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Chantelle - Solving the healthcare puzzle with a child who has complex & rare conditions
Manage episode 366870099 series 3481290
PAEDS Education Grace & Sarah and PAEDS Education Grace에서 제공하는 콘텐츠입니다. 에피소드, 그래픽, 팟캐스트 설명을 포함한 모든 팟캐스트 콘텐츠는 PAEDS Education Grace & Sarah and PAEDS Education Grace 또는 해당 팟캐스트 플랫폼 파트너가 직접 업로드하고 제공합니다. 누군가가 귀하의 허락 없이 귀하의 저작물을 사용하고 있다고 생각되는 경우 여기에 설명된 절차를 따르실 수 있습니다 https://ko.player.fm/legal.
Chantal Donnelly has a strength that could move mountains and a positivity that will fill your day with such joy. Her beautiful son Soul was born with a rare condition called SENS, only diagnosed this year after 18 months of investigations, discovering new symptoms and piecing together a very complex puzzle.
In this episode we chat about Chantal's textbook pregnancy and birth and the immediate period following birth that revealed something was not quite as 'textbook' for her son.
Chantal shares her insights on what has helped her to manage the trauma of having her newborn suddenly transferred to another hospital shortly after birth, the journey of discovering Souls rare diagnosis and the complex medical world that she currently navigates to help Soul reach his full potential.
This episode supports the charity Face Quality International who are working to create a world where those with facial disfigurements are free to be themselves and thrive https://faceequalityinternational.org/
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25 에피소드
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