neuroinflammation 44:00 Understanding Mast Cell Activation and Stress 46:06 The Role of Diet and Supplements in Managing Mast Cell Activation 55:42 Gut Health and Mast Cell Activation 01:01:51 Practical Tips and Future Directions Find the transcript for this episode here . Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Learn about Dr. Theoharis Theoharides Website: https://www.drtheoharides.com/ Podcast Link: https://algonot.com/ Blogs: https://www.nova.edu/nim/neuroinflammation-research/index.html LinkedIn: https://www.linkedin.com/in/theoharis-theoharides-ms-phd-md-faaaai-67123735 Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network…
In this solo Q&A episode, Dr. Linda Bluestein answers your biggest hypermobility questions, tackling topics like whether getting an official EDS (Ehlers-Danlos Syndromes) diagnosis is worth it, which pain medications actually help, how to improve posture, and the growing stigma around EDS. She also discusses visceroptosis (organ prolapse), posture braces, and the legalities of medical centers refusing EDS patients. Dr. Bluestein shares practical hypermobility hacks and gives insight into the challenges patients face when seeking care. If you’ve ever wondered how to advocate for yourself, manage pain, or improve daily function, this episode is packed with expert advice and actionable tips. Takeaways: Should You Get an EDS Diagnosis? – Listen as Dr. Bluestein describes how an official diagnosis can provide validation and access to specialists , yet may also lead to insurance and medical stigma issues . Pain Medications for EDS Are Off-Label – Dr. Bluestein explains which medications she has found most helpful for managing symptoms. How Can Posture Be Improved – Dr. Bluestein shares which posture-support garments she prefers and how to use them in a way to avoid muscle weakening. EDS Stigma is Getting Worse – Misinformation causes some doctors to dismiss EDS patients as exaggerating or attention-seeking. Learn how to advocate and educate your providers. Some Medical Centers Refuse EDS Patients – While emergency rooms must treat everyone , clinics and specialists can decline to see EDS patients , making self-advocacy and persistence essential. Listen in to hear how you can avoid having this happen to you. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/ . Find the episode transcript here . Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/ . YOUR bendy body is our highest priority! Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network…

1 Signs of Tethered Cord You Shouldn’t Ignore with Dr. Petra Klinge (Ep 137) 1:16:50
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In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein welcomes Dr. Petra Klinge, a renowned neurosurgeon specializing in tethered cord syndrome (TCS), Chiari malformation, and cerebrospinal fluid (CSF) disorders. They dive deep into occult tethered cord syndrome, a condition where MRI scans appear normal, yet patients still experience neurological symptoms, chronic pain, and bladder/bowel dysfunction. Dr. Klinge explains how tethered cord affects EDS patients, the role of connective tissue disorders, and what makes someone a good candidate for surgery. Whether you’ve been struggling with undiagnosed spinal issues or are considering tethered cord release surgery, this episode is packed with valuable insights and cutting-edge research. Takeaways: Tethered Cord Can Be “Occult” (Hidden on MRI) – Many patients with classic tethered cord symptoms are dismissed because their MRI appears “normal.” A clinical diagnosis is key. EDS Patients Are at Higher Risk – Changes in collagen and the extracellular matrix make individuals with Ehlers-Danlos Syndrome more prone to tethered cord syndrome, which can be congenital or acquired. Tethered Cord Syndrome Affects the Entire Spine – While traditionally thought to impact only the lower body, new research suggests TCS can cause upper body pain, weakness, and neurological dysfunction. Surgery Isn’t Always the First Step – Physical therapy, craniosacral therapy, and manual techniques may help some patients, but progressive neurological decline may require surgical release. Retethering is Possible After Surgery – Around 7% of patients may need a second surgery due to scar tissue reattaching the spinal cord, but new surgical techniques are improving long-term outcomes. Articles referenced in the episode: https://pubmed.ncbi.nlm.nih.gov/38489815/ https://pubmed.ncbi.nlm.nih.gov/38202013/ https://pubmed.ncbi.nlm.nih.gov/35307588/ Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Find the episode transcript here . Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Petra Klinge Website: https://www.brownhealth.org/providers/petra-m-klinge-md-phd Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network…

