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toopeasinapodcast에서 제공하는 콘텐츠입니다. 에피소드, 그래픽, 팟캐스트 설명을 포함한 모든 팟캐스트 콘텐츠는 toopeasinapodcast 또는 해당 팟캐스트 플랫폼 파트너가 직접 업로드하고 제공합니다. 누군가가 귀하의 허락 없이 귀하의 저작물을 사용하고 있다고 생각되는 경우 여기에 설명된 절차를 따르실 수 있습니다 https://ko.player.fm/legal.
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Rachael talks about her gorgeous boy Robbie

56:40
 
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Manage episode 403661104 series 2565007
toopeasinapodcast에서 제공하는 콘텐츠입니다. 에피소드, 그래픽, 팟캐스트 설명을 포함한 모든 팟캐스트 콘텐츠는 toopeasinapodcast 또는 해당 팟캐스트 플랫폼 파트너가 직접 업로드하고 제공합니다. 누군가가 귀하의 허락 없이 귀하의 저작물을 사용하고 있다고 생각되는 경우 여기에 설명된 절차를 따르실 수 있습니다 https://ko.player.fm/legal.

Mandy and Kate chat to Rachael, pea mum to a beautiful 5-year-old Robbie, and the Tasmanian representative for Angelman Syndrome Association Australia.


Rachael shares the story of her pregnancy, moving to Hobart in preparation for Robbie’s birth, time in the NICU, Robbie’s surgery at only 9 days of age, and his diagnosis of the rare genetic disorder Angelman Syndrome. Rachael talks about adjusting to Robbie’s medical complexities, feeling like the whole world had changed around her, experiencing the hard days of isolation, loneliness and comparison, but receiving some wonderful support from some amazing and insightful friends.


Rachael connected online with other Angelman Syndrome parents and developed new and supportive friendships, leading to her role in the association. The Association provides support, information, education, networking, research promotion and advocacy for people and families affected by the syndrome.


We also learn that Robbie is a gentle and beautiful boy, he loves holding hands and touching faces, he’s patient and works incredibly hard at his therapies, he’s a good big brother and and loves music!


Thanks for sharing your story with us Rachael!


For more information about the Angelman Syndrome Association Australia, visit their website or find them on Facebook and Instagram. You can also follow Robbie’s story on Instagram too.


Plus:


Hosted on Acast. See acast.com/privacy for more information.

  continue reading

373 에피소드

Artwork
icon공유
 
Manage episode 403661104 series 2565007
toopeasinapodcast에서 제공하는 콘텐츠입니다. 에피소드, 그래픽, 팟캐스트 설명을 포함한 모든 팟캐스트 콘텐츠는 toopeasinapodcast 또는 해당 팟캐스트 플랫폼 파트너가 직접 업로드하고 제공합니다. 누군가가 귀하의 허락 없이 귀하의 저작물을 사용하고 있다고 생각되는 경우 여기에 설명된 절차를 따르실 수 있습니다 https://ko.player.fm/legal.

Mandy and Kate chat to Rachael, pea mum to a beautiful 5-year-old Robbie, and the Tasmanian representative for Angelman Syndrome Association Australia.


Rachael shares the story of her pregnancy, moving to Hobart in preparation for Robbie’s birth, time in the NICU, Robbie’s surgery at only 9 days of age, and his diagnosis of the rare genetic disorder Angelman Syndrome. Rachael talks about adjusting to Robbie’s medical complexities, feeling like the whole world had changed around her, experiencing the hard days of isolation, loneliness and comparison, but receiving some wonderful support from some amazing and insightful friends.


Rachael connected online with other Angelman Syndrome parents and developed new and supportive friendships, leading to her role in the association. The Association provides support, information, education, networking, research promotion and advocacy for people and families affected by the syndrome.


We also learn that Robbie is a gentle and beautiful boy, he loves holding hands and touching faces, he’s patient and works incredibly hard at his therapies, he’s a good big brother and and loves music!


Thanks for sharing your story with us Rachael!


For more information about the Angelman Syndrome Association Australia, visit their website or find them on Facebook and Instagram. You can also follow Robbie’s story on Instagram too.


Plus:


Hosted on Acast. See acast.com/privacy for more information.

  continue reading

373 에피소드

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