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RARECast

RARECast

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RARECast is a Global Genes podcast hosted by award-winning journalist Daniel Levine. It focuses on the intersection of rare disease with business, science, and policy.
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Rare Earth

BBC Radio 4

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Environmental journalist Tom Heap and physicist Helen Czerski tackle major stories about our environment and wildlife, celebrate the wonder of nature and meet the people determined to keep it wonderful.
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RareBreed Chronicles is a dark and cinematic YouTube channel that uncovers gripping mysteries, survival stories, and true crime tales. Blending suspense, danger, and resilience, it’s a place where the unknown comes to life.
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The Rare Life

Madeline Cheney

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This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting. Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working with disabled people listen in to better understand what is often going on under the surface fo ...
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Hosted by Dan Cleary, RFR is a comedy podcast that aims to be just that; in rare form. Sex, race, religion, conspiracy, controversy... nothing is off limits! The faint of heart need not apply. Follow us on Instagram & Twitter: @RareFormRadio - subscribe wherever you get your podcasts - Give us a rating & review if you'd be so kind.
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The Rare Disorder Podcast is a podcast created by Shivani Vyas, a high school senior, young changemaker, and rare disease advocate, dedicated to spreading awareness for rare diseases. This podcast is divided into 2 main series. In the "Meet a Fighter," Shivani interviews patients and those affected by rare diseases allowing them to share their inspirational stories. In "Meet An Expert/Partner," Shivani interviews public health experts, rare disease organization leaders, rare advocacy leaders ...
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Rare with Flair

Casey Greer and Cassandra Mendez

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Casey + Cassandra are a pair of best friends with the same rare disease. Their goal is simple: sharing their lives to showcase the beauty and normalcy in disability, while having fun together. They’ll also touch on accessibility, friendships, style, and everything in between as they live their best, rare, lives! For show notes, go to rarewithflair.com
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Rare but Real

Audrey Broggi

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Young women have been growing up with an indoctrination of what womanhood is and what it should be. They've been taught everything that is in direct opposition to the Word of God. Young women who want to be different from the world are rare but they are real. Audrey Broggi will often be joined by her daughter and her daughters-in-law who desire to be discerning in a day when everything seems to go against God's design.
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Rare Cuts Media Society

Rare Cuts Media Society

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Welcome to the Rare Cuts Media Society! A Book Club Style show where we dive into Movies, TV, Books, Music, and more. Each month one of us will choose a new piece of media to dive into and discuss. Make sure you watch, listen, and read along with us each month so you will be ready for our discussion. Warning: There will be Spoilers!
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Welcome to P4A Let’s Talk Rare, a monthly podcast highlighting the most important developments in the world of rare diseases orphan drug, cell and gene therapy, hosted by Georgie Rack and Owen Bryant of Partners For Access. To find out more about Partners For Access and our commitment to sustainable orphan drug access for patients with high unmet need, visit partners4access.com
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Hello, welcome to A Rare Breed Podcast! My name is Avee (Aw-vee) your host. This show will bring you entertainment and enlightenment. My opinions on topics from politics, social ideology, culture, and more! I try to keep it light, sweet and to the point. I want to give you my juicy take on what is going on in the world and keep the movement of conservative's going strong. The left will not win!
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Welcome to the new Rare Kidney Disease Show part of the RKD Scientific Network sponsored by Travere Therapeutics. The Rare Kidney Disease Show is your primary source for cutting-edge insights, expert perspectives, and pivotal updates in nephrology. Led by our panel of experts, explore the advances in glomerular nephropathies through compelling conversations, challenging case studies, and discussions tackling hot topics. Join us as we strive to provide you with the ultimate resource to suppor ...
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Wait How Do You Spell That? is a rare disease podcast produced by Patient Worthy. We talk about issues affecting people rare and underdiagnosed conditions and interview advocates from across the community. We‘re definitely not doctors, and we can‘t give you medical advice. We‘re just here to chat and learn about the diseases that even doctors can‘t seem to spell. Check out the latest in rare disease news at PatientWorthy.com.
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A Podcast of Rare Antiquities

A Podcast of Rare Antiquities

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Welcome to A Podcast of Rare Antiquities! Host’s Harry and Geoff discuss and analyze film and television shows. This podcast mainly delves into more obscure and forgotten films but latest releases are sometimes covered. We hope this is the rare antiquity you are looking for.
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Rare Enough