1 Hidden Triggers of Complex Illness with Dr. David Kaufman (Ep 136) 1:15:02
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In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein sits down with Dr. David Kaufman, a specialist in complex illnesses, to discuss how infections, immune dysfunction, and connective tissue disorders intersect. They explore why many chronic illnesses are often overlooked or misdiagnosed. This includes conditions like ME/CFS (myalgic encephalomyeltiis/chronic fatigue syndrome), Long COVID, Ehlers-Danlos Syndrome (EDS), Mast Cell Activation Syndrome (MCAS), and dysautonomia, Dr. Kaufman shares insights on the role of Epstein-Barr Virus (EBV), Lyme Disease, small intestinal bacterial overgrowth (SIBO), and other infections in triggering chronic conditions. They also dive into peptides, plasmapheresis, exosomes, and mitochondrial health as potential treatment avenues. If you've struggled to get answers about complex illness, this episode is packed with groundbreaking insights and expert advice. Takeaways: Complex Illness Requires a Multi-System Approach – Chronic conditions like ME/CFS, EDS, MCAS, and dysautonomia are interconnected , requiring a holistic approach rather than isolated treatments. Infections Can Trigger or Worsen Chronic Illness – Epstein-Barr virus, Lyme disease, and other chronic infections often reactivate in immune-compromised individuals, leading to long-term symptoms. Peptides and Exosomes Show Promise – Treatments like thymosin alpha-1, BPC-157, and exosomes may help modulate immune function and promote healing. Pelvic Congestion & Blood Flow Issues Matter – Unrecognized vascular issues, like May-Thurner syndrome and pelvic congestion syndrome, can contribute to POTS and hemodynamic instability. Mitochondrial Health is Key to Recovery – Addressing mitochondrial dysfunction through targeted therapies can help reduce fatigue and improve overall health in complex illness patients. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/ . Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Find this episode's transcript here . Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/ . Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. David Kaufman Blue Sky: @kaufmanmd.bsky.social Website: https://www.centerforcomplexdiseases.com/ Podcast Link: https://www.youtube.com/channel/UCkJiyBgDrgE5xWi3_tFsXHg Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network…
In this solo episode of the Bendy Bodies Podcast , Dr. Linda Bluestein dives deep into the complex world of hormones, menopause, and connective tissue disorders . She explores how estrogen, progesterone, and testosterone impact joint health , the benefits and risks of hormone replacement therapy (HRT), and why menopause can worsen EDS symptoms . Dr. Bluestein also breaks down gender-affirming hormone therapy , the role of mast cells in hormonal responses , and why some testosterone clinics may not have your best interests at heart . Whether you're considering HRT, navigating menopause with hypermobility, or wondering how hormones influence mast cells, this episode is packed with practical advice and science-backed insights . Takeaways: Hormones Affect Connective Tissue & Joint Stability – Estrogen, testosterone, and progesterone all influence collagen production, ligament strength, and tissue elasticity , which is why hormonal changes impact pain and mobility. Menopause Can Worsen EDS Symptoms – The decline in estrogen post-menopause contributes to joint pain, fatigue, and increased injury risk , making HRT a potential tool for symptom management. Testosterone Therapy Has Benefits & Risks – While testosterone can improve muscle mass, bone density, and fatigue , it must be monitored carefully to avoid cardiovascular risks, clotting issues, and hormone imbalances . Be Cautious with Hormone Clinics – Some online or walk-in testosterone clinics prioritize sales over patient health , so always ensure proper lab testing and medical oversight before starting HRT . Mast Cells Respond to Hormonal Changes – Hormones like estrogen and progesterone can trigger mast cell activation , impacting inflammation, pain, and allergic responses—especially in conditions like MCAS and POTS . Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/ . Find the transcript for this episode here . Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/ . Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network…

