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Shedding Light on Sickle Cell Disparities
Manage episode 377027788 series 3326964
Jasmyn Moore & Camille White, Jasmyn Moore, and Camille White에서 제공하는 콘텐츠입니다. 에피소드, 그래픽, 팟캐스트 설명을 포함한 모든 팟캐스트 콘텐츠는 Jasmyn Moore & Camille White, Jasmyn Moore, and Camille White 또는 해당 팟캐스트 플랫폼 파트너가 직접 업로드하고 제공합니다. 누군가가 귀하의 허락 없이 귀하의 저작물을 사용하고 있다고 생각되는 경우 여기에 설명된 절차를 따르실 수 있습니다 https://ko.player.fm/legal.
In this episode we discuss how structural racism like underfunded research, inadequate care, and misconceptions about sickle cell disease have hindered treatment advancements. We cover a story of how the fragmented healthcare system can cause more harm for SCD patients.
And we highlight Sick Cells, an advocacy organization elevating the voices of the sickle cell community to influence positive change.
Visit the Sick Cells website to learn about their advocacy efforts, join their ambassador program, share your story, and to donate so they can better serve the sickle cell community.
Follow them on Instagram, FaceBook, Twitter, YouTube, and LinkedIn.
If you would like to suggest a topic we should discuss, share your own personal story, or shoutout an organization or individual email us at distrustanddisparities@gmail.com.
Visit the Distrust & Disparities website and follow us on Instagram, Facebook, YouTube, and LinkedIn.
Visit our Buy Me A Coffee page to support the podcast.
Resources
Black People and Sickle Cell Anemia: Your Questions Answered – Healthline
Sicklepedia: Sickle Cell Disorders – Sickle Cell 101
These Sisters With Sickle Cell Had Devastating, and Preventable, Strokes – The New York Times
The Face of Sickle Cell: Kyra and Kami Crawford – Black Video News
63 에피소드
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