Podcast by Rare Candy
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RARECast is a Global Genes podcast hosted by award-winning journalist Daniel Levine. It focuses on the intersection of rare disease with business, science, and policy.
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Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.
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Ever wonder what makes people take the leap and follow their dreams? That's what RareErth Podcast is all about. I sit down with folks who've turned their passions into careers, asking them the tough questions we all face. How'd they find the courage to start? What keeps them going? Whether it's artists, business owners, or creative thinkers, I'm chatting with people who've taken risks to do what they love. If you're looking for a little inspiration or just enjoy a good story, tune in. Learn ...
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Wie denkt dat klimaatproblemen, feminisme of superrijken typisch dingen van nu zijn, heeft het mis. De Romeinen hadden er ook mee te maken. In de podcast Rare Jongens vertelt historicus Olivier Hekster (Radboud Universiteit) hoe de Romeinen omgingen met dingen waar we ook nu mee te maken hebben. Samen met Merijn Doggen (hoofdredacteur Universiteit van Nederland) bekijkt hij wekelijks onze tijd door de bril van de Romeinen.
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Casey + Cassandra are a pair of best friends with the same rare disease. Their goal is simple: sharing their lives to showcase the beauty and normalcy in disability, while having fun together. They’ll also touch on accessibility, friendships, style, and everything in between as they live their best, rare, lives! For show notes, go to rarewithflair.com
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Welcome to the Rare Cuts Media Society! A Book Club Style show where we dive into Movies, TV, Books, Music, and more. Each month one of us will choose a new piece of media to dive into and discuss. Make sure you watch, listen, and read along with us each month so you will be ready for our discussion. Warning: There will be Spoilers!
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In rarity we unite, connect and find our way to purpose.
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Fighting sarcoidosis as well as other rare diseases.
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Welcome to the Dream Rare Podcast! An audio experience aiming to lift you up, make you laugh & help you get healthier all while bringing you some of the best news analysis on Earth.
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Hello, welcome to A Rare Breed Podcast! My name is Avee (Aw-vee) your host. This show will bring you entertainment and enlightenment. My opinions on topics from politics, social ideology, culture, and more! I try to keep it light, sweet and to the point. I want to give you my juicy take on what is going on in the world and keep the movement of conservative's going strong. The left will not win!
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Hosted by Dan Cleary, RFR is a comedy podcast that aims to be just that; in rare form. Sex, race, religion, conspiracy, controversy... nothing is off limits! The faint of heart need not apply. Follow us on Instagram & Twitter: @RareFormRadio - subscribe wherever you get your podcasts - Give us a rating & review if you'd be so kind. Support this podcast: https://podcasters.spotify.com/pod/show/rareformradio/support
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Young women have been growing up with an indoctrination of what womanhood is and what it should be. They've been taught everything that is in direct opposition to the Word of God. Young women who want to be different from the world are rare but they are real. Audrey Broggi will often be joined by her daughter and her daughters-in-law who desire to be discerning in a day when everything seems to go against God's design.
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Lær mere om vin og vinens forunderlige verden mens du er på farten - dét er præmissen for denne, ikke helt traditionelle, podcast udgivet af RareWine Group. Vi har kombineret podcastformatet med det bedste fra lydbøger. Således kan du her finde vores yndlingsartikler og portrætter om de største producenter og de mest populære vinområder serveret i en række korte podcast-episoder, som du kan lytte til mens du er på farten. Bliv klogere på selveste Domaine de la Romanée-Conti, lær om hvorfor C ...
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Wait How Do You Spell That? is a rare disease podcast produced by Patient Worthy. We talk about issues affecting people rare and underdiagnosed conditions and interview advocates from across the community. We‘re definitely not doctors, and we can‘t give you medical advice. We‘re just here to chat and learn about the diseases that even doctors can‘t seem to spell. Check out the latest in rare disease news at PatientWorthy.com.
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This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting. Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working with disabled people listen in to better understand what is often going on under the surface fo ...
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Formerly Nutrition Equity, rare connection is an extension of the podcast to include all 10,000 rare conditions and not just those covered by the Medical Nutrition Equity Act. Some of the conditions may be the same, but I am trying to turn this into a learning experience for those in the medical feild, policy leaders, and those who are just interested in hearing about rare conditions and patient stories. Rare conditions are called zebras hence the zebra striped ribbon. More common conditions ...
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Welcome to P4A Let’s Talk Rare, a monthly podcast highlighting the most important developments in the world of rare diseases orphan drug, cell and gene therapy, hosted by Georgie Rack and Owen Bryant of Partners For Access. To find out more about Partners For Access and our commitment to sustainable orphan drug access for patients with high unmet need, visit partners4access.com
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Escape The World Thru MusiQ.
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Welcome to the new Rare Kidney Disease Show part of the RKD Scientific Network sponsored by Travere Therapeutics. The Rare Kidney Disease Show is your primary source for cutting-edge insights, expert perspectives, and pivotal updates in nephrology. Led by our panel of experts, explore the advances in glomerular nephropathies through compelling conversations, challenging case studies, and discussions tackling hot topics. Join us as we strive to provide you with the ultimate resource to suppor ...
