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RareGem media features ten broadcast networks of positive programs and podcasts for business, lifestyle, inspiration, education, community, sports, youth, faith, health and entertainment. More at at www.oneraregem.com. Shows include #1 iTunes rated health podcast, The Model Health Show with Shawn Stevenson.
 
Dear warriors was created to help bring light to what has been in the shadows for many years; the rare disease community. This podcast will allow recipients/patients, family or anyone caring for someone with a rare disease an opportunity to tell their story. Our Goal is to help people living in this community feel less isolated, better informed and more engaged.
 
"Rare & Scratchy Rock 'N Roll" is a rockumentary podcast series that tells the greatest rock and roll stories on record. This includes the untold tales of some great hits that time forgot, but maybe you'll still remember. These programs are hosted by Radio Dave, a veteran disc jockey and published authority on rock and pop music history. He draws his "Rare & Scratchy Rock 'N Roll" stories from his "groove yard," an archive that has more music than most record libraries.
 
Podcasts to help business owners accelerate growth and sell their companies for maximum value. Episodes hosted by the team at RareBrain Capital, a leading M&A Advisory. Presenters explore all aspects of growing a business, tackling common performance problems, and selling a business for highest value.
 
A new podcast series devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. New Episodes every week. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because early ...
 
If you or someone you love is affected by a rare disease, you likely have more questions than answers. That’s why we’re here. Rare Disease Connection, and our additional resources on RareDisease.com and YourDNA.com, brings together the people whose expertise can explain what you’re facing. From diagnosis, to prognosis, to treatment options, all the way to questions like “Who do I talk to? Where are the people who’ve been through this before?”. We have the answers, direct from the experts and ...
 
Wait how do you spell that? is a rare disease podcast produced by Patient Worthy. We talk about issues affecting people rare and underdiagnosed conditions and interview advocates from across the community. We're definitely not doctors, and we can't give you medical advice. We're just here to chat and laugh and learn about issues that impact people living with diseases our doctors can't to spell.
 
RAREFIED AIR is a music-driven podcast focusing on unique, vintage, and otherwise entertaining tracks culled from the archives of some of the film and television industry’s premiere production music libraries. The show primarily focuses on vintage production library music that was created for films and television programs from the 1960s, 1970s, and 1980s.
 
Rare in Common is a podcast about the unique stories of people affected by rare disease. Host Andra Stratton, a rare disease advocate, speaks with different members of the rare disease community, including patients, caregivers, healthcare professionals, and researchers. Join us as we tackle topics such as FDA approvals, national awareness campaigns, finding hope and support within the rare community, and the extraordinary challenges of living with a rare disease. Click. Listen. Feel.
 
When life gets tough, it's time for A Rare Kind of Faith: the kind of faith that *causes* things to happen. Leslie Householder shows you how the same activity with higher awareness always yields better results. After all, the solution to EVERY problem is only an idea away. Faith-based success principles to help you prosper your family. "So I'm listening to my podcast edits and I start dozing off. While I'm in that twilight zone, I catch myself thinking... 'Oh my goodness, I really relate to ...
 
Since 1989, Patient Services Incorporated has restored hope and health to chronic and rare disease patients. We truly admire the many perspectives we come across in our line of work. This inspired our new podcast, Rare Perspectives, where we go beyond the diagnosis and explore the heart of the experience. Our goal is to shed light on the paths that patients walk and highlight different perspectives. We hope their stories help to educate you about chronic illness.
 
Join editor in chief, web designer and activist Ella Audrey Rae and occasional guests for real, off the cuff conversations about (now laughable) life experiences and owning who you are regardless of your mistakes. With some of her favorite influential people discussing their own heartfelt and hilarious experiences and advice ...this is going to be GOOD! Get your snacks and join the chat.
 
