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Joe Sooch, patient advocate.
Manage episode 310908515 series 2922340
The Health Design Podcast and Moyez Jiwa에서 제공하는 콘텐츠입니다. 에피소드, 그래픽, 팟캐스트 설명을 포함한 모든 팟캐스트 콘텐츠는 The Health Design Podcast and Moyez Jiwa 또는 해당 팟캐스트 플랫폼 파트너가 직접 업로드하고 제공합니다. 누군가가 귀하의 허락 없이 귀하의 저작물을 사용하고 있다고 생각되는 경우 여기에 설명된 절차를 따르실 수 있습니다 https://ko.player.fm/legal.
Joe Sooch here. I have a rare disease called FOP where my muscles turn into bones literally I was born with all my limbs working normally with free range. As I get older, I’ll get swellings all over my body and bones just start forming the bones grow and locks my body into place permanently. I can get surgery or more bones will grow. My DNA is faulty so there is nothing any doctor can do to help. I am stuck like this permanently and just have to deal with it. https://www.instagram.com/joeysooch/ https://www.youtube.com/watch?v=_5P2U05uTfY&t=524s Wedding vlog https://www.youtube.com/watch?v=L-JLGt1R_RA&t=496s Follow me on instagram! https://www.instagram.com/joeysooch/ Proof https://www.instagram.com/p/CSzILlaLhor/?utm_source=ig_web_copy_link More proof https://imgur.com/a/8fTzUcZ https://www.dailymail.co.uk/video/health/video-1165043/The-boy-turning-stone-The-story-Joey-Sooch.html
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222 에피소드
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