Kylie Maslen on invisible illness, boundaries and shared understanding

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"If we’re going to get serious about talking about disability and mental health, then we need to talk about what that really looks like for everyone involved.” –Kylie Maslen

Author of Show Me Where It Hurts: Living with Invisible Illness Kylie Maslen discusses how creating a shared understanding of someone’s day to day can help break down the barriers between the well and unwell.

In this conversation, we discuss the importance of routine to reduce decision fatigue, but also the flip side of this constant vigilance. We also delve into burnout, the ableist idea of equating output with our worth, the Pomodoro technique, isolation and loneliness, community, and Kylie introduces me to spoon theory as a way to create boundaries but also be generous with other people’s energy.

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This podcast is produced and edited by Madeleine Dore. Special thanks to Nelson Dore for the theme music and Ellen Porteus for the cover art.

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