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Join Jake, Josh, Michael, Izzee, and Evan as they solve unforeseen puzzles and battle new monsters in this week's episode of Ancient Relics and Hokey Religions! Gaming Community Expo '21 Tickets and Information: https://www.gcxevent.com/ Check out all our latest giveaways here! https://loot.raredrop.co/ Love Coffee? Check out Kings Coast Coffee Co.…
 
Are you #phaware? EVERYBODY HAS A STORY. WHAT'S YOURS? phaware® wants to share your pulmonary hypertension story with our engaged global audience. Whether you are a patient, caregiver, or medical professional, we are enlisting PH community members from across the globe. We can record anyone... from anywhere... anytime. Contact us at: www.phawarepod…
 
RARE & SCRATCHY ROCK 'N ROLL _127 – "THEY ALL SOUNDED LIKE ELVIS PRESLEY" Elvis Presley just has to be the most imitated performer in pop music history. Beginning with his ascent to super stardom in 1956, and continuing after his death in 1977, myriad performers have sought success by emulating his sound and style. That doesn’t even include the cou…
 
Patients’ data is critical to rare disease innovation, but it does little to help advance progress if it is not widely accessible to researcher. RARE-X is a nonprofit working to bust data silos through a federated data-sharing platform and empower rare disease patient communities to more easily gather, structure and securely share critical data thr…
 
We break down why anyone would want to own a digital—or analog, for that matter—object as we chat with Galen Wolfe-Pauly of Urbit. Urbit is a novel re-architecture of computers and the web that tracks social and cryptographic identity on Ethereum as an NFT. Listen to see how the Urbit ID system is a perfect illustration of our ownership-value-frame…
 
About R.A.R.E. Leaders Podcast A RARE LEADER is one who is resourceful, willing to adapt, who is resilient and willing to show courage and boldness. And is willing to rise up and engage not only themselves but also others into being a R.A.R.E. leader by having R.A.R.E. leader conversations! What does it mean to be a R.A.R.E Leader? You are... Resou…
 
Closing 2020 out with my best acquisitions of the year - deep mix of samba, bossa, psych, and funk grooves.Tracklist:Marconi Notaro - FidelidadeCravo e Canela - Estatutos De GafieiraAry Lobo - Terra De NinguemEliana & Booker Pittman - Vens SoWaltel Branco - Meu BalancoChico Lessa - Choveu Luli - BaleiroJackson Do Pandeiro - E So BalancoPerfume Azul…
 
In this episode, the P4A team review all the key events of the year 2020 in the orphan drug, cell and gene therapy world. The emergence of COVID-19 pandemic has caused disruption but also opportunities for the biotech industry. From change in regulations, new stakeholder collaborations to impact of Brexit and US drug pricing reforms, a full round u…
 
CaptainRoBear, Alex (Omniwaffle), Paul (I_Love_Mundays), Reck (Reck1568), and Riley (rileyhotsauce) continue their journey after defeating the Frostmaiden, encountering new trials and tribulations along the way! Gaming Community Expo '21 Tickets and Information: https://www.gcxevent.com/ Check out all our latest giveaways here! https://loot.raredro…
 
📩Newsletter & 🎙Podcast: Episode 162 Please access the newsletter here. Ms.Vayjayanti Pugalia freelances as a Corporate Grooming expert and a Culinary artist. She also excels in her area of work which comprises International Etiquette/ Fine Dining and Wine Appreciation. She is a philanthropist and a social entrepreneur who has curated many impactful…
 
The genetic basis of sickle cell disease has been long understood, but it has only been recent that new treatments and a growing pipeline of therapies have emerged. The inherited blood disorder causes red blood cells to become crescent shaped, which restricts the flow in blood vessels and limits oxygen delivery to the body’s tissues leading to seve…
 
CaptainRoBear, Alex (Omniwaffle), Paul (I_Love_Mundays), Reck (Reck1568), and Riley (rileyhotsauce) step into a brand new story arc to start off the new year! Gaming Community Expo '21 Tickets and Information: https://www.gcxevent.com/ Check out all our latest giveaways here! https://loot.raredrop.co/ Love Coffee? Check out the Kings Coast Coffee C…
 
