FTD Research Mini Series: Day 3

Remember Me

It's DAY 3! And there were a few surprises!

As you know at this point in the mini-series -- we participated in the ALLFTD Study -- Rachael as the participant, and Maria as the study partner... and today's episode recaps our Day 3: The Visit with the Physician to review the Neuropsych testing and the MRI. A long day, but we had a lot of laughs. Everything is an adventure with us, so be sure to listen! Want to learn more about ALLFTD? Visit allftd.org Be sure to connect with us on instagram @remembermepodcast to let us know what you think of today's episode!

------ Special Thanks To Our Sponsor: The Bluefield Project The Bluefield Project to Cure FTD is on a mission to support research to improve our understanding of a genetic form of Frontotemporal Dementia, and to help find a cure for this devastating disease. To achieve our mission, we have supported over 40 researchers at Universities across the world, to understand the science behind FTD caused by mutations in progranulin. We, along with NIH and others, help fund studies of families affected by FTD. These studies are called Natural History Studies and follow participants over time, to better understand how FTD may develop, and to identify clues that may help us treat it. Based in part on our research findings, a number of companies are developing therapeutics that target progranulin FTD. There are now four investigational therapies in clinical trials for progranulin-FTD. So how can you help? If FTD runs in your family, participating in a Natural History Study, or in a therapeutic clinical trial, makes an enormous contribution. To learn more, please go to ftdregistry.org

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