Podcast by Rare Candy
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This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting. Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working with disabled people listen in to better understand what is often going on under the surface fo ...
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RARECast is a Global Genes podcast hosted by award-winning journalist Daniel Levine. It focuses on the intersection of rare disease with business, science, and policy.
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Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.
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Parenting tools and life hacks for raising a child with a rare diagnosis. Let’s get to the meat of it!
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We’re bringing you a slice of our lives through humor, tears, drama, games & pop culture, where trying to stay on topic is only half the fun! Join us!
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Welcome to the Dream Rare Podcast! An audio experience aiming to lift you up, make you laugh & help you get healthier all while bringing you some of the best news analysis on Earth.
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Fighting sarcoidosis as well as other rare diseases.
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Hosted by Dan Cleary, RFR is a comedy podcast that aims to be just that; in rare form. Sex, race, religion, conspiracy, controversy... nothing is off limits! The faint of heart need not apply. Follow us on Instagram & Twitter: @RareFormRadio - subscribe wherever you get your podcasts - Give us a rating & review if you'd be so kind.
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Casey + Cassandra are a pair of best friends with the same rare disease. Their goal is simple: sharing their lives to showcase the beauty and normalcy in disability, while having fun together. They’ll also touch on accessibility, friendships, style, and everything in between as they live their best, rare, lives! For show notes, go to rarewithflair.com
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Conversations started by The Whitworth Group
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Welcome to A Podcast of Rare Antiquities! Host’s Harry and Geoff discuss and analyze film and television shows. This podcast mainly delves into more obscure and forgotten films but latest releases are sometimes covered. We hope this is the rare antiquity you are looking for.
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Welcome to the Rare Cuts Media Society! A Book Club Style show where we dive into Movies, TV, Books, Music, and more. Each month one of us will choose a new piece of media to dive into and discuss. Make sure you watch, listen, and read along with us each month so you will be ready for our discussion. Warning: There will be Spoilers!
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Young women have been growing up with an indoctrination of what womanhood is and what it should be. They've been taught everything that is in direct opposition to the Word of God. Young women who want to be different from the world are rare but they are real. Audrey Broggi will often be joined by her daughter and her daughters-in-law who desire to be discerning in a day when everything seems to go against God's design.
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This podcast is about rare and wonderful creatures that are at risk of disappearing and the amazing people working hard to save them! Have you ever wanted to know why they call the Loggerhead Shrike the Butcher Bird? Have you wondered where have all the bats gone? Or asked yourself what is being done to protect the creatures that can’t stand up for themselves? Well this is the podcast for you!
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Welcome to P4A Let’s Talk Rare, a monthly podcast highlighting the most important developments in the world of rare diseases orphan drug, cell and gene therapy, hosted by Georgie Rack and Owen Bryant of Partners For Access. To find out more about Partners For Access and our commitment to sustainable orphan drug access for patients with high unmet need, visit partners4access.com
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Escape The World Thru MusiQ.
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Formerly Nutrition Equity, rare connection is an extension of the podcast to include all 10,000 rare conditions and not just those covered by the Medical Nutrition Equity Act. Some of the conditions may be the same, but I am trying to turn this into a learning experience for those in the medical feild, policy leaders, and those who are just interested in hearing about rare conditions and patient stories. Rare conditions are called zebras hence the zebra striped ribbon. More common conditions ...
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Welcome to the new Rare Kidney Disease Show part of the RKD Scientific Network sponsored by Travere Therapeutics. The Rare Kidney Disease Show is your primary source for cutting-edge insights, expert perspectives, and pivotal updates in nephrology. Led by our panel of experts, explore the advances in glomerular nephropathies through compelling conversations, challenging case studies, and discussions tackling hot topics. Join us as we strive to provide you with the ultimate resource to suppor ...
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Dive deep into the fascinating world of rare books with Rare Book Chat. Hosted by Michael DiRuggiero and Jeremy O'Connor, the co-founders of The Manhattan Rare Book Company, this podcast explores the unique and often valuable items that fill the world of rare books, manuscripts, letters, photographs, archives, and more. From historical documents to literary first editions, we'll discuss the stories behind these one-of-a-kind treasures. Join us as we explore the intricacies of the rare book t ...
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I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because ea ...
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Patient Empowerment Program: A Rare Disease Podcast
n-Lorem Foundation (Dr. Stan Crooke, Amy Williford, Kim Butler, Andrew Serrano, Jon Magnuson, and Kira Dineen)
Join the nano-rare disease community! Interviews features leading physicians, scientists, biotech experts, and patient advocates. Lessons teach core concepts about drugs. Our host Dr. Crooke has led the creation of antisense technology and his foundation, n-Lorem, is using this powerful technology to discover, develop, and provide personalized experimental antisense oligonucleotide medicines to nano-rare patients for free, for life. n-Lorem is a non-profit organization established to apply t ...
