Unproven treatments - we talk to BBC reporter Ramadan Younes and Professor Robert Maclaren

Retina UK

Retina UK에서 제공하는 콘텐츠입니다. 에피소드, 그래픽, 팟캐스트 설명을 포함한 모든 팟캐스트 콘텐츠는 Retina UK 또는 해당 팟캐스트 플랫폼 파트너가 직접 업로드하고 제공합니다. 누군가가 귀하의 허락 없이 귀하의 저작물을 사용하고 있다고 생각되는 경우 여기에 설명된 절차를 따르실 수 있습니다 https://ko.player.fm/legal.

1+ y ago 27:55

MP3•에피소드 홈

The BBC World Service has undertaken an investigation of unproven treatments for retinitis pigmentosa (RP) and has produced a documentary film, called Blind Faith, which is available on BBC iPlayer: https://www.bbc.co.uk/iplayer/episode/p0f8vnvm/blind-faith⁠ This documentary highlights a really significant and concerning issue that impacts families living with rare diseases, including inherited sight loss, and Retina UK applauds the BBC for carrying out this revealing investigation. We believe the programme has the power to prevent others’ risking being harmed by unproven treatments.

In this podcast, we talk to the reporter, Ramadan Younes and to Professor Robert Maclaren. Ramadan is living with retinitis pigmentosa and made the documentary to highlight these unproven treatments being offered around the world.

Information and support for those living with inherited retinal conditions is available from our Helpline, on 0300 111 4000 or at Helpline@RetinaUK.org.uk

175 에피소드

#Non-Profit #Business #Retina UK