It's not as bad as I thought it would be! We're back after a little break with a walk and talk ep. We chat the stress, guilt and frustration of trying to maintain a schedule and keep appointments when you have a chronic illness. How do you adapt to the new normal and how on earth to you become cool with that? My old life - I wish I knew how to quit…

Episode 29 The loneliness of the chronic illness experienceAs the world begins to explore getting back out into the world after months of isolation, we take a moment to think about those who will, once again, be left behind and missing. On a cheerier note, we have a bed of nails so all will be well. MUSIC – Feeling sunny by Scott Holmes from Free M…

Episode 28 – One Family, Four kids with ME feat Sean and Niamh HenneberrySome time ago, 14 year old Sean got in touch asking if he could come on the show and share his experience of having ME (Myalgic Encephalomyelitis). As we were getting organized to have our chat he revealed that all four kids in his family have the chronic illness. In this, fir…

Episode 27 – Older, Wiser, KinderWe are back from our “baby break” and ready to go. After a brief chat about life with ME and a new baby, we chat about our strong response and reaction to the recent tweet from Brianne Benness (@bennessb) that said “The distinction feels contrived, but my mental health really changed when I stopped asking "why am I …

Episode 26 and then there were threeThis week we share our experience of the first ten days of first-time parenthood and explore our hopes and fears as a parent with ME\CFS. Please do get in touch with your experience, tips and support. All will be most gratefully received!MUSIC – Feeling sunny by Scott Holmes from Free Music ArchiveContact us on t…

Episode 25 – feat. J E BarnardThis week we are joined by writer and very-much all-round great person J.E. (Jayne) Barnard. Jayne shares her long term experience of ME and chats about how it affected the whole family and also how she realized she had to find her own questions, answers and treatment to be able to just get by. She takes us through her…

Episode 24 – feat. Ros Lemarchand The French FemmeThis week we are joined by Rosalynde Lemarchand aka The French Femme. Ros shares her experience of ME as well as several of her poems that were inspired by the illness. Find her and her creative output here:https://www.facebook.com/pg/My-A-Z-of-ME-1403270009902127/about/?ref=page_internalMUSIC – Fee…

Episode 23 – ME\CFS You Can Get Better – a walkthroughThis week we return from a month off and share our experience of rigorously applying the guidance of Dr. David Smith’s ME\CFS You Can Get Better (http://www.me-cfs-treatment.com/wp-content/uploads/2013/03/Get-Well-Guidelines-Revised-2012.pdf). We share our day plan and how we have found the expe…

Episode 22 – Chronic Illness and weight gainThis week we explore the deeply personal subject of weight gain when suffering from an illness such as ME\CFS. We chat about the frustration of losing the ability to exercise and look at how our relationship with food can change when a tasty treat might now be a highlight of a day. We also hear from other…

Episode 21 – feat Antoinette and Anne, ME Support Northern IrelandThis week we share a recent chat with Antoinette Christie (Founder and mother to a son with ME) and Anne Smyth (benefit support and person with ME) from ME Support Northern Ireland. Recorded during Awareness week 2019 they share their honest and frequently heart-breaking experience o…

Episode 20 = How Are You Doing? Part TwoThis week having had time to reflect, consider and incorporate the experiences of fellow folk with ME, we return to the complexities of answering the simple question, How you doing? On the way we discuss “coming out” as someone with ME and ask if we are doing our loved ones an injustice when we don’t share th…

Episode 19 – feat. KT KingThis week we are joined by the fabulous KT King, author of Little Eden. We chat about the hard realities of chronic illness, the importance of good friends, how she represents MECFS in her writing and why everyone should find their Jessica Fletcher Hour. KT King and her books can be found on linktr.ee/ktkingbooks MUSIC – F…

Episode 18 – How are you doing?This week we consider the difficulties in trying to achieve any kind of consistency with MECFS then jump into an exploration of how to answer the surprisingly complex question, ”Hey, how you doing?”. MUSIC – Feeling sunny by Scott Holmes from Free Music ArchiveContact us on the show at:@0allaboutmeitsreallynotallabout…

Episode 17 - The definition of insanity and hope. This week we react to the realization that we have given up on trying to recover and ponder what hope of change we should expect as we once again try to tackle the illness. MUSIC – Feeling sunny by Scott Holmes from Free Music ArchiveContact us on the show at:@0allaboutmeitsreallynotallaboutme@gmail…

Episode 16 – featuring John Peters. Hi all. This week we had our long-awaited chat with John Peters. In a honest and passionate exchange, John shares his long experience with myalgic encephalomyelitis. Among many other subjects we discuss the viral foundation of his illness, the difficulty in processing social situations, the PACE trial and changes…

