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저희가 찾을수 있는 최고의 Rar 팟캐스트 (업데이트 8월 2020)
저희가 찾을수 있는 최고의 Rar 팟캐스트
업데이트 8월 2020
플레이어 FM 수백만 명의 사용자와 함께 오프라인 일 때도 언제든지 뉴스와 새소식을 들을 수 있습니다. 타협을 거부하는 무료 팟캐스트 앱으로 팟캐스트를 더욱 스마트하게 즐기세요!
세계 최고의 팟캐스트 앱에 가입하면 좋아하는 프로그램을 온라인으로 관리하고 Android 및 iOS 앱에서 오프라인으로 재생할 수 있습니다. 쉽게 무료료 이용하세요!
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Rare in Common is a podcast about the unique stories of people affected by rare disease. Host Andra Stratton, a rare disease advocate, speaks with different members of the rare disease community, including patients, caregivers, healthcare professionals, and researchers. Join us as we tackle topics such as FDA approvals, national awareness campaigns, finding hope and support within the rare community, and the extraordinary challenges of living with a rare disease. Click. Listen. Feel.
 
Wait how do you spell that? is a rare disease podcast produced by Patient Worthy. We talk about issues affecting people rare and underdiagnosed conditions and interview advocates from across the community. We're definitely not doctors, and we can't give you medical advice. We're just here to chat and laugh and learn about issues that impact people living with diseases our doctors can't to spell.
 
When life gets tough, it's time for A Rare Kind of Faith: the kind of faith that *causes* things to happen. Leslie Householder shows you how the same activity with higher awareness always yields better results. After all, the solution to EVERY problem is only an idea away. Faith-based success principles to help you prosper your family. "So I'm listening to my podcast edits and I start dozing off. While I'm in that twilight zone, I catch myself thinking... 'Oh my goodness, I really relate to ...
 
"Rare & Scratchy Rock 'N Roll" is a rockumentary podcast series that tells the greatest rock and roll stories on record. This includes the untold tales of some great hits that time forgot, but maybe you'll still remember. These programs are hosted by Radio Dave, a veteran disc jockey and published authority on rock and pop music history. He draws his "Rare & Scratchy Rock 'N Roll" stories from his "groove yard," an archive that has more music than most record libraries.
 
A new podcast series devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. New Episodes every week. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because early ...
 
Podcasts to help business owners accelerate growth and sell their companies for maximum value. Episodes hosted by the team at RareBrain Capital, a leading M&A Advisory. Presenters explore all aspects of growing a business, tackling common performance problems, and selling a business for highest value.
 
This show is the learning project of students from Raroa Normal Intermediate. Each week we choose a theme, and then create a variety of stories on that theme. Everything about the show is student-run, from the content creating, to the recording and producing.
 
RareGem media features ten broadcast networks of positive programs and podcasts for business, lifestyle, inspiration, education, community, sports, youth, faith, health and entertainment. More at at www.oneraregem.com. Shows include #1 iTunes rated health podcast, The Model Health Show with Shawn Stevenson.
 
Stripping America of its current political corruption begins with us, the average american. Recycling allows one to reuse parts from an object, remove the corrosion, rust and old paint, taking the pieces back to there original intent. I want to strip away the corruption, deceit, and lawlessness by destroying political correctness. Jim is live weekday Monday-Friday 6 am - 8 am est
 
RAREFIED AIR is a music-driven podcast focusing on unique, vintage, and otherwise entertaining tracks culled from the archives of some of the film and television industry’s premiere production music libraries. The show primarily focuses on vintage production library music that was created for films and television programs from the 1960s, 1970s, and 1980s.
 
Join editor in chief, web designer and activist Ella Audrey Rae and occasional guests for real, off the cuff conversations about (now laughable) life experiences and owning who you are regardless of your mistakes. With some of her favorite influential people discussing their own heartfelt and hilarious experiences and advice ...this is going to be GOOD! Get your snacks and join the chat.
 
Dibuat oleh mantan mantan penyiar radio kampus yang kangen cuap cuap di kabin siar.Rapoepo akan tayang setiap hari sabtu sore yah. Kalau kalian mau request topik atau ada masukan bisa langsung komen di page sound cloud kita atau bisa juga ke email kita di rapoepo@gmail.comUntuk lebih intim, bisa juga dm atau komen or reply di social media kita dibawah ini nieh.Stay tuned!
 
Author Rae Schneider is a counselor (and listener) who has been partnering with non-profits for the last 8 years to help individuals in high-risk environments get the mental help they need. The vision for the Rarely Right Podcast is to extend that same heartbeat - that everyone deserves to be heard. The world can be a lonely place, but it doesn’t have to be. Here at Rarely Right, we want to celebrate stories, authenticity, and discuss life. Welcome. Support this podcast: https://anchor.fm/ra ...
 