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Imagine the excitement of becoming a new parent and then within hours finding out your child has a serious developmental disorder. That is exactly where Sanath Kumar Ramesh found himself in the summer of 2018. One year later, on his son’s first birthday, they found out that their son, Raghav, had an extremely rare mutation of the GPX4 gene. At the time, doctors told them that Raghav may be the only one on the planet with this genetic variant who had lived beyond one month of life. The progno ...
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Join the nano-rare disease community! Interviews features leading physicians, scientists, biotech experts, and patient advocates. Lessons teach core concepts about drugs. Our host Dr. Crooke has led the creation of antisense technology and his foundation, n-Lorem, is using this powerful technology to discover, develop, and provide personalized experimental antisense oligonucleotide medicines to nano-rare patients for free, for life. n-Lorem is a non-profit organization established to apply t ...
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I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because ea ...
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Conversations started by The Whitworth Group
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A blockchain informational podcast. We produce an annual blockchain convention called Rare Evo.
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Rare Insights: Uncovering The Future Of Rare Disease Treatments
Know Rare (Taren Grom, Liz Kay, Kaitlyn Taylor, Nina Wachsman, and DNA Today’s Kira Dineen)
On “Rare Insights” we bridge the gap between those living with rare diseases and the biopharmaceutical industry. Know Rare amplifies the voices of individuals with rare conditions, providing invaluable perspectives to accelerate therapeutic solutions. Join us as we dive deep into the complexities of rare diseases, exploring real-world insights from passionate industry leaders. Together, we navigate the unknowns and unlock the potential for groundbreaking treatments. Because in this journey, ...
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Facts are facts if you would like to share your story or be apart of the podcast email me at 1allmostrare@gmail.com
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Funny in Spanish Cover art photo provided by Nahil Naseer on Unsplash: https://unsplash.com/@nahilnaseer
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Podcast by rarebirdlit
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Welcome to the VeryRarePodcast
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New Simplicity Channel. Robert Bonet's Music No Published
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Every beginning carries within it the seed of its own destruction.
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Discover the extraordinary journey of living with an undiagnosed rare disease on Rare Matters Podcast. Join us as we empower, educate, and uplift each other.
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We’re bringing you a slice of our lives through humor, tears, drama, games & pop culture, where trying to stay on topic is only half the fun! Join us!
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Funny and........ N O T H I N G
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Karena menulis dan merekamnya dengan suara adalah cara mengabadikan sebuah kenangan yang telah usai. Support this podcast: https://podcasters.spotify.com/pod/show/heirare/support
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A podcast for parents and families of people living with rare diseases in Ontario. I Care for Rare is a social advocacy campaign, designed to give individuals, families and caregivers living with rare diseases a collective voice for system healthcare AND community support reform.
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Two girls dropping gems in all areas of life! From your social to your personal life hopefully what we talk about can help you!
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Matt Condon and Jonathan Mann explore what it means to own things on the blockchain and beyond.
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"Medium Rare is a brand-new talk show podcast from the minds behind G33k P0p. Join us every fortnight for discussions of topics that we think are interesting, regardless of if it's what you want to hear"
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A series of eclectic mixes from my vinyl record collection- check for regular updates and downloadable classics.
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This is a podcast tutorial
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Stories and Testimonies about 22Q11.2 and all rare and not so rare disorders and causes
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The home of Schwarzenegger Watch Together, the podcast that chronologically critiques the career of actor, bodybuilder, politician and American hero Arnold Schwarzenegger, and other projects
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Forty Fivan is a San Francisco based DJ & record collector, highly regarded for his creative mixes, and deep collection of rare Brazilian vinyl.
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A platform that discuss current Topics as well as promote Upcoming Underground Artist And the #1 Goal is to Appreciate the “ REAL” because it’s Rare
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Entertainment jokes life real life
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Obama Calls Kamala, Joe Biden Body Double Theory & Trump Meets Netanyahu After Congress Speech.
