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GBH에서 제공하는 콘텐츠입니다. 에피소드, 그래픽, 팟캐스트 설명을 포함한 모든 팟캐스트 콘텐츠는 GBH 또는 해당 팟캐스트 플랫폼 파트너가 직접 업로드하고 제공합니다. 누군가가 귀하의 허락 없이 귀하의 저작물을 사용하고 있다고 생각되는 경우 여기에 설명된 절차를 따르실 수 있습니다 https://ko.player.fm/legal.
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Why is so little attention paid to Sick Cell Disease?

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Manage episode 345774087 series 2649065
GBH에서 제공하는 콘텐츠입니다. 에피소드, 그래픽, 팟캐스트 설명을 포함한 모든 팟캐스트 콘텐츠는 GBH 또는 해당 팟캐스트 플랫폼 파트너가 직접 업로드하고 제공합니다. 누군가가 귀하의 허락 없이 귀하의 저작물을 사용하고 있다고 생각되는 경우 여기에 설명된 절차를 따르실 수 있습니다 https://ko.player.fm/legal.

This week on Basic Black we will be discussing sickle cell disease. It’s one of the most known inherited blood disorders that largely affects Black and brown people. A debilitating disease for those who have it, along with the strain on their families, sickle cell “warriors” live in constant pain. Life-threatening medical issues include stroke, eye damage, infection and pulmonary issues, making Covid very risky for those with sickle cell disease. Currently, the only cure for SCD is a bone marrow or stem cell transplant. Many companies are conducting clinical trials. Advocates hope there will be more focus and attention on SCD to increase services and ultimately find a cure.

Guest Panelists:

Dr. Charl Azar, Medical Director, Comprehensive Sickle Cell Disease Treatment Center at Mass General Hospital

State Representative Bud Williams, of the 11th Hampden district in Springfield AND Chairperson, Joint Committee on Racial Equity, Civil Rights, and Inclusion

Carissa Juarez, a mother of child living with sickle cell disease. She is also a Patient Ambassador for Massachusetts Sickle Cell Association.

Dima Hendricks, Health Advocate, Activist, Author, and a Sickle Cell “Warrior”

Crystal Haynes hosts.

  continue reading

179 에피소드

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icon공유
 
Manage episode 345774087 series 2649065
GBH에서 제공하는 콘텐츠입니다. 에피소드, 그래픽, 팟캐스트 설명을 포함한 모든 팟캐스트 콘텐츠는 GBH 또는 해당 팟캐스트 플랫폼 파트너가 직접 업로드하고 제공합니다. 누군가가 귀하의 허락 없이 귀하의 저작물을 사용하고 있다고 생각되는 경우 여기에 설명된 절차를 따르실 수 있습니다 https://ko.player.fm/legal.

This week on Basic Black we will be discussing sickle cell disease. It’s one of the most known inherited blood disorders that largely affects Black and brown people. A debilitating disease for those who have it, along with the strain on their families, sickle cell “warriors” live in constant pain. Life-threatening medical issues include stroke, eye damage, infection and pulmonary issues, making Covid very risky for those with sickle cell disease. Currently, the only cure for SCD is a bone marrow or stem cell transplant. Many companies are conducting clinical trials. Advocates hope there will be more focus and attention on SCD to increase services and ultimately find a cure.

Guest Panelists:

Dr. Charl Azar, Medical Director, Comprehensive Sickle Cell Disease Treatment Center at Mass General Hospital

State Representative Bud Williams, of the 11th Hampden district in Springfield AND Chairperson, Joint Committee on Racial Equity, Civil Rights, and Inclusion

Carissa Juarez, a mother of child living with sickle cell disease. She is also a Patient Ambassador for Massachusetts Sickle Cell Association.

Dima Hendricks, Health Advocate, Activist, Author, and a Sickle Cell “Warrior”

Crystal Haynes hosts.

  continue reading

179 에피소드

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