Short Bowel Syndrome, feeding tubes and ostomy bag with Shaylee Raye Hunter

The Sunflower Conversations

Join us as we welcome Shaylee Raye Hunter, Miss Petite Utah, who shares her journey as an advocate for women's rights and disability visibility. Shaylee opens up about her personal lived experiences with chronic intestinal pseudo-obstruction (CIPO), gastroparesis, and short bowel syndrome. In an open discussion, she shares how she manages her health conditions with medical interventions, such as a feeding tube and TPN, providing a unique glimpse into her life and the lifeline she depends on daily to receive the nutrients essential to life.

We learn about the challenges Shaylee faced at school due to the assumptions made by other students about her health, as well as the subsequent difficulties she encountered in dating and the workplace.

Shaylee is passionate about advocating for disability visibility through her pageant platform.

If you are experiencing any issues discussed in this podcast, please get in touch with your healthcare practitioner.

Hosted by Chantal Boyle and Lynn Smith, Hidden Disabilities Sunflower.
If you enjoyed this podcast, please rate, review and share it to increase awareness and understanding of non-visible disabilities.
Find out more about the Sunflower by visiting the website hdsunflower.com
Music by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby website

챕터

1. Short Bowel Syndrome, feeding tubes and ostomy bag with Shaylee Raye Hunter (00:00:00)

2. Living With Invisible Disabilities (00:00:30)

3. Navigating Life With Feeding Tubes (00:15:27)

4. Navigating Employment With Invisible Disabilities (00:22:48)

5. Accessibility for Hidden Disabilities (00:28:52)

6. Conversations About Living With Feeding Tubes (00:41:27)