1 Why Sjogren’s is Often Misdiagnosed with Dr. Kara Wada (Ep 134) 1:17:12
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In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein welcomes Dr. Kara Wada, an allergy and immunology expert, to explore Sjogren’s disease and its connection to hypermobility, dysautonomia, and Mast Cell Activation Syndrome (MCAS). They discuss why Sjogren’s is one of the most underdiagnosed autoimmune conditions, its symptoms beyond dryness, and how it intertwines with POTS (postural orthostatic tachycardia syndrome) and EDS (Ehlers-Danlos Syndromes). Dr. Wada also dives into Sjogren’s diagnostic challenges, emerging treatments, nutrition strategies, and the role of inflammation in fatigue and pain. Whether you’re navigating autoimmune symptoms or looking for practical tools to manage them, this episode is filled with expert insights and actionable advice. Find this episode's transcript here: https://www.bendybodiespodcast.com/sjogrens-misdiagnosis-dr-kara-wada/ Takeaways: Sjogren’s is Massively Underdiagnosed – Up to 75% of people with Sjogren’s remain undiagnosed , in part because its symptoms extend far beyond dryness and don’t always present in a textbook way. Autoimmune Conditions & EDS Are Connected – Sjogren’s, POTS, and MCAS frequently overlap due to their shared impact on the immune and nervous systems, making diagnosis and treatment complex. Dryness is Just the Beginning – Sjogren’s can cause neuropathy, fatigue, dysautonomia, gastrointestinal issues, and even a higher risk of lymphoma , making it more than just an inconvenience. Current Treatments Are Limited but Improving – There are no FDA-approved medications specifically for Sjogren’s , but promising treatments are currently in phase 3 trials, offering hope for better management Nutrition & Lifestyle Matter – Avoiding ultra-processed foods, prioritizing hydration, and incorporating anti-inflammatory nutrients can help manage symptoms and support immune function. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/ . Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Past Episodes: https://www.bendybodiespodcast.com/linking-mast-cell-activation-autoimmunity-and-eds/ https://www.drkarawada.com/podcasts/becoming-immune-confident/episodes/2148563154 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/ . Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Karen Wada Twitter: @CrunchyAllergy Instagram: @immuneconfidentmd TikTok: @immuneconfidentmd FB: @KaraWadaMD YT: @drkarawada Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network…

1 How Internists Think About Complex Illness with Dr. Matthew Watto (Ep 133) 1:12:57
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In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein speaks with Dr. Matthew Watto, an internist and co-host of The Curbsiders podcast, about how patients can work effectively with their internist to get the best care. They discuss how internists think, why appointment times are limited, and strategies for getting the most out of every visit. Dr. Watto shares behind-the-scenes insights on primary care challenges, chronic pain management, and the medical system's limitations, while also offering practical tips for improving doctor-patient communication. If you've ever felt frustrated navigating the healthcare system, this episode provides game-changing strategies to help you get the care you need. Takeaways: Internists Have Limited Training in EDS & Hypermobility – Many internists receive little to no education on hypermobility-related conditions, making patient education and advocacy essential. Appointment Time is Short—Be Prepared – Most internists have at the very most 15-20 minutes for follow-ups and 30-40 minutes for new patients, so bringing a prioritized list of concerns helps maximize the visit. Ask for a Collaborative Approach – Internists are generalists, meaning they oversee a wide range of conditions. Patients with complex conditions should request coordination between specialists for better care. Concierge & Academic Medicine May Offer More Time – Patients who need longer appointments or more personalized care may benefit from concierge medicine, academic medical centers, or direct primary care models. Doctors Want to Help, But the System is Broken – Many doctors feel frustrated by short appointment times, insurance barriers, and administrative burdens. Patient-doctor teamwork is key to navigating these challenges. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Find the transcript for this episode here . Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Matthew Watto YT: @TheCurbsiders IG: @thecurbsiders Twitter: @/thecurbsiders & @doctorwatto Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network…

1 Reversing Brain Fog & Inflammation with Dr. Ilene Ruhoy (Ep 132) 1:24:35
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In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein welcomes Dr. Ilene Ruhoy, a board-certified neurologist and environmental toxicologist, for an in-depth discussion on brain fog, cognitive dysfunction, and chronic fatigue in conditions like Ehlers-Danlos Syndrome (EDS), Mast Cell Activation Syndrome (MCAS), and dysautonomia. Dr. Ruhoy shares insights on the immune system’s role in neurological symptoms, the impact of mast cell activation, and the role of treatments like peptides, IVIG (intravenous gammaglobulin), plasmapheresis, and immune modulators. They also discuss the hidden effects of histamine on the brain, how sensory sensitivity contributes to fatigue, and the role of regenerative medicine in connective tissue healing. This episode is packed with cutting-edge research and practical solutions for improving cognitive function and energy levels. Takeaways: Brain Fog & Fatigue Are Linked to Immune Dysfunction: Cognitive dysfunction in conditions like EDS, MCAS, and POTS is often tied to inflammatory responses and immune dysregulation rather than just histamine alone. Plasmapheresis & IVIG Can Help Some Patients: For severe cases, plasmapheresis removes inflammatory mediators from the blood, and IVIG helps regulate immune function, leading to cognitive and fatigue improvements. Histamine Plays a Complex Role in Brain Function: While histamine can trigger symptoms in MCAS patients, it also has neuroprotective effects, making antihistamine overuse a potential issue for some. Sensory Sensitivity Increases Cognitive Load: Many people with EDS and related conditions experience hypersensitivity to light, noise, and smells, which can overwhelm the nervous system and worsen fatigue. Regenerative Medicine May Support Connective Tissue Repair: Peptides, stem cell therapy, and targeted immune modulation are promising areas of research to help strengthen connective tissue and reduce systemic inflammation. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Ilene Ruhoy Instagram: @IleneRuhoyMDPhD TikTok: @IleneRuhoyMDPhD Podcast (YT): @Unraveledpod Twitter: @RuhoyMD Bluesky: @ruhoy.bsky.social Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network…