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New Simplicity Channel. Robert Bonet's Music No Published
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Facts are facts if you would like to share your story or be apart of the podcast email me at 1allmostrare@gmail.com
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Podcast by rarebirdlit
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Funny in Spanish Cover art photo provided by Nahil Naseer on Unsplash: https://unsplash.com/@nahilnaseer
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Welcome to the VeryRarePodcast
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Every beginning carries within it the seed of its own destruction.
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Funny and........ N O T H I N G
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Ever wonder what makes people take the leap and follow their dreams? That's what RareErth Podcast is all about. I sit down with folks who've turned their passions into careers, asking them the tough questions we all face. How'd they find the courage to start? What keeps them going? Whether it's artists, business owners, or creative thinkers, I'm chatting with people who've taken risks to do what they love. If you're looking for a little inspiration or just enjoy a good story, tune in. Learn ...
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Karena menulis dan merekamnya dengan suara adalah cara mengabadikan sebuah kenangan yang telah usai. Support this podcast: https://podcasters.spotify.com/pod/show/heirare/support
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Two girls dropping gems in all areas of life! From your social to your personal life hopefully what we talk about can help you!
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Matt Condon and Jonathan Mann explore what it means to own things on the blockchain and beyond.
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Hello, welcome to A Rare Breed Podcast! My name is Avee (Aw-vee) your host. This show will bring you entertainment and enlightenment. My opinions on topics from politics, social ideology, culture, and more! I try to keep it light, sweet and to the point. I want to give you my juicy take on what is going on in the world and keep the movement of conservative's going strong. The left will not win!
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"Medium Rare is a brand-new talk show podcast from the minds behind G33k P0p. Join us every fortnight for discussions of topics that we think are interesting, regardless of if it's what you want to hear"
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Stories and Testimonies about 22Q11.2 and all rare and not so rare disorders and causes
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Continuous mixes of deep house, 90s hip hop and other groovy goodness...
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The home of Schwarzenegger Watch Together, the podcast that chronologically critiques the career of actor, bodybuilder, politician and American hero Arnold Schwarzenegger, and other projects
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Rare Treasures is a podcast all about rare conditions and disabilities. Each episode will focus on a rare disability or condition. We will gather information and statistics as well as interview people affected by the condition.
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A platform that discuss current Topics as well as promote Upcoming Underground Artist And the #1 Goal is to Appreciate the “ REAL” because it’s Rare
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Wie denkt dat klimaatproblemen, feminisme of superrijken typisch dingen van nu zijn, heeft het mis. De Romeinen hadden er ook mee te maken. In de podcast Rare Jongens vertelt historicus Olivier Hekster (Radboud Universiteit) hoe de Romeinen omgingen met dingen waar we ook nu mee te maken hebben. Samen met Merijn Doggen (hoofdredacteur Universiteit van Nederland) bekijkt hij wekelijks onze tijd door de bril van de Romeinen. Met dank aan de Letteren Faculteit van de Radboud Universiteit
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Entertainment jokes life real life
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This podcast covers everything from sex, love, lifestyle,career,health, beauty fashion and relationships with other people and more importantly with yourself .
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The Thomas Fisher Rare Book Library is the largest rare book library in Canada, holding over 800,000 books and 6,000 linear metres of manuscript material.
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Magic: The Gathering Podcast, Junk Rares, hosted by Jeffrey Daniel and Tyler Nichols
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Lær mere om vin og vinens forunderlige verden mens du er på farten - dét er præmissen for denne, ikke helt traditionelle, podcast udgivet af RareWine Group. Vi har kombineret podcastformatet med det bedste fra lydbøger. Således kan du her finde vores yndlingsartikler og portrætter om de største producenter og de mest populære vinområder serveret i en række korte podcast-episoder, som du kan lytte til mens du er på farten. Bliv klogere på selveste Domaine de la Romanée-Conti, lær om hvorfor C ...
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Top women entrepreneurs reveal how they’re running their businesses. From the deals they’ve done to the successes and failures they’ve had. Learn how influential women entrepreneurs are doing business right now, with your host Inspiring Rare Birds Founder Jo Burston. http://www.inspiringrarebirds.com/
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RARE FORMS represents the power to harness nature to manifest our dreams. This podcast features prosperity and abundance prayers and meditations to attract what you desire into your life. Manifest money, wealth, love, romance, health, well-being, abundance and prosperity. RARE FORMS creates motivational digital assets available for purchase at https://www.RAREFORMSNFT.com
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Do you ever think what you are doing in the everyday routine of life is not significant? If you've ever been tempted to think this way, this week's episode should encourage you. Pass it on to a friend who needs to hear this biblical perspective. audreybroggi.com
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Dr. Raj Parikh from Hartford Hospital discusses the development of the PH-ILD Detection tool, a screening tool designed to help detect pulmonary hypertension (PH) in patients with interstitial lung disease (ILD) at an early stage. Early detection is critical, as there is often a significant delay in diagnosis of PH in ILD patients, leading to worse…
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Director Jay Curtis Miller joins Glen and Psi to talk about two high-T action classics starring Sylvester Stallone and Mel Gibson (The Patriot, Cliffhanger) respectively. We also talk about Miller's latest venture Knuckles which you can help fund https://www.indiegogo.com/projects/knuckles-an-action-proof-of-concept-film#/Follow Jay Curtis Miller o…
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#347 - Our dear friend Lisa Rieffel (Killola, Fur Trapper, Actress) returns & brought director Vanessa Pla with her. We're talking dreams, withdrawals, Steven Tyler, ghosts, Tourettes & more.