Join Jake, Josh, Michael, Izzee, and Evan as they encounter unknown monsters and weird science in another episode of Ancient Relics and Hokey Religions. Gaming Community Expo '21 Tickets and Information: https://www.gcxevent.com/ Check out all our latest giveaways here! https://loot.raredrop.co/ Love Coffee? Check out Kings Coast Coffee Co.: https:…
 
After a long hiatus that saw both Matt and Jonathan stepping away from the NFT space to work on other projects, we are BACK and ready to start a whole new chapter of Digitally Rare. This is a mini-episode to say hello, and deal with an NFT conundrum that Jonathan has been thinking about. He's finally launching the Song A Day NFT project! See the fi…
 
RARE & SCRATCHY ROCK 'N ROLL_126 – “ELVIS PRESLEY'S RHYTHM & BLUES HIT SINGLES" – It’s the rhythm & blues hit singles career of Elvis Presley. Since 1955, there have been 170 Elvis Presley singles on Billboard’s various hit music charts. 35 of those 45s were listed on Billboard’s R&B rankings between 1956 and 1963. We’ll cover them all – along with…
 
At the end of November, the U.S. Food and Drug Administration approved Rhythm Pharmaceuticals Imcivree, the first therapy for chronic weight management in patients with certain genetic forms of obesity. The approval validates Rhythm’s approach to target a specific biological pathway common to a number of these conditions. We spoke David Meeker, CEO…
 
Ajay Mittal in his current role is a Director, India and South Asia (Climate Change Programs) for Earth Day Network, Growing out of the first Earth Day, Earth Day Network is the world’s largest recruiter to the environmental movement, working with more than 75,000 partners in nearly 192 countries to build environmental democracy. Ajay is a member o…
 
This week, a recent celebration of life has Marissa reflecting on the true strength of love (4:45). James spends time pondering the quote “addictions are reactions to emotions we can’t handle”(12:03). The fight of the week is sparked by an impulsive gift James bought their daughter leaving Marissa feeling as if he had gone behind her back (15:50). …
 
Dr. Raymond Benza is the Director for the Division of Cardiovascular Medicine at “THE” Ohio State University. He has been in practice for more than 20 years. In this episode, Dr. Benza discusses GossamerBio’s GB002 Phase 2 Study and explains what differentiates GB002 from other investigational drugs in development. Learn more about pulmonary hypert…
 
Orchard Therapeutics founder and former chief scientific officer Bobby Gaspar took the helm of the gene therapy company in March to replace CEO Mark Rothera when he stepped down. Since taking over, Gaspar has led a restructuring of the company and narrowed the focus to prioritize what it saw as high-value programs including its gene therapy for met…
 
With a commerce background through and through, meet this chance graphic designer who has been building her niche in the field for the past 3 years with her brand GraphicsQue. She received her schooling from MHS, college JDBI, Masters from Lancaster University, UK. She is an active participant of the Modern High School for Girls Alumni and has work…
 
This week Marissa spoke a lot about what wasn’t on her mind (2:39) before eventually deciding that ultimately, she couldn’t stop thinking about Christmas (8:13). James has spent his week reflecting on yet another quote, and you must ask yourself, are you really surprised? (13:40) This week’s fight of the week was sparked by a simple 2 letter word b…
 
Jake, Josh, Michael, Izzee, and Evan are back for another episode of Ancient Relics and Hokey Religions! Join our adventurers as they figure out secret codes, forge important documents, and much more. Gaming Community Expo '21 Tickets and Information: https://www.gcxevent.com/ Check out all our latest giveaways here! https://loot.raredrop.co/ Love …
 
Rosalind Marshall-Jones is an innovative speaker with more than 15 years of experience in the caregiving industry. She is a seasoned health care provider, who runs Jacksonville’s Best Caregivers, an organization that provides short and long-term health care. In this episode, Roz discusses the impact #covid19 has had on home healthcare from anxiety,…
 
Tessera Therapeutics is seeking to move beyond gene editing and gene therapy to what it calls “gene writing.” The company said its technology can be used to change base pairs, make small insertions or deletions, and integrate entire genes into the genome. We spoke to Geoffrey von Maltzahn, co-founder and CEO of Tessera, about the company’s gene wri…
 
