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Welcome to the Special Needs Kids are People Too! Podcast with Amy Bodkin, EdS. Amy is an Autistic adult who also happens to be a School Psychologist turned Special Needs Consultant and Public Speaker! Amy is an Advocate for seeing every child as a person, not a diagnosis because a special needs kid is just like any other child, just more so! You can find out more about Amy’s advocacy work at AmyBodkin.com.
 
Welcome to Thriving in the Midst of Chaos! This show is about surviving parenthood while having a child with special needs, while attempting to keep your self and your sanity intact. We share our experiences and discuss how we survived, what worked for us, and what didn’t work for us. This is a nonjudgmental space, to realize that we all actually WILL live through this and to make thriving in parenthood an actual possibility. We will also be sharing fails, nails, and comical tales, as well a ...
 
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show series
 
Episode 108: Learning An Instrument When One Has Special Needs With Guest Delwyn McKenzie In this episode, Delwyn McKenzie discusses the usefulness of learning an instrument for children with special needs. She grew up playing instruments, and made sure her children learned instruments, too. Early on in her childhood, her daughter was diagnosed wit…
 
I have had the privilege of knowing some pretty fantastic teachers!! But for all of us who are part of an IEP team – whether we are a teacher, parent, administrator, advocate, etc. – it is essential that we make certain that each child's IEP does what it was intended to do: guarantee children that we are prepared to provide them the support they ne…
 
Episode 107: Promoting Reading In Children With Learning Disabilities With Guest Dr. Maria Cleary In this episode, Dr. Maria Cleary discusses reading literacy and and the importance of continuing to read throughout childhood. Her daughter was showing learning delays when she was young and was found to have left-brain hemiatrophy. Her daughter did w…
 
Episode 106: Using Summer To Create An Amazing School Year With Guest Dr. Laura Reber In this episode, guest Dr. Laura Reber discusses maximizing your summer to help your child with the school year. She discussed the importance of learning executive functioning skills. To help transition from school to summer, keep schedules similar (meals, sleep, …
 
Episode 105: Bassie Shemtov's Experience Creating Inclusive Communities and Employment Opportunities In this episode, guest Bassie Shemtov discusses how to create friendship and inclusion in the community. She and her husband began their career by working in the addictions community. However, Bassie didn't feel as if they were offering everything t…
 
Episode 104: Alexa Bigwarfe's Experience of Twin-To-Twin Transfusion, Infant Loss, and Transformation Through Writing In this episode, Alexa Bigwarfe discusses her experience with twin-to-twin transfusion syndrome and child loss. During her third pregnancy, she should have been followed as a high risk pregnancy with a maternal fetal medicine doctor…
 
Words are Power: The Importance of Examining the Language We Use Have you ever wondered why I titled my podcast "Special Needs Kids are People Too" when there is a push to stop using terms like "Special Needs"? There is a reason!! Find out in this episode! Show notes at: https://amybodkin.com/podcast-episode-10…
 
Episode 103: Raising a Child with STXBP1 With Guest Chloe Weber In this we discuss rare genetic disorder called STXBP1. Guest Chloe Weber’s son Remy has a rare genetic disorder called STXBP1. This condition affects syntax and binding protein. For these individuals, their bodies don’t make enough of the protein,the protein is misfolded, and the prot…
 
Episode 102: Spinal Muscular Atrophy And ADHD With Guest Trudy Citovic In this episode, guest Trudy Citovic discusses raising a child with spinal muscular atrophy. Her daughter, Alina, was diagnosed with SMA when she was 5 years old. She never lost any skills but started experiencing weakness and less stamina. She was about to lose skills when she …
 
Episode 101: Raising A Micropreemie Who Uses A Feeding Tube With Guest Gaby Grinberg In this episode, guest Gaby Grinberg discusses prematurity, NICU stays, and feeding journeys. Her daughter Lana Rose was born at 24 weeks gestation, weight 11 ounces. There was no initial sign that she would go into labor early, as her pregnancy was pretty normal. …
 