Head for the Cure

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The Rare Enough Podcast, hosted by DJ Stewart, a GBM survivor, dives deep into the world of brain cancer awareness, support, and research, inspired by the mission of the Head for the Cure Foundation. Each episode features compelling conversations with patients, caregivers, researchers, and advocates, sharing their unique experiences and insights. We explore a variety of topics, from the latest advancements in brain cancer treatment to personal stories of resilience and hope!
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What if everything in culture was really a signal about who we are? From a rap lyric to a childhood toy, from a boardroom moment to a scene in a film — each carries identity, clarity, and truth waiting to be uncovered.Hosted by Jay Floyd — rapper, writer, coach, father, and unapologetic GenX voice — The Rare Frequency Podcast cuts through the noise and amplifies what’s rare. Jay doesn’t just talk about culture; he reframes it. With his signature mix of storytelling, coaching, and cultural in ...
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Rare Talks by Jjuliaa Gangwani

The Blue Moon, by Jjuliaa Gangwani

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Rare Talks, hosted by Jjuliaa Gangwani and presented by The Blue Moon,is your gateway to exclusive conversations with global changemakers, thought leaders and policymakers. We dive deep into the world of diplomacy, trade, art, culture, tourism and sustainable development. Each episode explores inspiring stories, groundbreaking initiatives and collaborative opportunities that shape our interconnected future. Join us as we bridge borders, celebrate diverse perspectives, and uncover the essence ...
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Raising Rare

Raising Rare

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Imagine the excitement of becoming a new parent and then within hours finding out your child has a serious developmental disorder. That is exactly where Sanath Kumar Ramesh found himself in the summer of 2018. One year later, on his son’s first birthday, they found out that their son, Raghav, had an extremely rare mutation of the GPX4 gene. At the time, doctors told them that Raghav may be the only one on the planet with this genetic variant who had lived beyond one month of life. The progno ...
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The definitive daily intelligence briefing for institutional investors navigating the $500B+ rare earth elements market. In just 3-5 minutes, our sophisticated hosts deliver the geopolitical insights, supply chain analytics, and project-level intelligence that create competitive advantage in the world's most strategically critical commodity sector. What You Get: Real-time REE pricing and market intelligence (NdPr, Dy, Tb oxides) Geopolitical risk analysis and China supply chain developments ...
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Formerly Nutrition Equity, rare connection is an extension of the podcast to include all 10,000 rare conditions and not just those covered by the Medical Nutrition Equity Act. Some of the conditions may be the same, but I am trying to turn this into a learning experience for those in the medical feild, policy leaders, and those who are just interested in hearing about rare conditions and patient stories. Rare conditions are called zebras hence the zebra striped ribbon. More common conditions ...
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I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because ea ...
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Welcome to Music to Move You!, the show that moves your feet, moves your body, and moves your soul. We play Rare Soul, Northern Soul, Classic Soul, and other dance genres from the late 1950's to the mid 1970’s. Let’s get you on dance floor! New episodes premiere Tuesdays at 4pm (Central) and replay on Thursdays at 5pm (Central) on www.workingclassradio.com. New episodes are released as a podcast on Fridays. Playlists and extended archives are found at www.mixcloud.com/djmodmyke. Hosted on Ac ...
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Rare Treasures

Steph Deague-Hall

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Rare Treasures is a podcast all about rare conditions and disabilities. Each episode will focus on a rare disability or condition. We will gather information and statistics as well as interview people affected by the condition.
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Patient Empowerment Program: A Rare Disease Podcast

n-Lorem Foundation (Dr. Stan Crooke, Amy Williford, Kim Butler, Andrew Serrano, Jon Magnuson, and Kira Dineen)

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Join the nano-rare disease community! Interviews features leading physicians, scientists, biotech experts, and patient advocates. Lessons teach core concepts about drugs. Our host Dr. Crooke has led the creation of antisense technology and his foundation, n-Lorem, is using this powerful technology to discover, develop, and provide personalized experimental antisense oligonucleotide medicines to nano-rare patients for free, for life. n-Lorem is a non-profit organization established to apply t ...
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Rare Book Chat

Jeremy O'Connor and Michael DiRuggiero

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Dive deep into the fascinating world of rare books with Rare Book Chat. Hosted by Michael DiRuggiero and Jeremy O'Connor, the co-founders of The Manhattan Rare Book Company, this podcast explores the unique and often valuable items that fill the world of rare books, manuscripts, letters, photographs, archives, and more. From historical documents to literary first editions, we'll discuss the stories behind these one-of-a-kind treasures. Join us as we explore the intricacies of the rare book t ...
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RareErth Podcast

