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Claire B - Navigating Paediatric ICU with a newborn with a congenital heart defect
Manage episode 375782821 series 3481290
PAEDS Education Grace & Sarah and PAEDS Education Grace에서 제공하는 콘텐츠입니다. 에피소드, 그래픽, 팟캐스트 설명을 포함한 모든 팟캐스트 콘텐츠는 PAEDS Education Grace & Sarah and PAEDS Education Grace 또는 해당 팟캐스트 플랫폼 파트너가 직접 업로드하고 제공합니다. 누군가가 귀하의 허락 없이 귀하의 저작물을 사용하고 있다고 생각되는 경우 여기에 설명된 절차를 따르실 수 있습니다 https://ko.player.fm/legal.
When Claire was pregnant with her second child, antenatal scans revealed that he had a congenital heart disease and a high chance of a Trisomy 21. Whilst she and her family were coming to terms with this information she went into labour at 37 weeks and little Max was rushed across to PICU for his first open heart surgery.
We spoke with Claire about the whirlwind and rollercoaster that having a child in the PICU from birth for heart surgery can entail and also the added challenge of doing this in the peak of COVID restrictions and lockdowns in 2020.
Claire shares such an amazing insight on not only her experience as a mother, but that of Max and the whole family during this unpredictable time in their lives. We are even blessed with a guest appearance from Max part way through the poddy.
One of Claires big take homes is how we all work together as a team when a child is sick in hospital to work towards that shared goal of the child's best interests.
We give a shout out and donation from this episode to the marvellous twenty one gifts twentyonegifts.com and the Abbey Solo Foundation www.abbeysolofoundation.org head over to check out these amazing NFP and throw your support behind their amazing visions.
If you would like to learn more about T21 you can head to downsyndrome.org.au and lots of details about congenital heart disease at heart kids.org.au
visit our website at www.paedseducation.com.au
25 에피소드
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