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188: Belief Systems + Ways They’re Affected by Disability Parenting w/ Ali, Bethany, Melissa, and Rachel
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1:11:18When you’re the parent of a medically complex or disabled child, the experience touches every aspect of our life – including our faith, often in unique and surprising ways. Today, I’m sharing a vulnerable and tender episode, where I interviewed four different women, each coming to the table with their own different spiritual backgrounds, to share h…
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Advancing a Cutting-Edge Therapy for a Rare, Childhood Cancer
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25:12Osteosarcoma is a rare and aggressive bone cancer that usually affects children and teenagers. Over the past 40 years, there’s been little progress to improve survival rates, with the five-year survival rate stagnant at about 60 to 70 percent for localized disease and 15 to 30 percent for metastatic osteosarcoma. OS Therapies is developing an exper…
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Connor Dalby's Story: n-Lorem Patient #001 with Kelley Dalby and Dr. Olivia Kim-McManus
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38:55Connor Dalby was born with an SCN2A ion channel mutation causing severe epilepsy and eventually leading to hospice care at an early age. It was a chance hallway conversation between Connor’s mom and Dr. Stan Crooke at a conference that sparked the idea for what would become n-Lorem. In a full-circle moment, Connor went on to become the very first p…
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Candace Owens Shouted Me Out On Her Podcast & Referenced This Debate I Had!
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2:59:23Thank you to the person who brought me up in a Candace Q&A! It inspired this episode. My channel: YouTube.com/An0malyhiphop저자 An0maly
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hi, hello, hey—grab your popcorn, because it’s conference time! As many of you know, we’re two best friends with the same rare disease, living our best lives. We truly wouldn’t be friends without Hermansky-Pudlak Syndrome—or without this incredible conference. It’s where our friendship began, and where we reconnect with our amazing community year a…
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166: An Interview With MDA 2025 Patient Ambassador Lily Sander
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14:51Larry Luxner, senior correspondent for Rare Disease Advisor, interviews 17-year-old Lily Sander with Charcot-Marie-Tooth disease. The Muscular Dystrophy Association has named Sander its 2025 MDA Patient Ambassador.저자 Rare Care Podcast
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Episode 136 | A big Announcement for John and Sarah Bishop joins from halfway around the world to share her Sarcoidosis story.
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1:18:23Sarah Bishop is busier than most people. She is an ambitious runner, she is a police detective, and she loves the outdoors in New Zealand. But she started having trouble doing even normal things. She would get so tired and out of breath that her basic activity was nerly down to nothing. But nobody could figure out what was wrong with her. Sound fam…
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Movie: A&E Biography WWE Legends: Rowdy Roddy Piper (2021)
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1:06:40Part 3 of Rowdy Roddy Piper In today's conversation, we dive deep into the world of professional wrestling and beyond, as we unwrap the life and legacy of one of its most charismatic figures—Roddy Piper. Join your hosts Andrew, Mike, Rob, and Eric as they explore the complexities of Roddy Piper through the lens of Eric’s Pick, the “A&E Biography WW…
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016: Fitness Beyond Limits: Inclusive Training & Nutrition with Charlie Taylor
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51:40Meghan Weaver interviews Charlie Taylor from Foundation of Strength, discussing their partnership with gyms to provide fitness programs for individuals with autism, Down syndrome, and other different abilities. Charlie shares his journey, from his early interest in weightlifting to his initiation into training individuals with special needs. They t…
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Unnamed Chromosomal Disorder With Melissa From Minnesota
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43:56Send us a text Melissa was 17 when she had her first child Evan. Evan was born with a cleft palate and developed 30 other conditions throughout his life. He wasn't expected to live and doctors told her to take him home and let him pass naturally. She was given what she calls a never list (He will never sit up, he will never talk, he will never stan…
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The Knight's Gambit. #APodcastofRareAntiquities #TheSeventhSeal #IngmarBergman #MaxvonSydow #moviereviews #movies저자 A Podcast of Rare Antiquities
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Send us a text From ugly crying during Pocohontas to revealing the secrets of the chamber of secrets join us as we somehow manage to mix Harry Potter with every and anything Disney.저자 Rare Frequency
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Brain cancers are notoriously difficult to manage with current treatments offering limited effectiveness. But what if there was a way to change that? Michael Roberts from Adaptin Bio joins Owen Bryant to explore how a pioneering new treatment called BRiTE is driving hope for improved outcomes for patients.…
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Title: Intro to FSGS Episode Description: In this episode of the Rare Kidney Disease Show, Howard Trachtman, Adjunct Professor of Pediatrics at the University of Michigan, and Chris Gisler, medical director at Travere Therapeutics, explore the complexities of FSGS, covering its pathophysiology, classifications, and clinical presentation. They discu…
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