최고 Pep Talks 팟캐스트 (2024)

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Onions, pop culture & sea-gazing: How being an 'outsider' brings emotional resonance to the science of patient engagement 20:38

5d ago20:38

20:38

In this episode, Emma interviews Rasmus, the head of communication at James Lind Care, a clinical trial research organization. Rasmus discusses the challenges of patient recruitment for clinical trials, emphasizing the need for increased awareness, education, and simplified communication. He shares insights on his role in bridging the gap between p…

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Patient Research Partners with Sandra Zelinsky (EP 2) 35:54

6d ago35:54

35:54

Send us a text저자 AbSPORU Patient Engagement Team with Host Sandra Zelinsky

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Ep 80: Resilience Through Research (Pt 3) w/ Jennifer Coates 52:12

7d ago52:12

52:12

Visit glögg glögg, a POP up ART sale, Dec 13-14 in Woodstock NY: ⁠website⁠ or ⁠IG⁠ --------------- Artist, Jennifer Coates is back for Part 3 in our series about finding artistic resilience through research! This time we look at these artists and how they adapted to their own gloomy times of foreboding: Kay Sage: Found a way to paint even though sh…

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Three Things 7:38

22d ago7:38

7:38

Sometimes events can bum us out, big things out of our control. In that case, let's focus on what we can manage. In this episode, which happens to take place on the sidelines of a community football match, Ryan lays out three things that you can focus on to help you power through.저자 Ryan Millar

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Careful and Kind Care For All with Dr. Victor Montori (EP 8) 40:58

6d ago40:58

40:58

Send us a text저자 AbSPORU Patient Engagement Team with Host Sandra Zelinsky

1
The Power of Storytelling Through Photovoice with Anna Anastasiou & Dr. Dave Campbell (EP 9) 29:25

6d ago29:25

29:25

Send us a text저자 AbSPORU Patient Engagement Team with Host Sandra Zelinsky

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The Value of Experiential Knowledge in Patient-Oriented Research with Nicolas Fernandez (EP 10) 38:54

6d ago38:54

38:54

Send us a text저자 AbSPORU Patient Engagement Team with Host Sandra Zelinsky

1
Partnering in Chronic Kidney Disease Research with Mary Beaucage (EP 11) 31:29

6d ago31:29

31:29

Send us a text저자 AbSPORU Patient Engagement Team with Host Sandra Zelinsky

1
Ep 79: Resilience through Research (Pt 2) w/ Jennifer Coates 1:01:47

7d ago1:01:47

1:01:47

Visit glögg glögg, a POP up ART sale, Dec 13-14 in Woodstock NY: website or IG --------------- What can an artist do during times of political unrest and instability? In this episode (Part 2 of our series), we aim to find out. Jennifer Coates joins me again to share some stories from the past of how artists coped throughout history, because somehow…

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Ep 78: Resilience through Research (Pt 1) w/ Jennifer Coates 1:03:57

15d ago1:03:57

1:03:57

Jennifer Coates, friend of the pod, is back to help me consider a new way forward (artwise) after the destabilizing event of the US election. She, herself, is finding comfort in the long history of rocks, geology and the cosmos, while I find myself turning to a book about how Matisse and his daughter, Marguerite, both reacted to the trauma of WWII …

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Bonus Ep: The Canopy Program with Catherine Haggarty 35:53

16d ago35:53

35:53

This bonus episode is a promotion for NYC Crit Club's "The Canopy Program" 2025, a year-long mentorship community for artists. Founder and artist, Catherine Haggarty, stopped by the pod to tell me more about what the program offers, who it's for, and which artists she has on deck to lead the cohorts next year. Applications for The Canopy Program ar…

1
RePORT Patient Advisory Council: Part 2 with Kim Giroux, Anni Rychtera, and Nancy Verdin 1:07:32

26d ago1:07:32

1:07:32

Send us a text Episode Introduction In this episode, Part 2 of 2, we explore how deliberate and flexible strategies can create an ecology of inclusiveness, support, mutual respect, and co-building for meaningful patient engagement in health research. Patient Research Partners are integral members of the team, informing project design, participant r…

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Strive4Five with Steve: Core skill sets for honest and empathic patient advocacy 21:31

1M ago21:31

21:31

In this episode of Pep Talks, Emma interviews Steve Clark, a cancer survivor and patient advocate. Steve shares his journey from diagnosis to founding Strive for Five, a non-profit focused on providing hope to others with cancer. He discusses the importance of effective communication between patients and doctors, the nocebo effect, and the bio-psyc…

