SMA: A Deep Dive – Pushing Limits – October 4, 2024

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How would you live your life if you knew you were going to die by the time you were 30? Would that affect the choices you make, the relationships you have, the way you look at every day?

Spinal Muscular Atrophy (SMA) is a degenerative neuromuscular condition that is the number one genetic killer of babies. It is extremely rare and the probability of being born with it is about 0.0001. On today’s program, we’re going to learn all about this disease that until recently was not even being tested for.

Joining us is a 25-year-old entrepreneur and social media influencer, Victor Guerra. Victor lives with type two SMA and has made it his life’s mission to be a successful entrepreneur and SMA advocate. We will be talking with him about what it’s like to live knowing you won’t live a “normal life” and that you probably will not live past 30 years old.

Want to learn more about SMA? You can do so here

This program is hosted and produced by Dominick Trevethan with editing assistance from Denny Daughters.

Links to Victor’s work:

SMA Victor – Youtube Channel

Victor’s Instagram account

Victor’s website

Victor Guerra

The post SMA: A Deep Dive – Pushing Limits – October 4, 2024 appeared first on KPFA.

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