Two Rare Mama Bears, a Cure CMD Podcast - where we discuss all things Congenital Muscular Dystrophy and Rare Disease...All subtypes, ages, abilities and topics with the intent to connect the CMD community. This podcast is about bringing together affected individuals, their family, researchers, clinicians, industry, and policy-makers to have conversations with the goal of moving the needle on the mission of Cure CMD. Hosts: Megan Meyer and Matty Manley.
 
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show series
 
R&SRNR_#117 – LOST HITS (& LOST HEADLINES) FROM EACH OF THE FIRST 20 YEARS OF THE “ROCK & ROLL ERA” This episode spotlights 60 lost hits from the first 20 years of the “Rock & Roll Era” – 1955 through 1974. We’ve picked three songs from each of those years, and they’re tunes you rarely hear on the radio, or from a satellite, or on anyone’s live str…
 
The world of health insurance can appear complex and confusing. For young adults with rare and chronic conditions, navigating their coverage options for the first time may also require them to consider access to specific physicians, services, and therapies. We spoke to Colleen Huysman, a clinical social worker with the Bridges Adult Transition Prog…
 
On this episode, Managing Editor Ilana Bean has a conversation with Amy Dahm, the head of Cushing's Support and Research Foundation patient support group for Washington, D.C., Maryland and Virginia. The interview was recorded at Rare Disease Week 2020 in February.저자 waithowdoyouspellthatraredisease
 
Chimezie is an Advisory Board Member at Kinesis Money for West Africa, formerly Regional Director for Africa at Paxful Inc. He is an accomplished tech innovation professional, Drupal Web Application Developer, Blockchain & Cryptocurrency Educator, Certified Bitcoin Professional (CBP)/ Blockchain Solution Architect, Community organizer, friend of di…
 
Daniela Sierra es abogada. Su pareja es un preso mapuche condenado a 21 años de cárcel que está en huelga de hambre. Juntos tienen una hija de un mes. Ella fue detenida al exigir una solución política para él y otros 26 presos mapuche. Hoy está con arresto domiciliario. Dice que todo es por una causa. www.lasraraspodcast.com @lasraraspodcast…
 
we welcome to the Groove Studio, Grammy Nominated R&B Soul Singer & Producer Songwriter the Ambassador of Love, Mr. Glenn Jones. Join us we take on a musical journey through he hits Show me, We’ve Only Just Begun”. “Here I Go Again”, “Stay”, “I’ve been Searching” and “Baby Come Home”. He also be sharing some of latest release.…
 
Pediatric pulmonary hypertension caregiver Sarah Mironczuk discusses her daughter Bee's road to a PAH diagnosis, grappling with depression and the importance of advocating for your child. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Fa…
 
Mirum Pharmaceuticals is advancing therapies for rare liver diseases. The company is preparing to file an application to seek marketing approval for its lead experimental therapy maralixibat for Alagille syndrome, a genetic disorder in which bile accumulates in the liver because of malformations of the bile ducts. We spoke to Chris Peetz, president…
 
Until 2014, Carren was the Principal Information Officer with responsibility for project leadership towards the development of a fully functional National Spatial Data Infrastructure (NSDI) for Belize that will enable sharing of spatial data (e.g. GIS data) across all sectors in Belize and contributing to national development and regional and globa…
 
This week we welcome to the Groove Studio, Soul Jazz flautist, vocalist, and songwriter Ragan Whiteside. She is the the first female flautist to hold the #1 spot on 3 major smooth jazz charts. Tune in as we take on musical journey of a child prodigy who has time has move then arrive on the Smooth Jazz scene as we share some of her latest release.…
 
Nidhy P. Varghese, MD is an Assistant Professor of Pediatrics and the Medical Director of the pediatric pulmonary hypertension program from Texas Children's Hospital. In this episode, Dr. Varghese discusses comprehensive care centers and centers of excellence in #pulmonaryhypertension and how that can be helpful for your child. Learn more about pul…
 
RARE & SCRATCHY ROCK 'N ROLL_116 – "THE COMPLETE HIT SINGLES HISTORY OF PETER & GORDON + PETER ASHER PRODUCTION HIGHLIGHTS" There’s only person that we can think of in the annals of rock and roll history who worked with the Beatles, Linda Ronstadt, James Taylor, Cher, Neil Diamond, and Diana Ross. He also was one-half of one of the most successful …
 
The debate over pricing of therapies often centers on the question of value and how to best determine it. The consulting firm Charles River Associates took an interesting approach to understanding the way payers view the pricing of rare therapies. Instead of asking them about pricing in terms of value, they asked about it in terms of fairness. We s…
 