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Shared Vision with Lisa Ridgway (EP 6) 18:36

1M ago18:36

18:36

Send us a text저자 AbSPORU Patient Engagement Team with Host Sandra Zelinsky

1
Enhancing Person-Centred Care with Dr. Kimberly Manilili (EP 12) 32:49

1M ago32:49

32:49

Send us a text저자 AbSPORU Patient Engagement Team with Host Sandra Zelinsky

1
Ep 77: Interview w/ Artist, Kristen Mills 1:37:25

1M ago1:37:25

1:37:25

I'm back in the interview seat with Kristen Mills, an artist working in video, sculpture and installation. We discussed her latest show at Turley Gallery where she covered an entire room with cardboard and made it into a spaceship cockpit. Her video work features clones of herself, multiplied, and combines humor and old school editing techniques to…

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Re-Purposing the Ordering of Routine laboratory Tests (RePORT) Study: Part 1 with Anni Rychtera and Dr. Anshula Ambasta 55:27

1M ago55:27

55:27

Send us a text Episode Introduction In this episode, we talk about the Re-Purposing the Ordering of Routine laboratory Tests (RePORT) study, which is being conducted and implemented in Alberta and British Columbia. Hospitals frequently conduct routine blood tests, which not only cause patient discomfort but also significantly contribute to healthca…

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Ep 76: Feeling Witchy 6:16

1M ago6:16

6:16

Dear Listeners, it's spooky season. In that spirit, I offer you this mini episode about taking a mini break from the career grind. Why not instead light a spell candle while getting clear on what we really want? Shelve the "should's" for a bit and get witchy with me. The ending "Goodbye!" (with cacophonous lighting zaps) is Bette Midler from the mo…

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Fighting for patients in everyway: Stacy Hurt is out there, every day, making patient engagement matter. 20:12

2M ago20:12

20:12

Stacey Hurt, Chief Patient Officer at Parexel, shares her journey and role in a PEP Talk podcast sponsored by Medscape. As a stage four colorectal cancer survivor and caregiver to her son with profound disabilities, Stacey brings authenticity and a unique perspective to her position. She emphasizes the importance of patient engagement in clinical t…

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Are you the 100% mindset person 6:29

2M ago6:29

6:29

Mindset of No Regrets

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From scientist to strategist: Dr Victoria Harvey-Jones is on a mission to humanise healthcare 14:03

2M ago14:03

14:03

In this PEP Talk we hear from multi academic award winning cancer researcher, Victoria Harvey-Jones, about the three 'Rs' that we must address to improve communications between doctors and patients; and why the white paper she co-authored with other leaders is a game changer to humanise healthcare communications. Patient centricity to Integration: …

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Ep 75: Burchfield's Constant Leaf 7:51

2M ago7:51

7:51

Charles Burchfield (Chas to his friends) once noted how an oak leaf had fluttered down and stuck upright in the snow in his neighbors yard, like a flag, for the entire winter. It weathered many Buffalo "gales" and storms and thereafter Burchfield used it as a personal symbol of steadfastness. In fact its alternate title is "Steadfast Leaf." The pai…

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Love yourself first! 1:57

2M ago1:57

1:57

💬 Send us a text! (Yes really!) There’s a great quote from Lucille Ball that goes “Love yourself first, and everything else falls into line.” That for sure has been my personal experience with stepparenting. (And really, with life in general.) As stepparents, we talk a LOT about loving our stepkids, about loving our partners and our blended familie…

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The stigma against stepparents. 1:25

2M ago1:25

1:25

💬 Send us a text! (Yes really!) Society really doesn’t like stepparents, so coming into this role can feel intimidating. Or like we have something to prove, like we are NOT like those bad stepparents. We’re the GOOD stepparents. But do not let society or the ex or even your partner try to marginalize you or the stepparenting role. Our role as stepp…

1
Pick your battles. 1:39

2M ago1:39

1:39

💬 Send us a text! (Yes really!) My stepkid had a real thing for ketchup when she was younger, borderline addiction. I’m talking, putting-ketchup-on-lasagna level of ketchup. She also had problems with acid stomach and wasn’t supposed to be eating too much tomato-based things. Dan sometimes remembered to limit her ketchup intake, but mostly not. The…

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Stepparents have needs too. 1:18

3M ago1:18

1:18

💬 Send us a text! (Yes really!) Becoming a stepparent does not negate the needs and feelings we have as individuals. And yet, so many of our partners seem to think we shouldn’t have those needs or feelings… or at least that we should be perfectly content putting ourselves and our relationship needs dead last, apparently forever. This is not sustain…