Episode 100: Raising a Child With Spinal Muscular Atrophy With Guest Megan Fabrizi In this episode, guest Megan Fabrizi discusses raising children with spinal muscular atrophy. When Liam was born, he was having difficulty regulating his temperature. He wasn’t moving his body. At his 4 month visit, he was diagnosed with hypotonia. The pediatrician w…
 
Episode 99: Raising a Child With Multiple Complex Medical Conditions With Guest Tammy Flynn In this episode, guest Tammy Flynn discusses raising children with complex medical conditions. Her son Marcus has numerous complex medical conditions, including Ehlers Danlos syndrome, Sherman’s kyphosis, EOE (eosinophilia of the esophagus), a bleeding disor…
 
Episode 98: Dafne Wiswell's Story of Raising Children With Type 1 Diabetes and Ankylosing Spondylitis In this episode, Dafne Wiswell discusses her son’s experience with Diabetes Type 1 and her daughter’s experience with juvenile arthritis and Ankylosing Spondylitis. Her son was diagnosed with Diabetes when he was 2. He started having accidents, dri…
 
Episode 97: Raising a Child With Marfan Syndrome With Guest Allison Pullins Episode 29: Raising a Child With Marfan Syndrome With Guest Allison Pullins In this episode, Allison Pullins discusses her experience raising a child with Marfan Syndrome. James was diagnosed with this connective tissue disorder when he was 2 years old. He experiences an ao…
 
Episode 96: Alternative Childcare Solutions With Guest Shannon Parola In this episode, guest Shannon Parola discusses alternative child care options for families with special needs children. During COVID-times, child care has been very tough to find, and often not safe. Shannon discusses that there are numerous options for care for children, includ…
 
Who gets to decide which people have value and which don't? Who gets to decide what kinds of diversity are acceptable and what kinds aren't? What would happen to our creativity and ingenuity as a society if we prevent the existence of certain types of diversity? What happens to our well-being as a society when we choose to exclude people in our liv…
 
Episode 95: Dawn Veselka's Story of Raising a Child With Mixed Connective Tissue Disease In this episode, guest Dawn Veselka discusses her experience raising a daughter with a mixed connective tissue disorder. Her mix is juvenile arthritis, scleroderma, Raynaud’s and dermatomyositis. Sadie’s triggers are exposure to viruses, sunlight, and certain f…
 
Episode 94: Building Independence in Your Children With Special Needs With Dr. Sarah Allen In this episode, we discuss developing and promoting independent skill building in children with special needs. Guest Dr. Sarah Levin Allen, AKA The Brain Gal, discusses ways to minimize anxiety in children with autism. She also provides tips for how to help …
 
I had the opportunity to talk this week with Amber O'Neal Johnston from Heritage Mom - Homeschooling Children With Mirrors and Windows about diversity and neurodiversity!! This is a topic that is very important to me, and I love Amber's story and her message! We need mirrors in our lives to reflect what is beautiful about who we are, but we also ne…
 
Episode 93: Raising a Micropreemie With Autism With Guest Melissa Harris In this episode, we discuss a mother’s experience raising a micropreemie. Melissa Harris has two children, one of whom was born at 24 weeks gestation. She found that she had a bincorniate uterus, and had to undergo several surgeries to fix the problem. While trying to become p…
 
I am planting my flag on the side of ABA Reform with this episode. It's the release of our highlights reel from our ABAI symposium, Toward Applied Behavior Analysis Reform: What It Means to "Do No Harm." Generally speaking, people don't go into a service profession hoping to hurt other people, but we do need to constantly be checking ourselves. Whe…
 
Episode 92: Sensory Processing Disorder With Guest Candice Curtis In this episode, we discuss sensory processing disorder, meltdowns, and making it all work. Guest Candice Curtis’s, OT, oldest son is autistic. Throughout her training, she began to gravitate toward occupational therapy and sensory processing disorder. There are 8 different sensory s…
 