1 Testosterone is Essential for Women with Dr. Kelly Casperson (Ep 131) 55:09
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In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein chats with Dr. Kelly Casperson, a urologist and sexual health expert, about hormones, libido, and sexual wellness—especially for those with hypermobility, Ehlers-Danlos Syndrome (EDS), and related conditions. They dive into testosterone in women, hormone myths, bladder health, vaginal estrogen, and why pelvic floor therapy is a must. Dr. Casperson debunks common hormone fears, explains the role of mast cells and bladder issues, and shares insights on navigating intimacy with chronic illness. This episode is packed with must-know information on aging, sexual health, and proactive care for those with complex medical conditions. Takeaways: Testosterone is Essential for Women: Women naturally produce more testosterone than estrogen, but it's often overlooked in hormone therapy. Vaginal Estrogen is a Game-Changer: It can reduce UTIs by 50%, improve bladder health, and prevent vaginal atrophy—yet many doctors don’t discuss it. Pelvic Floor Therapy is a Must: A weak or overly tight pelvic floor can lead to pain, incontinence, and sexual dysfunction—physical therapy can help. Hormone Myths Need Busting: Misinformation from past studies has caused unnecessary fear of hormone replacement therapy (HRT)—many of those concerns are outdated. Bladder Pain is Often Misdiagnosed: Many people diagnosed with interstitial cystitis may actually have pelvic floor dysfunction, hormone imbalances, or mast cell issues. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. My favorite books: https://bit.ly/3WHFQhq Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Follow along with the episode transcript here . Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Kelly Casperson Instagram: @kellycaspersonmd Facebook: @youarentbroken YouTube: @kellycaspersonmd Book: You Are Not Broken https://www.amazon.com/shop/hypermobilitymd/list/2LQLPARJY3CDS?ref_=aipsflist Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network…

1 Hidden Causes of Painful Sex with Dr. Irwin Goldstein & Sue Goldstein (Ep 130) 1:24:20
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In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein speaks with sexual health experts Dr. Irwin Goldstein & Sue Goldstein. This amazing husband and wife team share insights on common issues such as vestibulodynia, libido challenges, and treatment options ranging from physical therapy to hormone therapy. They explore the often-overlooked intersection of joint hypermobility conditions like Ehlers-Danlos Syndrome (EDS), Mast Cell Activation Syndrome (MCAS), and Postural Orthostatic Tachycardia Syndrome (POTS) with sexual dysfunction. They discuss how connective tissue disorders impact sexual health, the role of the sacral nerve in arousal and pain, and how patients can advocate for better care. Whether you're struggling with pain during intimacy or looking for solutions, this episode offers practical advice and hope. Takeaways: Connective Tissue Impacts Sexual Health: Conditions like EDS can affect the sacral nerve, leading to pain, discomfort, and sexual dysfunction that many doctors overlook. Mast Cell Dysfunction Can Trigger Pain: MCAS can cause issues such as vestibulodynia, leading to painful penetration and impacting quality of life beyond intimacy. Pelvic Floor Therapy is Essential: Specialized pelvic floor physical therapy can significantly improve sexual function and reduce pain for individuals with hypermobility disorders. Hormone Therapy May Help: Addressing hormonal imbalances, particularly testosterone and estrogen levels, can improve symptoms of vaginal dryness and pain. Communication is Key: Open conversations with partners and healthcare providers about sexual health concerns are crucial for finding the right treatments and maintaining intimacy. PS. The vestibule refers to the vulva (female external genitalia) between the labia minora (two inner skin folds that surround the vaginal opening). PSS. Neuroproliferative vestibulodynia is where there are too many nerve endings in the vestibule tissue. Check out Ep 116 with Dr Feigenbaum to learn more about Tarlov Cysts, which were discussed in this episode: https://youtu.be/Uq4OrVa6deM Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/ . Find Bendy Bodies episode transcripts here . Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/ . Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Irwin Goldstein & Sue Goldstein Facebook: @SDSexMed Youtube: @sdsexualmed Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network…
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