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A new podcast series devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. New Episodes every week. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because early ...
 
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Are you #phaware? EVERYBODY HAS A STORY. WHAT'S YOURS? phaware® wants to share your pulmonary hypertension story with our engaged global audience. Whether you are a patient, caregiver, or medical professional, we are enlisting PH community members from across the globe. We can record anyone... from anywhere... anytime. Contact us at: www.phawarepod…
 
Dr. Raymond Benza is the Director for the Division of Cardiovascular Medicine at “THE” Ohio State University. He has been in practice for more than 20 years. In this episode, Dr. Benza discusses GossamerBio’s GB002 Phase 2 Study and explains what differentiates GB002 from other investigational drugs in development. Learn more about pulmonary hypert…
 
Rosalind Marshall-Jones is an innovative speaker with more than 15 years of experience in the caregiving industry. She is a seasoned health care provider, who runs Jacksonville’s Best Caregivers, an organization that provides short and long-term health care. In this episode, Roz discusses the impact #covid19 has had on home healthcare from anxiety,…
 
David F. Harris founded Insight & Measurement and provides research, training and speaking to the industry. In this episode, he discusses the qualitative and quantitative work that he conducts with PAH patients, so that people who get invited to be part of these types of studies have some understanding of what actually the process is like and what …
 
SPECIAL EDITION: The Pathways To Treatment The PAH Initiative and United Therapeutics are excited to bring you the PAH Today National Broadcast Series. This series of virtual events is intended for adult patients with pulmonary arterial hypertension (PAH) and their caregivers. Advancements in the care and treatment of PAH are improving the lives of…
 
PAH patient Sarah Sizemore discusses being diagnosed with pulmonary hypertension at a young age in Denver, her family's decision to move from altitude and how positivity helps her face this disease. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @ph…
 
SPECIAL EDITION: How Decisions Today Can Shape the Future The PAH Initiative and United Therapeutics are excited to bring you the PAH Today National Broadcast Series. This series of virtual events is intended for adult patients with pulmonary arterial hypertension (PAH) and their caregivers. Advancements in the care and treatment of PAH are improvi…
 
Krosby Myers is a registered Nurse at UC San Diego Health System. Though she works in their surgical oncology unit, Krosby had no idea that UCSD was a leading pulmonary hypertension center, until she was diagnosed with PH in her 37th week of pregnancy. In this episode she discusses her journey to diagnosis and how her nursing perspective changed in…
 
SPECIAL EDITION: Beyond the Basics The PAH Initiative and United Therapeutics are excited to bring you the PAH Today National Broadcast Series. This series of virtual events is intended for adult patients with pulmonary arterial hypertension (PAH) and their caregivers. Advancements in the care and treatment of PAH are improving the lives of those i…
 
Bulgarian pulmonary hypertension patient Natalia Maeva is a founding member and current President of the Bulgarian Society of the patients with pulmonary hypertension. In this episode, Natalia discusses her journey with PH migrating to Greece for treatment and to Austria for a double-lung transplant, her passion for PH awareness and being a positiv…
 
Baby Jessica Romero was born October 26, 1983 in Denver, Colorado. Jessica was born 3 months premature, weighing one pound, 7 ounces. The Rocky Mountain News crowned her the “Miracle Baby of Colorado." Now, 37 years later Jessica discusses, her diagnosis, her outlook on a lung transplant and her commitment to pulmonary rehab. Learn more about pulmo…
 
George B. Mallory, MD is a pediatric pulmonologist at Texas Children's Hospital. In 2001, he joined the Baylor College of Medicine pediatric faculty and founded the TCH Lung Transplant Program. In this episode, Dr. Mallory reflects on his 40 years of clinical practice and how the treatment of pulmonary hypertension has profoundly changed over the y…
 
Erica Huntzinger, MPH is an Associate Producer of the phaware® podcast series. In this episode she discusses what it's like to be the daughter and family caregiver of a #pulmonaryhypertension patient, how she became involved in raising PH awareness, and her hopes for the future of this #raredisease community. Learn more about pulmonary hypertension…
 
Jaime Cruz is a caregiver to his daughter, Diana, who is this year's Pediatric Courage Award Winner of the 20th Annual Virtual Race Against PH 5K/Fun Run, taking place November 1st, 2020. In this episode, they discuss Diana's pulmonary hypertension diagnosis and how she navigates this disease. #raph20virtual Register for the 20th Annual Race Agains…
 
Roham Zamanian, MD is the Director of the Adult Pulmonary Hypertension (PH) Program at Stanford University Medical Center. In this episode, he discusses the 20h Annual Virtual Race Against PH 5K/Fun Run, taking place at Stanford on November 1st, 2020 #raph20virtual Register for the 20th Annual Race Against PH 5K: med.stanford.edu/raceagainstph Regi…
 
Lindsey Doolan is a caregiver to her daughter, Paige, who is a pediatric pulmonary hypertension patient. In this episode, they discuss Paige's PH diagnosis and the importance of the 20th Annual Virtual Race Against PH 5K/Fun Run, taking place at Stanford on November 1st, 2020 #raph20virtual Register for the 20th Annual Race Against PH 5K: med.stanf…
 
