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In this podcast series, we bring together leading physicians, patients and patient advocates from Europe and Israel to discuss topics that are important for patients with pulmonary fibrosis. Each of the episodes will address a specific topic with the overarching objective to provide support to patients throughout the different stages of their journey.
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While the focus is often on taking care of one’s physical well-being, the challenges of living with a chronic disease can take a tool on people’s emotional health. But it is important to know that you as a patient is not alone and that a variety of resources are available to help patient maintain a positive mindset. In this episode of “Spotlight of…
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There are various actions patients with pulmonary fibrosis can take to manage their symptoms and help them live their life to the fullest. While pharmacological treatments are an important tool there are many things that patients can do to manage their health. In this episode of Spotlight on Pulmonary Fibrosis, we are joined by pulmonologist Dr. Ra…
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Receiving a diagnosis is a key step on the patient journey, but what happens next? Based on the patient characteristics the physician will prescribe a pharmacological treatment, but it can be challenging to understand how it works and how it together with the disease itself might impact their lives. In this episode of “Spotlight of Pulmonary Fibros…
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Episode 4: Recognising the Signs – Early Diagnosis of IPF
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31:58
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31:58
There are many types of pulmonary fibrosis, including Idiopathic Pulmonary Fibrosis (IPF). However, the journey towards a diagnosis of IPF is not always straight forward and it can also be difficult to understand the diagnostic process. In this episode of “Spotlight of Pulmonary Fibrosis”, we hear from Patient A.M. an IPF patient from Bulgaria, Dr.…
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Episode 3B: Recognising the Signs – Early Diagnosis of Scleroderma
23:59
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Connective Tissue Diseases (CTD) are disorders that exhibit autoimmune-meditated damage to various organs, one type of CTD is Scleroderma, also known as Systemic Sclerosis. Pulmonary Fibrosis is a lung manifestation that can develop in patients with Scleroderma. In this episode of “Spotlight on Pulmonary Fibrosis in Connective tissue Disease” we wi…
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Episode 3A: Recognising the Signs – Early Diagnosis of Scleroderma
27:15
27:15
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27:15
Connective Tissue Diseases (CTD) are disorders that exhibit autoimmune-meditated damage to various organs, one type of CTD is Scleroderma, also known as Systemic Sclerosis. Pulmonary Fibrosis is a lung manifestation that can develop in patients with Scleroderma. In this episode of “Spotlight on Pulmonary Fibrosis in Connective tissue Disease” we wi…
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Over the past 2 years the COVID-19 pandemic has in many ways had a profound impact on our lives, and this is especially true for patients living with pre-existing lung diseases such as pulmonary fibrosis. In this episode of Spotlight on Pulmonary Fibrosis, we hear from Dr. Veronika Müller, a pulmonologist from Hungary, and Olga Drapalova, a patient…
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Episode 1: Finding the Right Specialist for My Condition
31:34
31:34
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A diagnosis is the first step on a patient’s journey. For those facing a future with Pulmonary Fibrosis, the first thing you need to do is find the right specialist that can offer tailored and personalised support, but this process can be both challenging and hard to navigate. In this episode of “Spotlight on Pulmonary Fibrosis,” we hear from Dr. K…
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