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From Photographer to Professor: With a few detours along the way 22:40

3M ago22:40

22:40

Hear how Lara Bloom became the first Associate Professor of Patient Engagement Practice and built the Ehlers Danlos Society courtesy of a chance meeting in an art gallery. In this episode of "Pep Talk," Lara shares her journey from a career in photography to becoming a leading advocate for Ehlers-Danlos syndrome (EDS) and patient engagement. She di…

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Finish that thing (Iets bijzonder) 17:24

3M ago17:24

17:24

Ryan talks the importance of finishing work, and to prove the point he shares a rap song he made a few years ago, that actually turned out to be pretty good. Finish your things. Not all of them, of course.저자 Ryan Millar

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What’s “normal” in a stepfamily? 1:17

3M ago1:17

1:17

💬 Send us a text! (Yes really!) Since most of us have never been stepparents before, learning to recognize what's typical for life in a stepfamily vs. what's a red flag is a bit of a learning curve. For example, it’s normal for your stepkids to act out because they're kids and life in two homes is tough and they don’t like a stepparent’s rules. It’…

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Blending your family takes time. 2:02

3M ago2:02

2:02

💬 Send us a text! (Yes really!) If you think your blended family will never feel like a "real" family, first of all you’re not alone. But secondly, don’t give up! It’s officially autumn here in the northern hemisphere right now, the air is getting colder and the world is getting quieter as the birds head south and critters start hibernating. Fall i…

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Bonding with alienated stepkids. 1:05

3M ago1:05

1:05

💬 Send us a text! (Yes really!) Parental alienation affects your stepkid’s ability to form loving bonds… including bonding with their stepparent. Alienated kids can develop a specific set of characteristics that also make them hard to warm up to... like acting cold, rejecting you & your partner, lying between houses, and many more than I could shar…

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Stepparenting burnout. 1:03

3M ago1:03

1:03

💬 Send us a text! (Yes really!) Stepparents, if you're feeling stressed out and frazzled, please know that you're allowed to TAKE. A STEP. BACK. Burning yourself out only makes it that much harder to stay grounded and sane. Two things you kinda sorta really need if you wanna to keep your head above water while you're blending your family! We live i…

1
Finding stepparenting support. 1:38

3M ago1:38

1:38

💬 Send us a text! (Yes really!) For inexplicable reasons, many of the people around stepparents seem to think that we shouldn’t feel stressed or overwhelmed by this role just because we chose this — because we knew our partners had kids. When a person feels stressed about starting a new job, no one says "Well, you applied for this position. YOU kne…

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Can’t win over your stepkid? 2:13

3M ago2:13

2:13

💬 Send us a text! (Yes really!) Again and again and again I'd try to win my stepkid over. I followed all the usual stepparenting advice: show an interest in their interests, take it slow, try not to take their rejection personally. And nada. Zilch. Nothing. I started getting desperate. I thought I could get her to like me if I acted differently. So…

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Stepkids need parenting. 1:27

3M ago1:27

1:27

💬 Send us a text! (Yes really!) It shouldn’t be a newsflash to say kids of divorce still need parenting… AND YET, that is the topic of today’s pep talk. A child's parents not being together anymore does not negate the reality that kids need structure. They need a regular routine. They need guidance from the adults around them. All of this helps kid…

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You don’t have to prove yourself. 1:16

3M ago1:16

1:16

💬 Send us a text! (Yes really!) It's human nature to want to defend yourself against false accusations, fight for equality and justice, and right the wrongs you see. It's also human nature to think to yourself "If I can just show them that I'm not the bad guy" and believe that'll somehow fix everything. But you don’t have to prove yourself to the e…

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Stepparenting feels hard because it’s hard. 1:29

3M ago1:29

1:29

💬 Send us a text! (Yes really!) Stepparenting in a nutshell reads like one long list of confusing contradictions. You’re supposed to be involved, but not so much so you’re overstepping. You need to give your stepkids space, but not so much that it seems like you don’t care. You need to be realistic about the role you’re taking on as a stepparent, y…

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Co-parenting in a toxic cycle. 1:00

3M ago1:00

1:00

💬 Send us a text! (Yes really!) Let me know if this cycle sounds familiar: The ex makes a unilateral co-parenting decision >> that decision interferes with your parenting time or otherwise conflicts with your morals, ethics, and values >> they know this and move ahead anyway >> you decide enough is enough and say you're not going along with it >> t…