Yon Sung, MD is a Clinical Assistant Professor of Pulmonary & Critical Care at Stanford University School of Medicine and specializes in the care of pulmonary hypertension patients. In this episode, she discusses the 20h Annual Virtual Race Against PH 5K/Fun Run, taking place at Stanford on November 1st, 2020 #raph20virtual Register for the 20th An…
 
Emma Olson Jackson is a Pediatric Nurse Practitioner at Seattle Children's Hospital. In this episode, she discusses her history in helping develop pediatric pulmonary hypertension programs across three different specialty centers. Emma also discusses the challenges that pediatric programs face in treating this disease. Learn more about pulmonary hy…
 
Sheila Gujrathi, MD and Larry Zisman, MD of Gossamer Bio discuss the development of an investigational new treatment for pulmonary arterial hypertension and their Phase 2 Clinical Trial for GB0002. Learn more about their Clinical Study of Inhaled GB002 for Treatment of WHO Group I Pulmonary Arterial Hypertension (PAH): https://clinicaltrials.gov/ct…
 
Ryan D. Coleman, MD specializes in pediatric critical care and pulmonary hypertension at Texas Children's Hospital. Dr. Coleman is also the medical director of the Right Ventricular Failure Program. In this episode, Dr. Coleman discusses how #pulmonaryhypertension impacts both the parents and the patient, how hope drives science and why every child…
 
Lisa Knight Skeeters was born with heart defects and had multiple surgeries through her younger years. 14 years ago, she developed pulmonary hypertension and was advised not to have children. In this episode, Lisa discusses the reasons she and her husband decided to adopt. Learn more about pulmonary hypertension trials at www.phaware.global/clinica…
 
Jennifer Stone is a school teacher from the Los Angeles Area. She was diagnosed with PAH in July 2011. In this episode, she discusses how she is fighting this disease through clinical trials, staying positive, and having a strong support system. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episo…
 
Pediatric pulmonary hypertension caregiver Sarah Mironczuk discusses her daughter Bee's road to a PAH diagnosis, grappling with depression and the importance of advocating for your child. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Fa…
 
Nidhy P. Varghese, MD is an Assistant Professor of Pediatrics and the Medical Director of the pediatric pulmonary hypertension program from Texas Children's Hospital. In this episode, Dr. Varghese discusses comprehensive care centers and centers of excellence in #pulmonaryhypertension and how that can be helpful for your child. Learn more about pul…
 
Elise Whalen is a pediatric Nurse Practitioner from Texas Children's Hospital’s Pulmonary Hypertension program. In this episode, she discusses her role as an NP, congenital diaphragmatic hernia, and the impact PH not only has on her patients, but parental anxiety that impacts the entire family. Learn more about pulmonary hypertension trials at www.…
 
Pulmonary Hypertension Patient, Melanie Brown discusses her complicated road to a proper PH diagnosis, counseling to cope with not being able to get pregnant and the power of giving back to the community by participating in PH trials & studies. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episod…
 
Pulmonary Hypertension Patient, Kathleen Grady discusses her road to diagnosis, her optimistic view on her rare disease and how she navigates the impact of #covid19. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Insta…
 
Pulmonary Hypertension Patient Allison Wells is a substitute teacher from Gander Newfoundland. In this episode, Allison discusses self-diagnosing her PH and her decision to adopt. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, …
 
Pulmonary hypertension patient, KC Yates discusses her PH diagnosis, thoughts on motherhood, and the art of listening to what her body is telling her. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube &…
 
Alex Minnick discusses his role as a pulmonary hypertension caregiver to his father, PH patient, Dan Minnick, over the past decade in this Father's Day Edition of the phaware podcast. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebo…
 
Dr. Hilary DuBrock is an Assistant Professor of Medicine with joint appointments in Pulmonary and Critical Care Medicine and Cardiovascular Medicine from Mayo Clinic in Rochester, MN. In this episode, she discusses pregnancy and pulmonary hypertension. Dr. DuBrock’s clinical and research interests include pulmonary hypertension (PH) and pulmonary v…
 
Michael Laughlin was diagnosed with severe Pulmonary Hypertension in January 2018. He started experiencing shortness of breath in 2016 while working as part of an insurance catastrophe team. Now, two years after his diagnosis, Michael serves as an auxiliary officer at a local police department. Learn more about pulmonary hypertension trials at www.…
 
ENCORE EDITION: Kevin Paskawych is a pulmonary hypertension patient and car racing enthusiast from Ohio. Kevin discusses his dream to drive PH Awareness through his PHenomenal Motorsports iRacing Team and by taking awareness from the digital realm into the real world. Here's Some Good News... Tune into FS1 Tonight (May 26) at 7:30pm ET for the Alsc…
 
Jane Price's daughter, Connie was diagnosed with pulmonary hypertension at age 3. At age 4, she was the 2nd child (the first girl) to ever have the Potts Shunt operation in the UK. In this episode, Jane shares Connie's 2 year post surgery story for everything to become more stable. Learn more about pulmonary hypertension trials at www.phaware.globa…
 
