Rare 공개
[search 0]

Download the App!

show episodes
 
"Rare & Scratchy Rock 'N Roll" is a rockumentary podcast series that tells the greatest rock and roll stories on record. This includes the untold tales of some great hits that time forgot, but maybe you'll still remember. These programs are hosted by Radio Dave, a veteran disc jockey and published authority on rock and pop music history. He draws his "Rare & Scratchy Rock 'N Roll" stories from his "groove yard," an archive that has more music than most record libraries.
 
Welcome to 'My rare disease' podcast. This is a platform where I raise awareness of something that affects 1 in 15 people, rare disease. By chatting to patients, health professionals and advocates, we talk about all aspects of rare disease including relationships, mental health and much more. I cannot wait for you to hear some truly inspiring stories from some absolutely amazing people. From being diagnosed with a rare disease myself at 10 weeks old, it has given me the motivation to give ot ...
 
R
Rare with Flair

1
Rare with Flair

Casey Greer & Cassandra Mendez

Unsubscribe
Unsubscribe
매달+
 
Casey + Cassandra are a pair of best friends with the same rare disease. Their goal is simple: sharing their lives to showcase the beauty and normalcy in disability, while having fun together. They’ll also touch on accessibility, friendships, style, and everything in between as they live their best, rare, lives! For show notes, go to rarewithflair.com/podcasts
 
Hosted by Dan Cleary, RFR is a comedy podcast that aims to be just that; in rare form. Sex, race, religion, conspiracy, controversy... nothing is off limits! The faint of heart need not apply. Follow us on Instagram & Twitter: @RareFormRadio - subscribe wherever you get your podcasts - Give us a rating & review if you'd be so kind. Support this podcast: https://anchor.fm/rareformradio/support
 
RareErth Podcast explores work, creativity and entrepreneurship. Over the years we’ve all found ourselves asking that question, “What am I passionate enough about to take risks for?” RareErth podcast is a collection of insights and conversations with some of those who have heeded their creative spirit or entrepreneurial calling. Learn more at https://www.rareerth.com
 
Join us for a one-hour rare disease community support group. Here we will discuss the topics that affect your daily life in rare diseases as well as special needs. Being a parent is hard but having a child in rare disease takes a special kind of person and the journey is filled with potholes along the way. The pathway may never be clear, but together we can navigate by supporting each other. P.S. we are not a glum lot!
 
R
Rare Breed®

1
Rare Breed®

Unscripted Talks with Unconventional People

Unsubscribe
Unsubscribe
매달
 
Rebellious. Audacious. Obsessed. Hot-Blooded. Weird. Hypnotic. Emotional. These are not vices—they are 7 virtues that can lead to standout success when used wisely. In this explosive podcast series inspired by the book Rare Breed, Sunny Bonnell and Ashleigh Hansberger explore the power of human imperfections and interview celebrities, misfits, and cultural provocateurs who have turned vices into virtues. While society asks us to conform our “undesirable” habits, Rare Breed celebrates how our ...
 
Welcome to the Rare Cuts Media Society! A Book Club Style show where we dive into Movies, TV, Books, Music, and more. Each month one of us will choose a new piece of media to dive into and discuss. Make sure you watch, listen, and read along with us each month so you will be ready for our discussion. Warning: There will be Spoilers!
 
This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting. Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working with disabled people listen in to better understand what is often going on under the surface fo ...
 
I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because ea ...
 
Podcasts to help business owners accelerate growth and sell their companies for maximum value. Episodes hosted by the team at RareBrain Capital, a leading M&A Advisory. Presenters explore all aspects of growing a business, tackling common performance problems, and selling a business for highest value.
 
Join the nano-rare disease community! Interviews features leading physicians, scientists, biotech experts, and patient advocates. Lessons teach core concepts about drugs. Our host Dr. Crooke has led the creation of antisense technology and his foundation, n-Lorem, is using this powerful technology to discover, develop, and provide personalized experimental antisense oligonucleotide medicines to nano-rare patients for free, for life. n-Lorem is a non-profit organization established to apply t ...
 
Imagine the excitement of becoming a new parent and then within hours finding out your child has a serious developmental disorder. That is exactly where Sanath Kumar Ramesh found himself in the summer of 2018. One year later, on his son’s first birthday, they found out that their son, Raghav, had an extremely rare mutation of the GPX4 gene. At the time, doctors told them that Raghav may be the only one on the planet with this genetic variant who had lived beyond one month of life. The progno ...
 
Welcome to RARELY GOING: AN ANIMATED STAR TREK PODCAST, devoted to the Paramount+ series Star Trek: Lower Decks, Star Trek: Prodigy and beyond. Hosted by Craig McKenzie & Luke Winch, join them as they dig into every new episode of animated Star Trek, alongside a range of Star Trek-loving guests... A proud member of the We Made This podcast network.
 
I want to share information about living with and dealing with a chronic or invisible disease. This is made even more difficult if the disease is rare. I'll share my story and also invite some guests to share their viewpoints and experiences. There are hundreds of different types of diseases out there that are invisible and can the sufferer feel more alone. I'm hoping to help the patient, families and other support systems better communicate and empathize with each other. ***Disclaimer - Thi ...
 