CaptainRoBear, Alex (Omniwaffle), Paul (I_Love_Mundays), Reck (Reck1568), and Riley (rileyhotsauce) do battle with the gods themselves in Reckoning Hour's final episode of 2020 and the conclusion to the Rime of the Frostmaiden arc. Happy Holidays! Gaming Community Expo '21 Tickets and Information: https://www.gcxevent.com/ Check out all our latest …
 
Lesleigh Joseph is a citizen and a resident of St. Kitts and Nevis and a graduate of New York’s John Jay College of Criminal Justice where she attained a Bachelor of Arts degree in Forensic Psychology and Anthropology. Having studied Psychology, Lesleigh was afforded the opportunity to vastly improve her intrinsic understanding of the human mind. S…
 
In the third and final episode of the series: Inquiring Minds Want to know, our hosts sit down with two newly married couples who managed to find love in a pandemic.저자 RareGem Productions
 
David F. Harris founded Insight & Measurement and provides research, training and speaking to the industry. In this episode, he discusses the qualitative and quantitative work that he conducts with PAH patients, so that people who get invited to be part of these types of studies have some understanding of what actually the process is like and what …
 
In November, the U.S Food and Drug Administration approved Eiger Biopharmaceutical’s Zokinvy, the first therapy to treat the ultra-rare disorder progeria, a genetic disease that causes premature aging. The approval of Zokinvy, which began life as a potential cancer therapy known as lonafarnib, shows the essential role patient organization can play …
 
CaptainRoBear, Alex (Omniwaffle), Paul (I_Love_Mundays), Reck (Reck1568), and Riley (rileyhotsauce) go fishing for trouble in the latest episode of Reckoning Hour. Gaming Community Expo '21 Tickets and Information: https://www.gcxevent.com/ Check out all our latest giveaways here! https://loot.raredrop.co/ Love Coffee? Check out the Kings Coast Cof…
 
SPECIAL EDITION: The Pathways To Treatment The PAH Initiative and United Therapeutics are excited to bring you the PAH Today National Broadcast Series. This series of virtual events is intended for adult patients with pulmonary arterial hypertension (PAH) and their caregivers. Advancements in the care and treatment of PAH are improving the lives of…
 
Kimberly King is the Founder and Chief Initiator at Consulting Services by King and Associates Limited. She has over 17 years’ experience within Sales, Marketing, Business Development, Customer Service and Tertiary Education for international, local and regional organizations. Her academic qualifications are BSc. Hospitality and Tourism Management …
 
This Monday we celebrate the seasons in the Groove studio with a very special Groove Christmas show, Featuring live in studio Singer, Songwriters, Producers & Multi-Instrumentalist Frank McCombs. performing some of his special Christmas music. Also joining us via zoom the fabulous vocals of Beth. She was one of the finalist on NBC show (The Voice).…
 
Bob B from The Rock Guys and The Bob B Boring podcasts is my guest this episode. We cover many topics including, Metallica, Death, LCD Soundsystem, Covid-19 and Nickelback (sarcastically). I was originally going to put this on the Radio Bloody Hell show, but we covered so much more than just #metal that I thought it should go here instead. Bob B an…
 
PAH patient Sarah Sizemore discusses being diagnosed with pulmonary hypertension at a young age in Denver, her family's decision to move from altitude and how positivity helps her face this disease. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @ph…
 
In this episode, Colby speaks with Taylor Anne Burtz and Peter Zdziarski of the Glanzmann's Research Foundation. Glanzmann's thrombasthenia is rare genetic condition characterized as a blood clotting disorder. Taylor and Peter discuss their personal experiences with the condition and the foundation's goals of connecting patients and advancing resea…
 
The rare disease drug developer Retrophin has been through a number of changes in recent years including a new CEO, a late-stage failure of a key program, and the resolution of dueling lawsuits between it and its former CEO and convicted fraudster Martin Shkreli. Now with data from its lead experimental therapy sparsentan expected next year in two …
 
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