COVID-19 SPECIAL EDITION: Susan Summerfield is a pulmonary hypertension patient and retired airline stewardess. In this episode, Susan discusses her diagnosis, having to retire from the airline industry due to PH and how she is coping with self-isolation due to COVID-19 #phaware Stay up to date with the latest on Coronavirus Disease 2019 at the CDC…
 
COVID-19 SPECIAL EDITION: Maleen Fischer was diagnosed with pulmonary hypertension at age 3. Two decades later, Maleen discusses battling coronavirus symptoms and coping with self-isolation during lockdown in Vienna. #phaware Stay up to date with the latest on Coronavirus Disease 2019 at the CDC website Click here for Important COVID-19 Information…
 
COVID-19 SPECIAL EDITION: Laura Rivera has contended with Pulmonary Hypertension for more than 24 years. In this episode, Laura details her recent 5 day battle with COVID-19 after being hospitalized at New York Presbyterian Hospital. #phaware Stay up to date with the latest on Coronavirus Disease 2019 at the CDC website Click here for Important COV…
 
BREAKING: COVID-19 SPECIAL EDITION: Patricia George, MD is a PH pulmonologist and co-director of the pulmonary hypertension program at National Jewish Health. She is also one of the original 4 racers on Team PHenomenal Hope. In this special LIVE edition of the phaware podcast, we connect with Dr. George as she and her colleagues board a plane to NY…
 
COVID-19 SPECIAL EDITION: Justin Gulliver is a pulmonary hypertension patient from New Zealand as well as a health social worker primarily working with people who have chronic and long term health conditions. Justin discusses being on both side of the health system in NZ. He also discusses the impact that social distancing is having on his practice…
 
COVID-19 SPECIAL EDITION: Kaarina Wilson is a self-described Canadian patient, leader, chronic illness defeater from Canada. She discusses her PH, CTEPH, and scleroderma diagnosis as well as the road to lung transplant, rehab, recovery and self-isolation in a time of coronavirus. This episode was recorded from her Toronto hospital bed on 4/2/20. Ka…
 
COVID-19 SPECIAL EDITION: Timothy Fernandes, MD and Demos Papamatheakis, MD along with Sheryl Wu, Pharm D, Cynthia Rodriguez, RN & Sandee Lombardi, RN from The UC San Diego Sulpizio Cardiovascular Center PH & CTEPH Careteam present on the impact of COVID-19 has on the PH community in this special edition Q&A podcast. #phaware #phawareMD Be sure to …
 
Avi Halpert is Vice President, Corporate Real Estate at United Therapeutics. In this episode, Avi discusses his role of overseeing the development of UT's Silver Spring, Maryland headquarters as well as site development of their North Carolina facilities to meet corporate energy goals. Learn more about pulmonary hypertension trials at www.phaware.g…
 
Paula Menezes was a caregiver of her mother, Maria Cristina, who was diagnosed with Pulmonary Hypertension in Jan 2005. Maria passed away in 2007. Before her death, ABRAF (Brazilian Pulmonary Hypertension and Related Diseases Association), was founded by Paula’s father. Paula is the president of the organization as well as the captain of Team PHeno…
 
South African Pulmonary hypertension caregiver, Shanna Hiemstra is captain of Team PH South Africa. Since Shanna's mother Sandra was diagnosed, Shanna has become largely involved with PHA South Africa. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us …
 
SPECIAL EDITION: Roham Zamanian, MD from Stanford University Medical Center discusses Coronavirus (COVID-19) and gives Specific Advice for the Pulmonary Hypertension Community. Stay up to date with the latest on Coronavirus Disease 2019 at the CDC Website. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never mi…
 
SPECIAL EDITION: Victor F. Tapson, MD from Cedars-Sinai discusses coronavirus (COVID-19) and how it might impact Pulmonary Hypertension Patients. Stay up to date with the latest on Coronavirus Disease 2019 at the CDC Website. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware®…
 
Pulmonary hypertension patient Ashley Belle discusses her diagnosis at age 27, getting out of an abusive relationship and embarking on a career as a chef. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTu…
 
In this episode, Dr. Perez discusses the diagnostic evaluation of the patient with pulmonary hypertension at the clinic. Vinicio de Jesus Perez, MD is Assistant Professor of Medicine (Pulmonary and Critical Care Medicine) at the Stanford Adult PH Clinic where he trains fellows pursuing careers in PH and IPF. Learn more about pulmonary hypertension …
 
In this episode, Dr. Perez discusses ongoing clinical studies in #pulmonaryhypertension and what that means for practitioners & patients with PH. Vinicio de Jesus Perez, MD is Assistant Professor of Medicine (Pulmonary and Critical Care Medicine) at the Stanford Adult PH Clinic where he trains fellows pursuing careers in PH and IPF. Learn more abou…
 
Lindsay Thurman is an idiopathic pulmonary arterial hypertension patient diagnosed in 2008. Lindsay teaches math full time at a high school in Louisville, KY. She is on triple oral therapy as well as a study medication in #clinicaltrial. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with …
 
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