The SEND Mum Club podcast

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Parenting Audioboom SEND Mum Club

Player FM - Internet Radio Done Right

추가했습니다 seventeen 주 전

Audioboom and The SEND Mum Club에서 제공하는 콘텐츠입니다. 에피소드, 그래픽, 팟캐스트 설명을 포함한 모든 팟캐스트 콘텐츠는 Audioboom and The SEND Mum Club 또는 해당 팟캐스트 플랫폼 파트너가 직접 업로드하고 제공합니다. 누군가가 귀하의 허락 없이 귀하의 저작물을 사용하고 있다고 생각되는 경우 여기에 설명된 절차를 따르실 수 있습니다 https://ko.player.fm/legal.

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All About Change

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All About Change podcast artwork

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Tiffany Yu — Smashing Stereotypes and Building a Disability-Inclusive World 30:23

12일 전30:23

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30:23

Tiffany Yu is the CEO & Founder of Diversability, an award-winning social enterprise to elevate disability pride; the Founder of the Awesome Foundation Disability Chapter, a monthly micro-grant that has awarded $92.5k to 93 disability projects in 11 countries; and the author of The Anti-Ableist Manifesto: Smashing Stereotypes, Forging Change, and Building a Disability-Inclusive World. As a person with visible and invisible disabilities stemming from a car crash, Tiffany has built a career on disability solidarity. Now that she has found success, she works to expand a network of people with disabilities and their allies to decrease stigmas around disability and create opportunities for disabled people in America. Episode Chapters 0:00 Intro 1:26 When do we choose to share our disability stories? 4:12 Jay’s disability story 8:35 Visible and invisible disabilities 13:10 What does an ally to the disability community look like? 16:34 NoBodyIsDisposable and 14(c) 21:26 How does Tiffany’s investment banking background shape her advocacy? 27:47 Goodbye and outro For video episodes, watch on www.youtube.com/@therudermanfamilyfoundation Stay in touch: X: @JayRuderman | @RudermanFdn LinkedIn: Jay Ruderman | Ruderman Family Foundation Instagram: All About Change Podcast | Ruderman Family Foundation To learn more about the podcast, visit https://allaboutchangepodcast.com/…

The SEND Mum Club explicit

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시리즈 홈•Feed

Audioboom and The SEND Mum Club에서 제공하는 콘텐츠입니다. 에피소드, 그래픽, 팟캐스트 설명을 포함한 모든 팟캐스트 콘텐츠는 Audioboom and The SEND Mum Club 또는 해당 팟캐스트 플랫폼 파트너가 직접 업로드하고 제공합니다. 누군가가 귀하의 허락 없이 귀하의 저작물을 사용하고 있다고 생각되는 경우 여기에 설명된 절차를 따르실 수 있습니다 https://ko.player.fm/legal.

The SEND Mum Club is a parenting podcast with a difference. Made specifically for parents with children with all kinds of additional needs and/or disabilities. It's a place to share the joys and challenges of raising children with extra needs, with raw, honest conversations, designed to make you feel seen and heard on a journey none of us expected to be on.

… continue reading

17 에피소드

#Parenting #Audioboom #SEND Mum Club

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The SEND Mum Club explicit

updated 5일 전

공유

시리즈 홈•Feed

Audioboom and The SEND Mum Club에서 제공하는 콘텐츠입니다. 에피소드, 그래픽, 팟캐스트 설명을 포함한 모든 팟캐스트 콘텐츠는 Audioboom and The SEND Mum Club 또는 해당 팟캐스트 플랫폼 파트너가 직접 업로드하고 제공합니다. 누군가가 귀하의 허락 없이 귀하의 저작물을 사용하고 있다고 생각되는 경우 여기에 설명된 절차를 따르실 수 있습니다 https://ko.player.fm/legal.

The SEND Mum Club is a parenting podcast with a difference. Made specifically for parents with children with all kinds of additional needs and/or disabilities. It's a place to share the joys and challenges of raising children with extra needs, with raw, honest conversations, designed to make you feel seen and heard on a journey none of us expected to be on.