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Self-care boundaries for stepparents. 0:54

3M ago0:54

0:54

💬 Send us a text! (Yes really!) When we've become way too used to compromising our own values, beginning to say no sometimes can feel selfish. Boundaries and self-care can feel selfish. Prioritizing our mental health isn’t selfish, though; it’s us returning to ourselves after way too much time spent erasing our voice in an attempt to keep the peace…

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Being a kid person vs. being a stepparent. 1:30

3M ago1:30

1:30

💬 Send us a text! (Yes really!) Has anyone else noticed that way too many stepparenting resources act like stepparents are child-hating morons who have never interacted with a single kid in our lives? I remember reading books that seriously said shit like "Listen, you're dating someone with a kid, so you might have to get used to Friday night socce…

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Stepparents need breaks too! 1:06

3M ago1:06

1:06

💬 Send us a text! (Yes really!) Every parent needs a break from parenting once in a while, and that includes stepparents. Typically, society doesn’t accuse parents who need a break of hating their kids. Yet society loves to imply there’s something wrong with a stepparent who needs a break. Today’s pep talk is to remind you that you’re allowed to ta…

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Bonding problems with stepkids. 1:19

3M ago1:19

1:19

💬 Send us a text! (Yes really!) The time, energy, and effort you pour into the relationship with your stepkid might not be reciprocated. At least, not yet. Then again, possibly not ever. Or else maybe it'll come back to you and then some! 🤷🏻‍♀️ The point is, you JUST NEVER KNOW which way it's gonna go with your stepkid. And that goes double or trip…

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ESMO and evidence-based advocacy: Leading the science of patient engagement 16:26

3M ago16:26

16:26

In this episode of the Pep Talks podcast, Emma interviews Rachel Giles, an associate professor of internal medicine and president of VHL Europa. Giles shares her journey from a career in internal medicine, nephrology, and oncology to patient advocacy, driven by her personal experiences with a family affected by a tumour suppressor syndrome. She dis…

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Stepkids in high conflict. 1:01

3M ago1:01

1:01

💬 Send us a text! (Yes really!) The ex being high conflict can have a direct impact on how well you’re able to connect with your stepkid. If your stepkid's other home is dysfunctional or abusive, then even their most basic interpretations of love, belonging, or family could be very different from yours. Maybe more different than you’d ever guess. S…

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If your stepkid rejects you… 1:25

3M ago1:25

1:25

💬 Send us a text! (Yes really!) If your stepkid wants nothing to do with you, please know that's more of a reflection on what you represent to them than it is a commentary on your personality. Your stepkid doesn't care how great you are. All they care is that you represent change, and change feels scary — especially to kids who are still shaken up …

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When the ex twists the custody order. 1:01

3M ago1:01

1:01

💬 Send us a text! (Yes really!) Custody orders are not a matter of opinion. A parenting plan is an enforceable legal document that protects both parents' legal parenting rights. One parent cannot legally make arbitrary, unilateral decisions that affect the other parent's visitation time; that would be a violation of the custody order. And you have …

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Improving our stepkids’ lives. 1:16

3M ago1:16

1:16

💬 Send us a text! (Yes really!) One of my biggest stepparenting frustrations was feeling blocked in my ability to make changes for the better in the life of my stepkid. Yet — trying to parent my stepkid ended up causing stress and friction between me and my stepkid AND between me and my partner. And when that happens, it’s probably time to disengag…

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Does life outside stepparenting even exist? 0:54

3M ago0:54

0:54

💬 Send us a text! (Yes really!) Sometimes we get so wrapped up in stepfamily life that we forget there's a big wide world beyond our blended family bubble. We can try so hard to be good stepparents that we end up losing track of who and what we are outside of our stepparenting role. When we define ourselves only by how much our stepkids like us (or…

1
Try to enjoy the absurdity. 1:03

3M ago1:03

1:03

💬 Send us a text! (Yes really!) We tell our kids that big emotions feel scary, but that’s actually just as true for us grownups. Stepparenting is overwhelming a surprising percentage of the time. No matter how committed you are to building your blended family, you cannot be all in, all the time without some kind of pressure relief valve. Sometimes …

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You are not alone! 1:07

3M ago1:07

1:07

💬 Send us a text! (Yes really!) Today’s pep talk is simple. I just want you to know you are not alone. You're not. As isolated as you may feel, as many cheerleading posts about stepparenting that you might read (and then feel guilty that you don't feel like a cheerleading kinda stepparent), know that stepparenting being hard is also normal. It took…

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