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Hope you enjoy today's show! Have a good weekend. My shop: DreamRare.com Sponsor the show or get social media strategy to help your business: DreamRareBiz.com저자 An0maly
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Portnoy's Complaint w/ Jack Mason and Ryan Simón (preview)
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Full Episode for premium subscribers https://rarecandy.substack.com/p/gain-of-fiction-vol-37-portnoys-complaint저자 Rare Candy
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132: An Interview With Michelle C. Werner, CEO of Alltrna
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저자 Rare Care Podcast
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#303 - Michael Johnson talks about the new Netflix documentary series "Dirty Pop: The Boy Band Scam" detailing his experience being unknowingly on the run from the FBI with Lou Pearlman, the mastermind behind Backstreet Boys, NSYNC, O-Town, LFO, Natural & more. Want to support our show?Patreon.com/RareFormRadio for extra content, bonus episodes & g…
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Summer Mini #9: Our Complicated Relationship with Medically Complex Facebook Groups
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You know that thing that you can’t seem to live without,but also don’t want to live with most of the time? That seems to describe the relationship most of us have with the medically complex and rare disease Facebook group community. In this episode, we’re sharing all your thoughts,feelings, and frustrations with these crucial, life-saving, and yet …
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Beyond the Diagnosis is more than a traveling art exhibit. It is a movement to humanize the children who happen to have a rare disease. So much of the work around rare diseases is logical, scientific, and medical. It can be a world without feeling. Using art and artists to introduce and celebrate these children is much more personal and evocative. …
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Mutations affecting ion channels are the most common cause of 'applications for treatment' submitted to n-Lorem. These channels regulate the passage of essential electrically charged ions, like sodium, potassium, calcium, and chloride, into cells. Alas, ion channels pose a significant challenge in the ASO discovery process, as there is little room …
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98. rolling out the red carpet for the albinism conference
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hi hello hey, it feels so good to have reunited again this year! If you’ve followed us for some time, you’ll know we’re both pretty involved with a couple nonprofits. We’ve talked at length about the Hermansky-Pudlak Syndrome Network and their annual conferences (listen to episodes from 2021, 2023, and 2024). We also love working with (and in Case’…
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Send us a Text Message. In this episode I talk with Melissa from the Pura Syndrome Foundation about her child Taylor now 27 who was diagnosed with Pura Syndrome 2 years after it was discovered in 2014. Listen along and learn about this condition and Melkisa's roles with the Pura Syndromde Foundation over the years from working on the grants committ…
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Tina Proulx was diagnosed with pulmonary hypertension at the age of 19. She experienced difficulty breathing and chest pain, leading to a diagnosis of chronic thromboembolic pulmonary hypertension (CTEPH), a condition caused by blood clots in the lungs. Tina eventually underwent transplant and celebrated eight years post-transplant, surpassing the …
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Episode 118 | Mark Steier -- Who wrote the Sarc Fighter theme song has an unpdate, and his wife Caeleigh goes long for FSR
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Zombie is the theme song for the FSR Sarc Fighter podcast. If you listen, you know. Shortly after I launched the podcast Mark Steier e-mailed me to say he had sarcoidosis and had written and recorded a song about it. I didn't expect much. But the song blew me away, and Mark quickly agreed to allow me to use it as the theme song. You've been hearing…
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This week on the podcast, I am joined by my daughter-in-law, Marilyn, who became a new mom in January. She and her husband, my son Jameson, welcomed baby Mary Frances!! I'm so thankful she could join me to discuss all things related to becoming a new mom. I asked her questions like, What surprised you? What's been the hardest adjustment? How did y'…
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Superhero Summer Part 3: The Rocketeer 1991 Rare Cuts Epic Superhero Summer goes back one more time into the Disney Library with 1991’s The Rocketeer. Andrew picks this adventure film about a young pilot who stumbles upon a jetpack that transforms him into a high-flying hero, battling Nazis and saving the day in 1930s Los Angeles. "The Rocketeer" s…
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The Government Doesn't Care That Your Cancer Is Rare, With Cathy Slattery, Head of Patient Programs At Rare Cancers Australia.
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Imagine you are diagnosed with a cancer that's so uncommon that even your doctor is uncertain of the pathway you need to take. You are isolated in your illness and you turn to investigating yourself online. Is it right that because your cancer is rare, that you should receive less support? When you have a rare cancer the treatment options are often…
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Send us a Text Message. Guys… I’m sorry I get so heated in this episode.. but please let me know if this episode shows up in your feed at all! I have been censored on every single platform extremely hard lately.. not blocked, just not seen at all. So please share this! (Obviously only if you enjoy my ramble session of course) Intro music Please con…
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Epilepsy and Unmet Need, feat. The LGS Foundation and Ovid Therapeutics
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This episode's guests include Dr. Tracey Dixon-Salazar, Executive Director for the Lennox-Gastaut Syndrome (LGS) Foundation, as well as Meg Alexander, Chief Strategy Officer of Ovid Therapeutics. We discuss the treatment landscape for seizure disorders such as LGS and why further research and investment is crucial. Connect with the LGS Foundation: …
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Heb jij een probleem waar je dringend hulp bij nodig hebt? Helpdesk Rome zit voor je klaar. Laat je vraag achter in het Q&A formulier als je via Spotify luistert of vul via de link het onderstaande formulier in. https://forms.gle/dnPbLGJSHo7Zhuak6 Tot in september!
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Impact of Mergers, Acquisitions, and Patent Expirations on Job Cuts in Pharma and Biotech: Insights from Aurelija Luko and Darren Callanan
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Welcome to this month's episode of the P4A Let’s Talk Rare podcast by Partners4Acess. Today, Georgie and Owen are joined by their colleagues Aurelija Luko, the CFO, and Darren Callanan, the Global Digital Lead at Partners4Access. Join them as they discuss the recent job cuts in the pharma and biotech industry and the reasons behind them. Aurelia ex…
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