… continue reading

17 에피소드

#Parenting #Audioboom #SEND Mum Club

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16: Steph Papas: Navigating An Extremely Rare Diagnosis of TARP Syndrome 39:23

5일 전39:23

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39:23

In this episode I speak to my first international guest, all the way from Australia! Steph Papas joins me to chat about her 2 year old son Archie who has the extremely rare genetic condition TARP syndrome. We discuss the emotional resilience needed to deal with a potentially life limiting diagnosis, the decision to delay telling more than a handful of people, and how difficult it is to find peer support with such a rare condition. Steph has such a beautiful outlook on how Archie’s diagnosis has changed her as a person, and the way in which it has made her live in the present instead of always planning ahead. Tags: TARP syndrome, rare genetic condition, SEN parenting, SEND parenting…

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15: Kelly Sadler: Living (and thriving) With A Limb Difference 48:36

12일 전48:36

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48:36

In this week’s episode I’m joined by Kelly Sadler to talk about her 10 year old son Kobi who was born with an upper limb difference – picked up at her 20 week scan. We discuss the need for medical professionals to be trained properly to deliver unexpected news and how she felt horribly anxious for the remainder of her pregnancy after receiving the diagnosis Kelly talks about how Kobi feels about his limb difference and what it holds him back from doing, but more importantly what he’s thriving at. We discuss representation in the media and how crucial that is, and Kobi’s breakthrough acting role in a huge Netflix hit show! Kelly mentions a couple of charities in this episode and you can find them below: www.reach.org.uk www.limbbofoundation.co.uk You can find the page Kelly runs for Kobi on Instagram here: www.instagram.com/k_o_b_i___s__/?hl=en Tags: limb difference, SEND, parenting…

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14: Father’s Day Special – Ben Anderson: A Dad’s Experience of a Diagnosis of Down Syndrome 56:01

20일 전56:01

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56:01

In this (slightly chaotic) episode, I speak to my husband Ben to get his version of our story with our son Leo who has Down syndrome. Ben shares his initial feelings when we got Leo's diagnosis and the ongoing journey of acceptance since. We talk about letting family and friends in and accepting support, and the important role therapy has played in his journey. We also speak about our differing opinions on the benefits of peer support from within the SEND community and why that might be harder for dads to seek out. This episode is very kindly supported by Positive About Down Syndrome. You can access all kinds of support and information on their website here: www.positiveaboutdownsyndrome.co.uk Tags: SEN, SEN parenting, additional needs, Down syndrome…

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13: Megan Gillett: Enduring A Terminal Diagnosis 47:43

26일 전47:43

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47:43

In this episode I'm joined by Megan Gillett to chat about her daughter Nellie, who has the terminal genetic condition Metachromatic Leukodystrophy (MLD). Although this is obviously an emotional chat I was blown away by Megan's positive attitude to life despite Nellie's diagnosis. We speak about the grief of finding out Nellie's condition is terminal, the decision to have another baby, and the logistics of genetic testing including the options open to you if you find yourself in that position. Megan speaks about the emotional journey of parenting a child with a degenerative disease, and the importance of cherishing memories and how they're going about that as a family. You can find Megan on Instagram @megan_mumma_sunshine The Just Giving link we talk about in the episode to support Chestnut Tree House Children's Hospice is here: www.justgiving.com/page/rory-gillett-london-marathon Tags: MLD, SEND, parenting…

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12: Abbie Bates: Advocating for Autism 42:48

5 weeks 전42:48

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나중에 재생

42:48

In this episode I'm joined by Abbie Bates talking about her daughter Harriet, who is nearly four years old and diagnosed with autism, global development delay, sensory processing disorder, and PICA. We talk about Harriet's journey to diagnosis, the differences between global development delay and learning disabilities, and the challenges of communication for non-verbal children. Abbie shares her experiences with an AAC device the importance of family support and understanding. You can find Abbie on socials @happyhandsharriet_asd…

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11: Shona Larrigan: A Recent Diagnosis of Prader-Willi Syndrome 1:04:27

