EP21: Ryan's Story: Oct 9th World PANDAS/PANS Awareness Day at The Texas Capitol
Manage episode 449635573 series 3586261
Summary
This conversation delves into the challenges faced by families dealing with PANS and PANDAS, highlighting the importance of community support, awareness, and advocacy. Through personal stories, the speakers emphasize the need for boldness in seeking help and the various treatment options available. The discussion also recognizes individuals who have made significant strides in their recovery journeys, showcasing hope and resilience amidst adversity.takeaways
- Every single story is important.
- We need to raise awareness for PANS and PANDAS.
- Be audacious in speaking out and seeking help.
- PANS is a medical condition, not a psychological one.
- The trauma of dealing with CPS can be overwhelming.
- Community support is crucial for families in crisis.
- There are various treatment options available, including homeopathy and IVIG.
- Recognition of individuals' struggles can inspire hope.
- Legislation is needed to protect families from unjust CPS actions.
- Sharing experiences can lead to collective healing and awareness.
- Be Audacious: A Call to Action for PANS Awareness
- Navigating the Challenges of PANS and PANDAS
- "We were not in a good place"
- "Be Audacious!"
- "I feel hopeful"
keywords
PANS, PANDAS, awareness, community support, treatment options, personal stories, resilience, medical challenges, homeopathy, IVIG
Connect with Leslie!
Leslie has long been a medical freedom advocate and independent researcher in the areas of autism, PANDAS, and children’s chronic health issues. She hosts a support group, speaks at state-wide awareness events, and volunteers as an advocate for those interested in healing their family’s chronic and acute health issues.
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