143: Pushing Through, Gaining Ground: Athletics & Life with FSHD

FSHD Straight Talk with Tim Hollenback

This week, Johnny Quintana joins host Tim Hollenback for a conversation about athleticism & perseverance. At the beginning of March 2025, Johnny placed 4th in the US ParaClimbing National Championship, a win allowing him to compete internationally as he works towards a spot on the 2028 USA Paralympic Team. When doctors told Johnny that FSHD would end his career as an athlete, he rose to the challenge to live life to his fullest potential.
Throughout the episode, Johnny and Tim discuss their athletic careers, how they’ve adapted to physical challenges, and the importance of a good training regimen, healthy diet, and a loving support system. Diagnosed at 19, but thriving in his mid-30s, Johnny has stepped into the spotlight as a powerful example of strength and grit.
Instagram: @johnnyquintana_jr
No one knows the experience of living with FSHD better than those who have it. FSHD Straight Talk features stories of life with this rare disease. Tune in to learn from, laugh, celebrate and sometimes grieve with fellow members of the FSHD community. Whatever your journey, we hope you’ll find yourself in these episodes and know you are not alone.
On the second and fourth Tuesday of every month, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who are living rich, full lives and diving into their experiences with FSHD.
If you would like to share your experiences living with FSHD, please reach out via email or send us a message on social media.
Email: [email protected]
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