In March 2020, after a year of battling what was assumed to be arthritis, 3-year-old Sophie Rosenberg was diagnosed with multicentric carpotarsal osteolysis (MCTO), a rare skeletal dysplasia. In spite of their initial shock, her parents Lauren and Hosea immediately tapped into their entrepreneurial roots, creating Sophie’s Neighborhood, an advocacy…
 
Yvette is a stalwart and well-seasoned entrepreneur in the Belize ecosystem. She believes she was born with an internal locus pushing her forward to start a business, even as a child she dreamed of starting up a small business venture. She used to come up with some ideas on how to convince her friends and the neighbourhood kids to buy her slightly …
 
Got the quarantine blues? Let the summertime grooves of Brazilian MPB cheer you up! This episode selects some obscure AOR style MPB grooves from the late 70s and early 80s. A few private press tracks in the mix, all killer no filler as always. Definitely one for the grown ups.Tracklist:Num Dia Azul - Num Dia AzulEdu Passeto + Gui Tavares - Sabia Na…
 
Elise Whalen is a pediatric Nurse Practitioner from Texas Children's Hospital’s Pulmonary Hypertension program. In this episode, she discusses her role as an NP, congenital diaphragmatic hernia, and the impact PH not only has on her patients, but parental anxiety that impacts the entire family. Learn more about pulmonary hypertension trials at www.…
 
Narcolepsy is a rare neurological sleep disorder with limited treatment options. Avadel is working on a controlled-release formulation of the standard of care, sodium oxybate, that allows for a once nightly dose of the drug. We spoke to Greg Divis, CEO of Avadel, about the company’s experimental therapy for narcolepsy, how it improves on the existi…
 
Anima is the Founder of Nani's Creations, a brand with the drive to promote African culture and pride, entrepreneurship and economic empowerment through trendy, handmade jewellery and accessories. We pride ourselves in using authentic fabric from Africa to make products that meet the highest quality standards. She is also the Cofounder of Ayfinergy…
 
Tune in now for another live episode of We Luvv Rare Grooves with Special Guest: This Monday we have brand new episode as we welcome to the Groove Steve Arrington Lead Singer of the R&B Group Slave. As a drummer percussionist record producer, Songwriter. Arrington left Slave in 1982, forming Steve Arrington's Hall of Fame and had hit singles such a…
 
Pulmonary Hypertension Patient, Melanie Brown discusses her complicated road to a proper PH diagnosis, counseling to cope with not being able to get pregnant and the power of giving back to the community by participating in PH trials & studies. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episod…
 
Join Trevan and Leslie Householder for a look at the importance and power of choosing faith over fear in facing life’s storms. The cure for fear is not courage, but knowledge. A scriptural look at God’s pattern for overcoming every challenge life throws your way. The principles are true, dependable, and sure. Discover what to do when you just can’t…
 
Ilana and Sunni are joined by Annie Kennedy and Lindsey Cundiff from the EveryLife Foundation for Rare Diseases. EveryLife is a nonprofit dedicated to advancing treatment and diagnostic opportunities for rare disease patients through science-driven public policy. In this episode, they discuss the steep road to diagnosis that many rare disease patie…
 
World champion wrestler and author of Wrestling with Angels, John Hanrahan talks with hall of fame wrestler and seven time world wrestling champion Lee Kemp, author of Winning Gold! Join them as they talk wrestling, getting through the tough times, and what they're up to now!Get John's book anywhere you buy books and Lee's book at leekemp.com.…
 
Idiopathic pulmonary fibrosis is a family of lung diseases characterized by scarring and thickening of lung tissue leading to an irreversible loss of lung function and reduced life expectancy. In normal times, the dry and persistent cough the condition can cause, can have a big impact on a person’s quality of life, but in the midst of a pandemic wh…
 
Ele is a breakthrough coach, brand strategist and a storyteller on a mission to enjoy life, eat everything she can, and help others become their own heroes. After quitting “the perfect job," she got married and started traveling the world. Unfortunately, what started as a dream come true ended up being a domestically violent relationship but that e…
 
RARE & SCRATCHY ROCK 'N ROLL _115 – "THE KIDS ARE ALRIGHT – 60 HIT PRODUCING PROGENCY OF FAMED ROCK, RHYTHM & BLUES, COUNTRY, AND POP PERFORMERS" This episode spotlights 60 hit-producing progeny of famed rock, rhythm & blues, country, and pop performers who also had charted records, owned record companies, and/or made their musical marks on Broadwa…
 
Pulmonary Hypertension Patient, Kathleen Grady discusses her road to diagnosis, her optimistic view on her rare disease and how she navigates the impact of #covid19. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Insta…
 
