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Mostyn's Story: Mother's Day Special with Zoe Hummel
Manage episode 415674331 series 3349924
n-Lorem Foundation and N-Lorem Foundation에서 제공하는 콘텐츠입니다. 에피소드, 그래픽, 팟캐스트 설명을 포함한 모든 팟캐스트 콘텐츠는 n-Lorem Foundation and N-Lorem Foundation 또는 해당 팟캐스트 플랫폼 파트너가 직접 업로드하고 제공합니다. 누군가가 귀하의 허락 없이 귀하의 저작물을 사용하고 있다고 생각되는 경우 여기에 설명된 절차를 따르실 수 있습니다 https://ko.player.fm/legal.
Motherhood is a journey filled with challenges, but every step is worth it for the love and joy it brings. Zoe Hummel joins the show in this special Mother’s Day episode to discuss her son Mostyn’s emotional story to diagnosis, and the unique challenges and triumphs of being a nano-rare mom.
Order your Mother's Day card by May 6, 2024! All proceed support nano-rare patients.
On This Episode We Discuss:
- How Zoe met her Husband, Mostyn’s father
- Zoe’s Violin origins and playing with Rod Stewart
- Mostyn’s journey to a diagnosis
- Zoe’s advice for parents observing abnormalities in their child's development
- Mostyn’s severe epilepsy
- A road trip to Boston Children’s Hospital in the middle of winter
- The ‘unlucky’ diagnosis of KCNB1
- For-profit companies promising false hope
52 에피소드
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