))
138: Progress & Hope in FSHD Research with Dr. Lucienne Ronco, FSHD Straight Talk
Manage episode 461101439 series 3410030
FSHD Straight Talk에서 제공하는 콘텐츠입니다. 에피소드, 그래픽, 팟캐스트 설명을 포함한 모든 팟캐스트 콘텐츠는 FSHD Straight Talk 또는 해당 팟캐스트 플랫폼 파트너가 직접 업로드하고 제공합니다. 누군가가 귀하의 허락 없이 귀하의 저작물을 사용하고 있다고 생각되는 경우 여기에 설명된 절차를 따르실 수 있습니다 https://ko.player.fm/legal.
Grab your coffee, a pen, and a notebook and curl up for a masterclass in FSHD Research and developments with Dr. Lucienne Ronco. In the first FSHD Straight Talk episode of 2025, host Tim Hollenback talks everything FSHD research with the new Chief Science Officer of the FSHD Society. Dr. Ronco discusses: her work designing clinical trials at Fulcrum; initial insights from and plans for the Fulcrum Phase 1 and Phase 2 trial date; the promise of Avidity; and her hope-filled approach to working in the FSHD landscape. After their conversation, Tim offers advice, reflection on 2024, and his own hopes for FSHD treatments in the new year.
No one knows the experience of living with FSHD better than those who have it. FSHD Straight Talk features stories of life with this rare disease. Tune in to learn from, laugh, celebrate and sometimes grieve with fellow members of the FSHD community. Whatever your journey, we hope you’ll find yourself in these episodes and know you are not alone.
On the second and fourth Tuesday of every month, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who are living rich, full lives and diving into their experiences with FSHD.
If you would like to share your experiences living with FSHD, please reach out via email or send us a message on social media. Email: [email protected]
You can find new episodes on YouTube, Facebook, and wherever you get your podcasts. Subscribe to make sure you never miss an episode!
No one knows the experience of living with FSHD better than those who have it. FSHD Straight Talk features stories of life with this rare disease. Tune in to learn from, laugh, celebrate and sometimes grieve with fellow members of the FSHD community. Whatever your journey, we hope you’ll find yourself in these episodes and know you are not alone.
On the second and fourth Tuesday of every month, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who are living rich, full lives and diving into their experiences with FSHD.
If you would like to share your experiences living with FSHD, please reach out via email or send us a message on social media. Email: [email protected]
You can find new episodes on YouTube, Facebook, and wherever you get your podcasts. Subscribe to make sure you never miss an episode!
171 에피소드
공유