6 weeks 전1:04:27

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1:04:27

In this episode I’m joined by Shona Larrigan, talking about her 8 month old baby Harry, who has Prader-Willi syndrome. We discuss the emotional impact of receiving a diagnosis, the importance of therapy and support, and the need to live in the present. Shona shares her experiences with public perception and the conversations surrounding Harry's condition, and her hope for the future with potential advances in medication. We also talk about trying to get the balance right between personal well-being and the desire to raise awareness, especially in the early days of your journey. This episode is released in Prader-Willi Awareness Month and if you need support with a diagnosis here are some helpful links including the one Shona mentions: Prader-Willi Association Ireland https://pwsai.ie/ Prader-Willi Association UK https://www.pwsa.co.uk/ Tags: Prader-Willi syndrome, new diagnosis, additional needs, new parent…

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10: Charlotte Hunt: Dealing with Divorce & Autism 1:01:59

7 weeks 전1:01:59

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1:01:59

This week’s guest is Charlotte Hunt who you might know from Instagram/TikTok as @twins_tides_and_autism_vibes. We talk about life with her sons Jude & Tommy who both have severe autism and how things have changed since Jude was born 17 years ago. Charlotte’s really honest about the breakdown of her marriage and how it felt navigating dating again as a SEND mum. We discuss introducing the boys to a new partner, going on to have (neurotypical) twin girls and how impactful their brothers’ autism has been on their family. We also talk about navigating friendships after having children with additional needs, and what you can do if you’re having struggles in that area. Tags: neurodiversity, autism, special needs, dating, divorce…

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9: Ebony Gilbert: The Long Road To Acceptance 1:02:43

8 weeks 전1:02:43

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1:02:43

In this episode, I’m joined by Ebony Gilbert talking about her journey as mum to George, who is blind, has autism and also brain damage from a stroke at birth. We talk about the struggle of true acceptance and what you have to let go of to get there, the joy of finding your own path that works for you and your family, and the challenges of communication without being able to use visual aids. Ebony also shares some great tools to help regulate yourself when things get tough, and the life-changing impact of dietary changes on George’s autism. Tags: blindness, autism, stroke, brain damage, communication, special needs, diet, neurodiversity…

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8: Kim Lucock: Advocating for Stoma Awareness 41:16

9 weeks 전41:16

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41:16

Kim Lucock is my guest this week, sharing the journey of her daughter Jessica, who has faced chronic bowel problems since birth. We talk about Jessica having stoma surgery and the impact it’s had on her life, and the complexities of navigating the education system with a child who has additional health needs. Kim talks about Jessica’s medical anxiety, the realities of living with a chronic condition, and small changes that can be made to public disabled toilets that can make a huge difference to people living with stomas. Kim and Jessica are great advocates for stoma awareness and you can find them on socials here: Facebook – Jessica’s Stoma Journey Instagram - @jessicasstomajourney X - @journeystoma Tags: bowel problems, stoma, parenting, chronic constipation, autisam, ADHD, special needs, stoma care, body image, medical anxiety…

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7: Claire Cathcart: From A Heart Transplant To An Autism Diagnosis 55:31

10 weeks 전55:31

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55:31

In this episode Claire shares her emotional journey navigating the complexities of her son Jake's cardiac issues, including a heart transplant, and the effects that had on her, and her daughter Daisy. She talks about how she coped with nearly losing Jake multiple times, and how a diagnosis of autism brought a whole new set of challenges. Claire also discusses her charitable work with Team 1C, which raises funds for children in need of heart surgeries, and supports families with children in critical care. You can find them on Instagram @weareteam1c and at www.team1c.org Some of what Claire has been through is quite traumatic so please bear this in mind when listening, particularly if you have a child with cardiac issues. The 2 North West based organisations Claire mentions that helped her and Jake are: Rebounders - @rebounderstherapycentre on Instagram The Neurodiverse Family Support Network (formerly Autism in Motion) www.neurodiversefamilysupport.org.uk Tags: genetic cardiac condition, heart transplant, autism, SEND, SEN, parenting…

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6: Amy Blackburn: Sharing the Beauty (and Challenges) of Down Syndrome 56:08

11 weeks 전56:08

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Amy Blackburn is my first guest talking about Down syndrome so this is a special one for me. In this episode Amy shares her journey of parenting her 6 year old son Remy. She discusses the emotional impact of receiving the diagnosis, the challenges of navigating day to day life, and what happened when her older children were told about Remy’s diagnosis by someone else without her consent. Our conversation delves into the realities of managing safety, education, and Amy’s worries for Remy as he gets older. We talk about Amy’s experiences with social media, good and bad, and why it’s so important to raise awareness. Tags: Down syndrome, parenting, danger awareness, DLA, SEND…