Episode 15 – Doctors, diets and being the expert of your own illness. This week we chat about a recent trip to the doctor and consider how it feels to be the “expert” of your own illness. Also discussed is the loss of the company of books and an update on the ongoing pacing and activity diary. Contact us on the show at:@0allaboutmeitsreallynotallab…

Episode 14 – featuring Rosa Devine. Back once again folks. Hope you are well. After a week off due to symptoms getting a tad severe we return to chat with Rosa Devine. Rosa set the MECFS corner of the Twitterverse alight a couple of weeks ago with her comic strip on her illness and a long interview with the Irish Times (see below). She chose to com…

Episode 13 – This week we share experience of Couch to 5K training, celebrate the upcoming Millions Missing week-long event and chat about the painful first time having to use accessible seating at a concert. Brutal honest experience as always. Contact us on the show at:@0allaboutmeitsreallynotallaboutme@gmail.comits not all about me podcast on Fac…

Episode 12 – This week we are joined by Retha from the MECFS Foundation South Africa. Retha shares her experiences of living with MECFS including raising children while ill, scheduled resting, ME in South Africa and talks about the foundation she set up to help others who have the illness. Retha and the organization can be reached at: Twitter - @me…

Episode 11 - This week we mix gratitude with a raw and recent experience of the true powerlessness that this illness can bring.Contact us on the show at:@0allaboutmeitsreallynotallaboutme@gmail.comits not all about me podcast on Facebook (closed group)Thanks all!!저자 Paddy with ME and a mic

Episode 10 – This week we are joined by the wonderful Jack Croxall. Jack shares his experience of MECFS and chats about, among other things, managing adrenaline, therapeutic video gaming, striking a balance between rest and physical pursuits and the growing strength of the MECFS community. Really good times!Jack can be found at @jackcroxall and jac…

Episode 9 - This week we reflect on the UK parliamentary debate on ME, big up Yoga Nidra and explore the dilemma of opportunities offered to us when we are ill. Share and subscribe then get in touch with your experience - t : 0allaboutmee : itsreallynotallaboutme@gmail.comfb : its not all about me podcast…

Episode 8 - This week we are joined by Jess Goyder (reemerging.co.uk)who shares her experience of living with ME. Jess can be reached at @JessGoyder. You can also check out a recent speaking appearance she made at https://www.youtube.com/watch?v=fPj2Wur8P-M where she shares some of her keys to living and thriving with ME. As always, share and subsc…

Episode 7 -Featuring a chat with Maggie talking about living with someone living with MECFS. Not to be missed! We also chat about the upcoming uk parliamentary debate on mecfs, pacing and consider the two faces of ME. t : 0allaboutmeitsreallynotallaboutme@gmail.comfb : Its not all about me podcast저자 Paddy with ME and a mic

INAAM ep 6 - Activity tracking and acceptance. This week we chat about how the first steps into pacing are going and explore the difficulty in accepting having an illness such as this. Subscribe, share and get in touch!t : 0allaboutmefb : It's not all about me podcaste : itsreallynotallaboutme@gmail.com…

Merry Christmas and Happy Holidays to you all@0allaboutmeitsreallynotallaboutme@gmail.com저자 Paddy with ME and a mic

Episode 5 - Pacing. We take an episode to learn about pacing thanks to the booklet from Action For ME at https://www.actionforme.org.uk/uploads/pdfs/pacing-for-people-with-me-booklet.pdf@0allabout meitsreallynotallaboutme@gmail.com저자 Paddy with ME and a mic

Episode 4 - Coping and complex mathematics. Shout outs to Mauro Ranallo, Meditation Minis podcast, Couch to 5K, Me Association and the Fabulous app.@0allaboutmeitsreallynotallaboutme@gmail.comFB - its not all about me저자 Paddy with ME and a mic

Episode three - Where it gets real as we chat about the mental, emotional and spiritual consequences of having this illness.@0allabout meitsreallynotallaboutme@gmail.comFB - Its not all about ME저자 Paddy with ME and a mic

Episode two. Where we discuss ME\CFS symptoms and podcast coffee etiquette. Enjoy!@0allaboutmeitsreallynotallaboutme@gmail.comFB: Its not all about me저자 Paddy with ME and a mic

Episode one of the It's Not All About ME podcast. A welcome, an introduction and a story about a guy who might be called Flarry. Twitter: 0allaboutmeEmail: itsreallynotallaboutme@gmail.com저자 Paddy with ME and a mic