Manoj Radhakrishna

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Ever wonder what makes people take the leap and follow their dreams? That's what RareErth Podcast is all about. I sit down with folks who've turned their passions into careers, asking them the tough questions we all face. How'd they find the courage to start? What keeps them going? Whether it's artists, business owners, or creative thinkers, I'm chatting with people who've taken risks to do what they love. If you're looking for a little inspiration or just enjoy a good story, tune in. Learn ...
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It Happened To Me: A Rare Disease and Medical Challenges Podcast

Cathy Gildenhorn, Beth Glassman, and Kira Dineen (DNA Today)

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The mission of our podcast is to support you, our listeners and to create community, as you confront the toughest challenges in life. All of us will experience health hardships. The real question is how we adapt. That is the focus of It Happened To Me, which wants to help you overcome limitations and live a full and satisfying life. Drawing on their own health challenges, hosts Cathy Gildenhorn and Beth Glassman interview guests who share stories and research to help you succeed in the face ...
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Karena menulis dan merekamnya dengan suara adalah cara mengabadikan sebuah kenangan yang telah usai. Support this podcast: https://podcasters.spotify.com/pod/show/heirare/support
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Medium Rare

Caleb & Josh

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"Medium Rare is a brand-new talk show podcast from the minds behind G33k P0p. Join us every fortnight for discussions of topics that we think are interesting, regardless of if it's what you want to hear"
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Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Jennifer Brown, MD, PhD, director of the CLL Center at Dana-Farber Cancer Institute in Boston, Massachusetts, and winner of the 2025 Michael J. Keating Outstanding Achievement Award.저자 Rare Care Podcast
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In this episode of the FSR Sarc Fighter Podcast, it's time to think. Borrowing some thoughts from a man who faced a possibly fatal brain condition, I look at how similar his case is to our own -- bearing in mind that he expresses his case so much better than most people can or could. Also, Sarcoidosis News is out with a study showing that Black Wom…
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Monday's essential market briefing for institutional capital in rare earth elements. **Market Pricing Data:** - Neodymium: $147.00/kg (+52.97% YTD) - Praseodymium: $141.90/kg (+47.66% YTD) - Dysprosium: $453.90/kg (+28.55% YTD) - Terbium: $1,983.40/kg (+42.03% YTD) - Market entering cautious stability with subdued trading activity **Major Capital D…
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Efforts to reduce our carbon emissions are falling far short of what’s necessary to keep our temperature rise below 2 degrees centigrade. Is it time to seriously consider another option- using technology to cool the planet? Tom Heap and Helen Czerski explore the controversial field of geoengineering. They're joined by Shaun Fitzgerald, Director of …
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This week’s hour is a fiery celebration of soul power, where gospel spirit meets funk grit and R&B drive. From Lonnie Youngblood’s “African Twist” to Sharon Jones and Charles Bradley carrying the torch forward, every track pulses with that unmistakable 60s sound. Expect roof-raising vocals, tight grooves, and dancefloor burners that won’t let you s…
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What happens when your child’s rare disease doesn’t look “serious enough” to the outside world? For Ali Platt, the invisibility of her daughter’s Eosinophilic Esophagitis (EoE) meant battles with doctors, endless appeals to Medicaid, and colleagues who refused understand as Ali spent months and years trying to prove that her daughter’s suffering is…
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Send us a text In this episode of the Rare Enough Podcast, host DJ Stewart sits down with Dr. Phillip “Jay” Storm, Chief of Neurosurgery at The Children’s Hospital of Philadelphia and a leader in pediatric brain tumor research. Together, they explore why pediatric brain tumors are not just “smaller versions” of adult tumors, the unique challenges t…
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A 200 Mile Journey from LA to San Diego to Raise Awareness for PH When Eric Borstein collapsed in his bedroom in 2020, doctors gave him just months to live. Instead, he fought back with walking, mental health, and the support of his community. Now, he’s leading a movement, raising hundreds of thousands for pulmonary hypertension research, and walki…
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In this episode, Drs. Jonathan Barratt and Shikha Wadhwani discuss findings from the SPARTAN study, a Phase 2 open-label, single-arm trial evaluating sparsentan in 12 treatment-naïve patients with IgA nephropathy. The conversation explores the trial’s design, including assessments of proteinuria reduction and urinary biomarkers to better understand…