Ionis Pharmaceuticals has been a pioneer of antisense therapies, which target RNA to either disrupt production of a disease-causing protein or upregulate needed proteins in people who are deficient. The company is in late stage development of a promising therapy to treat Huntington’s disease, a rare and fatal neurodegenerative condition. But the co…
 
In this interview from Rare Disease Day at the NIH, Ilana talks to Harsha Rajasimha, the CEO and founder of Jeeva Informatic Systems about how clinical trials can change to better meet rare patient needs-- in the US, India, and across the world. Learn more at www.jeevatrials.com and https://biobuzz.io/this-startup-is-on-a-mission-to-decentralize-ce…
 
Elaine is a serial entrepreneur and currently, she is the CEO of CNEW International. She is responsible for business development as well as leading teams across the region from different offices in Singapore and China. Elaine is a seasoned leadership development and personal development trainer, advisor in working with CEOs, senior executives for t…
 
Pulmonary Hypertension Patient Allison Wells is a substitute teacher from Gander Newfoundland. In this episode, Allison discusses self-diagnosing her PH and her decision to adopt. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, …
 
RARE & SCRATCHY ROCK 'N ROLL_114 – "25 U.K. GROUPS THAT ROCKED THE BLUES" Blues is one of the cornerstones upon which rock and roll was built. You’ll hear artists like the Beatles, Rolling Stones, Animals, Yardbirds, Cream, Kinks, Jethro Tull, and Fleetwood Mac. You know their names. You might not know the blues roots of some of their music. We’ll …
 
Top shelf 60s bossa nova jazz instrumentals for the sophisticated listener. Only the best and rarest in this episode.*Visit: www.novedos.com for pics of all the records, and to subscribe for email updates of new episodes*Tracklist:Vitor Assis Brasil - EugenieMoacir Santos - Coisa No 9Paulo Moura Quarteto - Meu LugarDom Um Romao - Samba NagoAecio Fl…
 
Short Bowel Syndrome is a life-threatening rare disease caused by a significant shortening of the gastrointestinal tract. Because of difficulties people with short bowel syndrome have properly absorbing nutrients they rely on receiving them through intravenous infusions. This has an impact on the quality of life of people with the condition and com…
 
This Monday we welcome to the groove studio Author and entertainment executive Michael Stradford. Michael's new book “MilesStyle: The Fashion Of Miles” is elegant in tone and remarkably written. #michaelstradford Call us 323-524-2599. Brought to you by Beverly Boys Production저자 UBNGO
 
Mbadibba is an expert in business management, finance, migration, entrepreneurship, and a trusted trainer. Her passion to coach and develop emerging business leaders was honed during an impressive fellowship entrepreneurship program “Tony Elumelu Entrepreneurship Foundation” a program that supports African entrepreneurs through entrepreneurship tra…
 
Pulmonary hypertension patient, KC Yates discusses her PH diagnosis, thoughts on motherhood, and the art of listening to what her body is telling her. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube &…
 
Diagnosed with X-linked hypophosphatemia (XLH), Susan has faced the challenges of living with this rare disease to become an advocate of the community and an influential force behind the XLH Network. The global community recently celebrated the second annual XLH Awareness Day on June 23, 2020.This episode is brought to you by Ultragenyx.…
 
Huntington’s disease is a rare and fatal neurodegenerative condition that is without any disease-modifying therapies today. Vaccinex is developing an experimental therapy designed to treat Huntington’s disease by addressing neuroinflammation, a hallmark of the condition that it shares with other neurodegenerative diseases. We spoke to Maurice Zaude…
 
Maimuna Jahateh is the Founder of MaiyaMuna which is a company that makes homemade all natural skin and hair care products and uses these products to do beauty treatments in The Gambia. She holds a Bachelors degree in Biotechnology from Sharda University, India and was a Scientific Officer in the field of Malaria research at the Medical Research Co…
 
This episode discusses patient access to AveXis' gene therapy Zolgensma from Orsini Healthcare, US based specialty pharmacy's perspective. The senior team at Orsini provide insight on their experience of Zolgensma access including key manufacturer criteria, payer landscape along with challenges and lessons learnt. Presenter: Aparna Krishnan Contrib…
 
Alex Minnick discusses his role as a pulmonary hypertension caregiver to his father, PH patient, Dan Minnick, over the past decade in this Father's Day Edition of the phaware podcast. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebo…
 
When Sandra Bedrosian Sermone grew frustrated by the slow pace of a drug developer working to advance a potential therapy for ANDP, a rare condition her son has, she and another parent of a child with neurodevelopmental disorder began to search for a potential drug to repurpose. Their work suggested low doses of the powerful anesthetic ketamine cou…
 
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