The Rare Disorder Podcast is a podcast created by Shivani Vyas, a high school senior, young changemaker, and rare disease advocate, dedicated to spreading awareness for rare diseases. This podcast is divided into 2 main series. In the "Meet a Fighter," Shivani interviews patients and those affected by rare diseases allowing them to share their inspirational stories. In "Meet An Expert/Partner," Shivani interviews public health experts, rare disease organization leaders, rare advocacy leaders ...
 
Wait How Do You Spell That? is a rare disease podcast produced by Patient Worthy. We talk about issues affecting people rare and underdiagnosed conditions and interview advocates from across the community. We‘re definitely not doctors, and we can‘t give you medical advice. We‘re just here to chat and learn about the diseases that even doctors can‘t seem to spell. Check out the latest in rare disease news at PatientWorthy.com.
 
Loading …
show series
 
In today's episode, we chat with a gentleman who was diagnosed with a rare disease in mid-life!! Meet Dan Dry-Dock Shockley (Veteran) Retired Navy, Operation Desert Storm; Enduring and Iraqi Freedom veteran and 10-year rare disease virtual international live-case presentation. Diagnosed w/hereditary colon cancer syndrome, attenuated FAP, in 2012. A…
 
In this episode, CTEPH patient, Carol Templeton details her complex surgery, called pulmonary thromboendarterectomy (PTE), which involves the removal of chronic clots from the lung vessel and the impact it had on her as the adoptive mom to her 18 month old daughter. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials…
 
Longtime friend of the show, Alex Gutentag (Tablet Magazine, Compact Magazine) returns to the show to talk to Glen Rockney about Monkeypox and the concerning narratives surrounding it, Covid, Smallpox during the Bush Administration, and more Follow Alex Gutentag on Twitter https://twitter.com/galexybraneMake sure to subscribe to the Rare Candy Subs…
 
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Eileen Sullivan Baker, an Ohio attorney whose son, John, has long chain fatty acid oxidation disorder. She has become an outspoken advocate for LCFAOD, in the absence of any formal patient advocacy organization for those with the disease.…
 
When her 6-year-old son Jace was born, they quickly recognized how difficult it was for him to breathe. A NICU stay, rare diagnosis, several intense surgeries, and 4 years later, they welcomed their second son Emmerson to the family. Once again, they were facing difficulty breathing, a NICU stay, and surgeries all caused by the same rare condition …
 
In this episode, Stan speaks with Wendy Erler about her involvement in the treatment of patients with rare genetic disorders. From her start in the pharmaceutical industry, to her involvement with every major platform of drug development, to her position as vice president and head of patient advocacy at Alexion; Ms. Erler has always ensured that a …
 
In this episode we talk about about PSA and Goldin's grading marriage, Zero Cool's new IP, BGS playing games, notes from the National and so much more! Check out the YouTube channel and our socials! Instagram: https://www.instagram.com/rare_elements1/ Twitter: https://twitter.com/RareElements1 Facebook: https://www.facebook.com/RareElements1 Email:…
 
hi hello hey, it’s conference time! If you’re a loyal Rare with Flair-er, you may remember us recently talking about being with people like us on our community episode. Since then, we had the opportunity to go to the National Organization for Albinism and Hypopigmentation’s (NOAH) biennial conference and we’re here to recap the highlights. Not only…
 
R&SRNR_164 – “THE COMPLETE HIT SINGLES HISTORY OF THE ANIMALS” This episode salutes one of the great British invasion bands of the 1960s that we feel deserves more attention than it’s gotten, probably because their hits were only on the rock charts in the U.S. and the U.K. from 1964 to 1969. These performers actually comprised two different groups …
 
I really enjoyed talking to Annabelle about her chronic illness Cystic Fibrosis. Annabelle spoke openly about how she got diagnosed with her condition, how illness has changed our outlook on life as well as the importance of psychological support for individuals with a chronic illness. Annabelle has really highlighted how much chronic illness can a…
 
This month we have put together a slightly different episode with a twist. Georgie & Owen will take you behind the scenes at P4A and discuss 'What makes P4A an award-winning global market access consultancy?' Why we do what we do every day, and what it means to each and every member of staff. Pride, Passion & Partnership are the core values at P4A,…
 
Rare Breed is a seven part video interview series hosted by authors, leadership and brand experts Sunny Bonnell and Ashleigh Hansberger. In this Season 1 trailer, Charlamagne tha God, 2x best selling author, co-host of The Breakfast Club star of Guy Code, Guy Court and Girl Code, joins Sunny and Ashleigh for a conversation about the vice Audacity. …
 
This month, Mike’s wife Nicole picked Are You Being Served? (1972). This British Sitcom depicts a floor in a department store and follows the employees who work there. The show starred John Inman, Mollie Sugden, and Trevor Bannister, among others, as employees for the fictional Grace Brothers Store. The series ran from 1972, until 1985 on the BBC, …
 
Loading …

빠른 참조 가이드

Google login Twitter login Classic login