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The stories of rare kids powerfully shape the stories of the parents who are raising them. In this episode, Claudia Parker discusses how her daughter, who has FOXP1 syndrome, has brought so many benefits into her family’s lives. But this was not easy. Claudia had to deal with the fact that her dreams and plans for her daughter were not their realit…
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Join us as we delve into the evolving landscape of clinical trials in Latin America with Julio G. Martinez-Clark, CEO of BioAccess. Discover how his company is pioneering pathways for medtech innovators and shaping the future of medical device innovation in emerging markets. Bioaccess® is a trailblazing company that’s helped over 100 Medtech innova…
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As Uruguay marks 200 years of independence, Ambassador Alberto Guani offers a reflective yet forward-looking perspective on the nation’s evolving identity and its expanding ties with India. In this Rare Talks episode, he traces a narrative shaped by historical paradoxes, cultural resilience and Uruguay’s leadership in renewable energy and digital g…
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On today’s episode of ‘Wait, How Do You Spell That? A Rare Disease podcast brought to you by Patient Worthy. We are thrilled to share with you a story that is as powerful as it is inspiring. Our guest today is Lisa Batista, author of the newly released memoir, "Falling: A Journey of Strength, Survival and Rising," which is now available on Amazon, …
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Rescue 7 is dedicated to serving the most vulnerable patient communities with care, compassion, and critical support. Inspired by the traditions of Fire Departments, Police Departments, and Military service worldwide, their programs go beyond emergency response. From patient transportation to sibling support initiatives, as well as emergency disast…
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How do we make sure patients receive health information that is clear, trustworthy, and truly helpful? We sit down with Catherine Richards Golini from Karger Publishers to explore the power of collaboration in creating impactful patient resources. From working with healthcare professionals and patient advocates to partnering with researchers and pu…
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This episode isn’t about rare disease, advocacy, or biotech—at least not directly. It’s different. It’s slower. It’s personal. I recorded this audio piece on my summer abroad in Switzerland and Italy, where I spent time hiking, wandering, and rethinking what leadership means when you’re not in control, but still choosing how to move. It’s part trav…
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Some people just have it—that spark, that energy that makes others follow. We call them “born leaders.” But here’s the truth: raw talent without sharpening gets wasted, and plenty of so-called “non-naturals” have outworked the naturals to become exceptional leaders. In this episode, Jay Floyd breaks down the myth of the born leader, shares personal…
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Part 3 of James Bond Sidecars: Sean Connery In this week's episode, our hosts Andrew, Eric, and Rob,take a dive deep into the shadowy world of 19th-century Pennsylvania coal mines as they dissect Mike’s Pick for Sean Connery’s Bond the 1970 historical drama "The Molly Maguires," starring Sean Connery and Richard Harris.Kicking things off, the crew …
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hi hello hey, grab your emotional support item of choice and cuddle up with us! Life is challenging, period. Inspired by the podcast A Beautiful Mess by sisters Elsie Larson and Emma Chapman, we’re diving into the little things that bring us comfort. We all have go-to comforts in stressful times or when we just need a boost, whether it’s a nostalgi…
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Send us a text I had to let you all know I was still alive and apologize for taking so long to get a new episode out! I sure do miss being able to ramble on about random things and you are my kind of people for listening! I hope you enjoy my ramble session! Stay safe out there! Intro music Please consider supporting the show! Support the show Stay …
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RBS faculty member Paul Needham (Princeton Univ.) gave a public lecture on "The Catholicon Press Revisited: The Evidence of Nailheads" on 29 July 2025. You can watch the full recording of the lecture on YouTube at https://youtu.be/o4aMEB38slw?feature=shared.𝗔𝗯𝗼𝘂𝘁 𝘁𝗵𝗲 𝗧𝗮𝗹𝗸:The 𝘊𝘢𝘵𝘩𝘰𝘭𝘪𝘤𝘰𝘯, whose colophon states that it was printed in Mainz, 1460, has…
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Send us a text Well, here we are once again with an all new episode of RARE FREQUENCY! Did you hear about the case of the missing diamond? What about the one about the girl/guy they told you not to worry about? All these answers and more can be found right here! JOIN US and welcome to the frequency!저자 Rare Frequency
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Send us a text In this episode of Rare Connection, Joanna speaks with Liz, mother of Stephanie, about the ultra-rare IRF2BPL genetic disorder—also known as NEDAMSS—and the groundbreaking milestone of the first-ever IRF2BPL gene replacement therapy. We discuss what this means for the rare disease community, the hope it brings to families, and the pa…
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