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5: The SEND Mummies: Helping Fellow Parents On Their SEND Journeys 43:08

12 weeks 전43:08

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This week I’m joined by Jemma and Lisa, aka the SEND Mummies, sharing their experiences as parents of children with additional needs while running a business helping other families. They talk about their personal journeys, the challenges they face, and the importance of community support. We discuss the difficulties of navigating the SEND landscape, including the difficulties with DLA and EHCP processes, and the emotional weight of advocating for their children. Jemma & Lisa talk about their coping mechanisms for overwhelming days, the grief that can accompany the journey, and how far into the future each of them are happy to think. You can find The SEND Mummies on Instagram & TikTok @SENDMummies or online at www.sendmummies.co.uk Tags: autism, DLA, EHCP, neurodiversity, awareness, disability benefits, pica, echolalia, global development delay…

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4: Jodie Morgan: Navigating Cystic Fibrosis & Autism 53:06

13 weeks 전53:06

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In this episode I’m joined by Jodie Morgan, who shares her journey as a mother of two boys, Layton and Brooklyn, both with very different diagnoses. Layton has cystic fibrosis, a genetic condition that affects his lungs and pancreas, while Brooklyn has autism. Jodie discusses the emotional impact of their diagnoses, the routines they manage, and clever ways they’ve found to keep Layton motivated with his daily physio. Jodie talks about her decision to have another child, considering the implications of CF, and how she approaches parenting with a positive attitude to understanding and supporting her children's unique needs. Tags: Cystic Fibrosis, CF, Autism, Parenting, Fitness, Health Management, Cystic Fibrosis, Stroke…

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3: Sam Young: Spreading Awareness About Autism 36:18

14 weeks 전36:18

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36:18

In this episode Sam Young shares her journey as a mother to 5 year old Nina who has autism. Sam discusses the challenges and joys of parenting a child on the spectrum, the importance of community support, and the role of social media in connecting with other parents. She reflects on the diagnosis process, the need for better resources, and the emotional complexities of planning for the future. Sam emphasizes the significance of advocacy and education, both for her daughter and for raising awareness in society. You can find Sam on Instagram @samninawolf Tags: autism, parenting, special needs, diagnosis, advocacy, speech & language therapy…

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2: Polly Hazlewood: Parenting Twins with a Rare Genetic Condition 50:22

15 weeks 전50:22

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In this episode, Polly shares her journey parenting 5 year old twins Fox & Lili Rose who have a genetic condition so rare that no one else in the world has it. We talk about their long stay in the NICU, finding support from others on a similar journey and how important that is, and the resilience her situation has given her. We discuss learning to stay in the present and the beauty of finding joy in small moments. Polly is really open and honest in this emotional chat, and mentions the book Unique by Melanie Dimmitt and the charity Unique that both really helped her. Links for both are here: www.rarechromo.org https://amzn.eu/d/iJvByTW Tags: motherhood, NICU, twins, IVF, parenting, emotional journey, genetic condition, special needs, ableism…

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The SEND Mum Club

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1: Receiving A Diagnosis of Down Syndrome 36:24

15 weeks 전36:24

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36:24

Welcome to The SEND Mum Club podcast! In this first episode I talk about my journey after finding out my son Leo has Down syndrome. I reflect on the feelings I had waiting for the test results to come back, the moment we received his diagnosis and the path I’ve been on since. I’m very honest about the wide ranging emotions I had (and still have sometimes) as I want this podcast to be a safe space for my future guests to open up about all aspects of raising a child with additional needs while also celebrating the absolute joy our children bring us, and the whole new world they’ve opened our eyes to. This episode is supported by Positive About Down Syndrome, you can find out more about this amazing charity here www.downsyndromeuk.co.uk Tags: down syndrome, additional needs, diagnosis, trisomy 21, extra chromosome…

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The SEND Mum Club

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The SEND Mum Club Trailer 1:03

17 weeks 전1:03

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1:03

The SEND Mum Club launches on 21st March. Make sure you're following so the episodes automatically download

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