This podcast is all about healing trauma through yoga and how it was helpful in my healing journey. I also discuss common misconceptions about yoga, it's history, and it's underlying philosophy and connection to world religions and philosophies. For show notes and resources, go to: https://amybodkin.com/podcast-episode-5…
 
Episode 91: The Science Of Mindfulness, Self-Compassion, The Joy of Living, and Positive Psychology, With Guest Dr. Rabia Subhani Today, we discuss mindfulness, self-compassion, the joy of living, and positive psychology. Guest Dr. Rabia Subhani trained and worked as a pediatric neuropsychologist. However, after she had a child with autism, she fou…
 
In this episode I discuss the specific ways we can support children to help them process trauma and move forward in a positive direction. 1) We have to reduce pressure and provide positive support. Maslow's Hierarchy of Needs gives us a great map on how to do this. All we have to do is identify where we are and what we need to take the next step up…
 
Episode 90: Successfully Navigating College With Autism, Part 3 To help with the transition to college, work on independence at home, bit by bit, select the goal with the student and start with the easiest one, rather than the hardest or most importance, then build up from there. Incorporate a reward system into the mix. It is helpful to help the c…
 
Episode 89: Successfully Navigating College With Autism, Part 2 In this episode, we continue our discussion of everything college for teens and young adults with autism. Guest Dr. Matt Segall discusses how to decide on the type of college that is right for the teen with autism. When deciding on the type of college to choose, pay the most attention …
 
I did not receive my Autism diagnosis until my children were being diagnosed, and it took me a while to be ready to receive those diagnoses. When we did finally receive those diagnoses, we had a lot of challenges to work through—from finding the right supports for my youngest, who was also Hyperlexic, to addressing the health challenges that result…
 
Episode 88: Successfully Navigating College With Autism, Part 1 In this episode, we discuss everything college for teens and young adults with autism. Guest Dr. Matt Segall discusses that nowadays, many teens with autism are going to college. However, a low number of them graduates. Those who do graduate tend to have a higher academic ability, good…
 
Episode 87: All Things Physical Therapy With Guest Lucia Montuonto In this episode, guest Lucia Matuonto discusses physiotherapy! Physical therapists (PTs) work in rehabilitation and accident prevention. Their goal is to improve the patient’s quality of life. A child needs a PT when there are developmental delays, the child is not meeting milestone…
 
Welcome to the first episode of Special Needs Kids are People Too! My core mission is that every special needs child should be seen as a person, not a diagnosis – because a special needs kid is just like any other child, just more so! So today I will be talking about my Autistic childhood and how it might help you see behavior in a new light. Often…
 
Episode 86: Fostering and Adoption Journeys With Children With Special Needs With Guest Daniel Hall In this episode, Daniel Hall discusses adoption and special needs. He and his wife have 5 children with special needs of varying degrees. Conditions ranged from Autism, drug exposure, Fetal Alcohol Symptoms, slowed processing speed, Reactive Attachme…
 
Episode 85: Infant Feeding Challenges With Guest Mallory Millet In this episode, Mallory Millet discusses feeding difficulties in infants and young children. Her three children experienced their own feeding difficulties, including difficulty nursing and reflux. She shared their stories. She noted that both speech therapists and occupational therapi…
 
Episode 84: Divorce and Special Needs Children With Guest Jackie Harounian In this episode, we discuss divorce while having children with special needs. Guest Jacqueline Harounian, Esq, has found that her field has become very busy during COVID, with an increase in fighting, domestic violence, mental health issues, and substance abuse leading to di…
 
Episode 83: Momming With Autism With Guest Alicia Trautwein In this episode, we discuss raising children with special needs and different diagnoses. Alicia Trautwein has 4 children, 3 of whom are autistic. Alicia was diagnosed with autism at age 33, after her children were formally diagnosed. She knew that something was different about herself but …
 
Bonus Episode: Special Needs Superheros with Guest John Besold In this episode, we discuss special needs superheros. Guest John Besold always believed in helping others, but when he experienced polymyosistis in 1999, his eyes were opened to the special needs world, during his several weeks hospital stay. His experience inspired him to write SPARQE.…
 
Episode 82: Adoption Of Special Needs Children with Guest Dr. John Cranham In this episode, Dr. John Cranham discuss adoption of special needs children. His son Cornell was born at 23 weeks. He spent the first 6 months of his life on a ventilator and trached before moving to a transitional unit. John’s wife initially worked with Cornell in the hosp…
 
Episode 81: All About Dyslexia With Guest Lizzie Shearing Today, we discuss all things dyslexia. Guest Lizzie Shearing discusses that dyslexia is a reading learning disability. Individuals process written words differently in their brain, such that they rely on the left frontal lobe, rather than more on the left posterior areas of their brain. They…
 
Episode 80: LGBTQ In the Autism Community With Guest Danielle Sullivan In this episode, Danielle Sullivan discusses the gender and sexuality spectrum in the autism community. LGBTQ is very common in the autism community. There is also a high number of individuals who are autistic in the LGBTQ community. Individuals in the LGBTQ community have a hig…
 
Episode 79: Living With Autism While Parenting Special Needs Kids With Guest Danielle Sullivan In this episode, we discuss inclusivity, organizational tools for special needs parents, and living as a parent with autism. Guest Danielle Sullivan discusses that all places should be as accessible and inclusive as possible, even for invisible disabiliti…
 
Episode 78: A Blind View With Guest Ashley Wayne In this episode, Ashley Wayne discusses parenting children with special needs through the lens of blindness. Ashley was born blind, as were her two older children. Her son also has cerebral palsy. She was initially worried about how she would be able to parent while blind. However, no one else appear…
 
Episode 77: Shaping Our Children Through Reading With Guest Sara Bradford In this episode, guest Sara Bradford discusses how children can benefit from reading children’s books about special needs. Her daughter has dyslexia and her older two children, as well as her husband, have autism. She discussed finding out during quarantine that her younger d…
 
Episode 76: Live Like Sean With Guest TJ Nelligan In this episode, we discuss living like Sean; living your best life. When Sean was young, he was diagnosed with an intellectual disability. Guest TJ Nelligan initially began mourning the child he thought he was going to have. After that, life got busy managing doctor appointments, medications, and t…
 
Episode 75: Hypoplastic Left Heart Syndrome With Guests Dr. Thomas Glenn and Tawanna Nishibayashi In this episode, we discuss hypoplastic left heart syndrome. Dr. Thomas Glenn discussed that the condition is a congenital heart disease where the left side of the heart is underdeveloped. Nowadays, a diagnosis is done prenatally, but once kids are bor…
 
Episode 74: Special Education Law During Covid With Guest Catherine Michael In this episode, we discuss special education law during COVID. Guest Catherine Michael, a special education lawyer, discusses that IEPs and services should not look different during COVID and that all services still need to be provided, although they may be offered in a sl…
 
Episode 73: Special Education Services Across The World With Guest Jodi Samuels In this episode, we discuss schooling across two continents for children with special needs. Jodi Samuel’s daughter Caila first began schooling in NYC schools, where she was provided with extensive services through the state. She was lucky in that all of her therapies w…
 
Episode 72: Free and Appropriate Public Education With Guest Dr. Steve Jacobson In this episode, we discuss evaluations, FAPE, LRE, nonpublic placements, and giftedness. Guest Dr. Steve Jacobson suggests that if a parent feels something is wrong in the schools, they should talk to the teachers, then request a comprehensive evaluation in writing. Th…
 
Episode 71: Online Speech Therapy With Guest Leanne Sherred In this episode, we discuss speech therapy in times of COVID for kiddos who are verbal or nonverbal. Guest Leanne Sherred created Expressable, an online speech therapy company, to provide easier access to speech therapy. Speech therapy online is very similar to in-person speech therapy, bu…
 
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